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Are There Living Kidney Donor Registries?

2020-12-15T14:01:11-05:00December 11th, 2020|Categories: Additional Resources, Fact Sheet, Kidney Transplant, The Kidney Citizen|Tags: |

By Harvey Mysel I’ve often been asked: “Where can I register to get a living donor?” Unlike deceased donation where there’s one national list, (although you can multi-list because some areas have a shorter wait time) there’s no such list for someone looking for a living donor. You must find your own living donor. When you do have someone that is able to be a living donor, many are not compatible with their recipient. Thirty to 50 percent of donor/recipient pairs are not compatible with each other. In such a situation the incompatible donor could still help the person in need [...]

Having a Kidney Transplant During COVID-19

2020-12-15T14:01:36-05:00November 27th, 2020|Categories: Additional Resources, Fact Sheet, Kidney Transplant, Mental Health, Stress Management, Support, The Kidney Citizen|Tags: , |

By Jewel Edwards-Ashman I started the year 2020 anticipating that I’d enter kidney failure and have to undergo my second kidney transplant. But I didn’t expect to start doing home dialysis and eventually have transplant surgery in the middle of a pandemic. Transplant surgery in ordinary circumstances comes with a high level of stress and anxiety. Having a kidney transplant during a public health crisis only exacerbated those feelings for me. To reduce my stress and manage my emotions, here are three things I did: I prioritized self-care. Most Americans, even those who aren’t living with chronic illness, have been experiencing [...]

Should I Get a Kidney Transplant?

2020-11-05T15:12:08-05:00November 5th, 2020|Categories: Additional Resources, eNews, Kidney Transplant|

Dialysis patients who are considering whether to pursue a kidney transplant can check out a new resource to help them make that decision. The resource—a guide that was written by patients with End-Stage Renal Disease—provides an overview of the decisions that need to be made when getting a transplant, the rewards and risks involved, and what to expect after the transplant. Patient stories, questions to ask transplant facilities and additional resources are also included in the guide. Download the guide.

Supporting Your Health and Wellbeing Before, During, and After Kidney Transplant

2020-12-11T09:37:28-05:00September 3rd, 2020|Categories: Additional Resources, Fact Sheet, Kidney Transplant, Lifestyle, Mental Health, Physical Health, Stress Management, Support, The Kidney Citizen|Tags: |

By Elizabeth Steinberg Christofferson, PhD and Leah Grande, MA Preparing for and receiving a kidney transplant, especially during the COVID-19 pandemic, can be an uncertain and overwhelming process. This article discusses tips to promote positive mental and physical health for yourself or your loved ones. Preparing for a Transplant There are many different emotions associated with deciding to go on the transplant list, and all of these feelings are normal and valid! You may feel excited about the potential for improved health and energy, fewer restrictions on what you can eat and drink (although you still want to eat a [...]

Participating in a Clinical Trial

2020-08-21T13:11:16-04:00August 21st, 2020|Categories: Additional Resources, Early Intervention, eNews, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Treatment, Webinar|

New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or product before it becomes available on the market. This phase of research is called a clinical trial or a clinical research project. People can volunteer to be part of a clinical trial if they meet the specific requirements for the study. You might consider participating in the research process for many reasons including if it has a personal meaning for you or if you want to [...]

Public Health Service Guidelines on Organ Donation for HIV, HBV, HCV and Transplant Recipient Monitoring

2020-08-05T09:50:32-04:00July 15th, 2020|Categories: eNews, Kidney Transplant|

The U.S. Public Health Service (PHS) recently released the PHS Guideline for Solid Organ Donor Assessment for Human Immunodeficiency Virus (HIV), Hepatitis B Virus (HBV), and Hepatitis C Virus (HCV) Infection and Transplant Recipient Monitoring. This document updates existing PHS guidance pertaining to solid organ donors and recipients and testing for HIV, HBV, and HCV in addition to informed consent and appropriately communicating the risk of disease transmission to transplant candidates. The revised guideline reflects substantial advances in testing technology and treatment that improve patient safety. Key things for you to know: Risk of infection due to transplant is very low. [...]

What the COVID-19 Means for Kidney Patients

2020-04-27T21:20:25-04:00March 8th, 2020|Categories: Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Physical Health, Webinar|Tags: |

Learn about COVID-19 and what you and your family can do to protect yourselves. You will also learn about the CDC’s guidance for dialysis facilities and how your facility staff is working to prevent the spread of infection. Presented by: Alan Kliger, MD, with the American Society of Nephrology (ASN) and Shannon Novosad, MD with the Centers for Disease Control and Prevention (CDC) About the Presenters: Shannon Novosad, MD, MPH is a Medical Officer with the Dialysis Safety Team in the Division of Healthcare Quality Promotion (DHQP) at the Centers for Disease Control and Prevention. Dr. Novosad received her medical degree from [...]

New Resources for Teens

2020-04-27T21:20:25-04:00March 2nd, 2020|Categories: Additional Resources, Diagnosis of Kidney Disease, eNews, Fact Sheet, Home Hemodialysis, Humor and Laughter, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Medication, Nutrition, Pediatric Kidney Disease, Peritoneal Dialysis, Stress Management, Support, Symptoms|Tags: |

These booklets were developed for tweens and teens who learn their kidneys are not working and they will need dialysis or a transplant. The booklets provide a brief overview of coping with kidney disease, being part of their health care team, the importance of diet, taking medication, and treatment methods. They also touch on feelings related to having a chronic illness, family and friends, and being a teen. The development of both booklets included input from kids currently on dialysis, parents, adults who had kidney disease as children, and nephrologists.  Although both booklets are similar, one focuses on teens who learn [...]

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