Input Needed for Pediatric CKD Booklet

2019-05-20T14:57:30-04:00May 20th, 2019|Categories: About DPC Ed Center, eNews, Pediatric Kidney Disease|

The DPC Education Center is developing a pediatric booklet for tweens and teens about having kidney disease and its treatment. If you have been living with kidney disease since childhood or are a parent of a child with kidney disease, we’d appreciate your response to this short survey by June 7th. Thanks for your input! If you were diagnosed with kidney disease as a child, click here. If you are a parent of a child with kidney disease, click here.

Premature Birth Increases Kidney Disease Risk

2019-05-20T15:20:25-04:00May 16th, 2019|Categories: Diagnosis of Kidney Disease, eNews, Pediatric Kidney Disease|

Researchers analyzed over four million singleton live births in Sweden during 1973-2014 and found the risk for chronic kidney disease (CKD) was doubled among births before 37 weeks of gestation and tripled among births before 28 weeks. Additionally, researchers found that the risk increased by four percent per premature week. Scientists compared the data to siblings born full-term and found the increased risk for kidney disease was not present among the siblings. The researchers concluded, "Preterm and early term birth are strong risk factors for the development of CKD from childhood into mid-adulthood. People born prematurely need long term follow-up for [...]

Psychosocial Factors Affecting Children and Families Living with Chronic Illness

2019-05-20T15:26:59-04:00May 6th, 2019|Categories: eNews, Lifestyle, Mental Health, Pediatric Kidney Disease, Support, Webinar|

During this webinar, Amy Walters, PhD, Clinical Psychologist will discuss: 1) the psychological and emotional side effects of chronic illness on children and families, 2) how illness impacts different stages of childhood development, 3) common concerns reported by parents and children and 4) ways to support children and their families in coping with chronic illness. About the Presenter Amy Walters, PhD, is a clinical psychologist and the Director of Behavioral Health Services for St. Luke’s Humphreys Diabetes Center in Boise, Idaho. Dr. Walters works with patients to overcome barriers to behavioral change, learn to cope with chronic illness, and address issues [...]

Knowledge is Key for CKD and ESRD Patients

2019-05-03T18:15:11-04:00May 2nd, 2019|Categories: Employment, eNews, Nutrition, Pediatric Kidney Disease, Treatment, Webinar, What Causes Kidney Disease|

Print out the flier At the Dialysis Patient Citizens Education Center we believe it is extremely important to educate kidney patients at all stages of kidney disease as well as their family members. We offer free, monthly webinars and conference calls on an assortment of topics related to kidney care. We work hard to help fill in the gaps for people living with kidney disease who need to learn more about their disease, treatments and quality of life to enable them to be key members of their health care team. Included is a list of educational topics for the [...]

Living with Kidney Disease: Tips for Teens on How to Cope

2019-04-23T10:16:51-04:00April 22nd, 2019|Categories: eNews, Mental Health, Pediatric Kidney Disease|

By Elizabeth Lewan, Communications & Grassroots Program Coordinator at the American Psychological Association Your kidneys have many functions in the body and play an important role in your overall health and wellness. They help the body eliminate harmful toxins by filtering waste and extra fluid from your blood, control blood pressure and keep your bones healthy. Although you have been diagnosed with chronic kidney disease, you can still live a meaningful and healthy life. You may be feeling scared or unsure about your health or the changes happening to your body. It may seem like you’re on an emotional roller coaster, [...]

Free Monthly Webinars/Conference Calls

2019-05-10T13:12:23-04:00March 21st, 2019|Categories: About DPC Ed Center, Costs for Treatment, Diagnosis of Kidney Disease, Early Intervention, Employment, Home Hemodialysis, Humor and Laughter, Immunizations, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Medication, Mental Health, Music, Nutrition, Pediatric Kidney Disease, Peritoneal Dialysis, Physical Health, Sex and Intimacy, Stages of Kidney Disease, Stress Management, Support, Symptoms, The Kidney Citizen, Webinar, What Causes Kidney Disease|

The DPC Education Center invites people living with chronic kidney disease (CKD), end-stage renal disease (ESRD), their families and professional staff to join us for our monthly webinars. You can also join by phone or view the recordings online at a later time. The webinars are planned for the fourth Thursday of the month at 2 p.m. Eastern time zone, except for November and December when they will be held during the third week of the month. You can download monthly webinar fliers to share with others and/or register for webinars at www.dpcedcenter.org/news-events/education-webinars. Join by phone by calling 1-877- 399-5186 and [...]

Growing Up On Dialysis

2019-05-17T16:11:53-04:00February 25th, 2019|Categories: Lifestyle, Pediatric Kidney Disease, The Kidney Citizen|Tags: |

By Julie Crandall, CBCS, CMAA, Patient Ambassador, DPC Education Center Board Member How was it to grow up with end-stage renal disease (ESRD)? Since I didn’t know any other way; for me, it was normal. I can tell you that in my case, my family was the most important people that helped me navigate childhood. It helped that they didn’t treat me like the ‘sick kid’ of the family; I was a daughter and a little sister. I didn’t know what to focus on for this article. It was difficult to narrow down my childhood with ESRD and dialysis to write [...]

When Your Parent is Sick: Tips for Children on Managing Feelings

2019-03-08T09:40:02-04:00February 11th, 2019|Categories: eNews, Fact Sheet, Mental Health, Pediatric Kidney Disease|

By Elizabeth Lewan, Communications & Grassroots Program Coordinator at the American Psychological Association Having a sick parent can be scary and stressful, especially if there are long hospital stays or physically intense treatments. Having a parent diagnosed with a serious health condition, like kidney disease, can seem especially frightening if you don’t know how it will affect your family. It is estimated that one in seven adults have chronic kidney disease.1 Your parents, doctors and family members can help you get through this tough time. Here are some tips to help you manage your feelings: Prepare for change. You may notice [...]

When Your Child Is Diagnosed with Kidney Disease: Tips on How to Cope

2019-03-08T11:08:12-04:00January 3rd, 2019|Categories: eNews, Fact Sheet, Pediatric Kidney Disease|

By Elizabeth Lewan, Communications & Grassroots Program Coordinator at the American Psychological Association Parents want to make sure their child has a healthy and happy life, but sometimes a health complication can change things. Having a child diagnosed with pediatric chronic kidney disease (CKD) can leave parents feeling overwhelmed, anxious and scared for their child’s overall well-being, especially in the beginning. However, you can play an active role in your child’s care and treatment by providing the emotional support he/she needs and educating yourself about kidney disease and its treatments. Below are some tips that parents and caregivers may find helpful [...]

Scientists Observe Delayed Progression of Rare Kidney Disease with the Aid of Medication

2018-09-07T17:21:17-04:00July 24th, 2018|Categories: eNews, Medication, Pediatric Kidney Disease, What Is Kidney Disease|

Researchers are making progress toward developing medications to delay the progression of rare kidney diseases. A study published in the Clinical Journal of the American Society of Nephrology reported a lower decline of estimated glomerular filtration rate (eGFR) among individuals with autosomal dominant polycystic kidney disease (ADPKD) treated with medication, compared to the control group. Glomerular filtration rate (GFR) measures kidney function effectiveness by documenting how well the kidneys are filtering the blood. Researchers hope this type of medication will prevent or delay the need for an individual to go on dialysis or other kidney replacement therapy. The decline of eGFR [...]