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Just a Dad with Kidney Disease

2023-01-11T14:08:01-05:00January 11th, 2023|Categories: Dialysis, eNews, In-Center Hemodialysis, Kidney Transplant, Quality of Life|

By Gene Blankenship, DPC Board Member Being a dad with kidney disease is something that I never imagined when I was younger.  Actually, I never once pictured myself as a person who would be challenged by kidney failure, even though I watched my dad "Big Gene" struggle with end stage renal failure all my life until his death when I was 12 years old. Now, my weeks each have an automatic 16 hours at the dialysis center (20 hours with travel) during “prime time” completely scheduled for me until I receive a transplant.  Those 20 hours are the perfect [...]

Improving Pregnancy Outcomes for Women on Dialysis or with a Kidney Transplant

2022-12-07T13:02:51-05:00December 1st, 2022|Categories: Dialysis, eNews, Kidney Transplant, Physical Health|

New research suggests that pregnancy outcomes are improving for women on dialysis or with a kidney transplant. Hayet Baouche, MPH, of APHP-Necker-Enfants Malades Hospital, REIN Registry in Paris, France and colleagues reported in Clinical Kidney Journal that from 2010 – 2020, the frequency women on dialysis becoming pregnant increased. There was a decrease in hypertensive disorders of pregnancy and polyhydramnios, as well as lower rates of neonatal and perinatal deaths compared to previous decades, likely attributed to advancements in obstetric and neonatal care, and progress in fetal monitoring and dialysis treatments. A systematic review of 14 retrospective and prospective studies [...]

Navigating a Renal Diet: Decoding the Mystery

2022-11-02T21:39:30-04:00October 27th, 2022|Categories: Dialysis, Kidney Transplant, Nutrition, Staying Healthy, The Kidney Citizen|

By Fanny Sung Whelan, MS, RDN, LDN How to navigate a renal diet based on your kidneys’ needs No matter what stage of kidney disease you’re in, all of the different diet recommendations can cause your head to spin. Pair it with other conditions you may have, and you’ve got a real recipe for confusion! So how can you sort out all of the differences in what you can and can’t eat? Here we are going to outline the diet guidelines for the different stages of kidney disease. Disclaimer: it is important to discuss any diet changes with your [...]

Organ Transplants Are Up, but the Agency in Charge Is Under Fire

2022-10-13T11:58:54-04:00September 20th, 2022|Categories: Dialysis, eNews, Kidney Transplant|

By Blake Farmer, Nashville Public Radio September 7, 2022 For the past decade, Precious McCowan’s life has revolved around organ transplants. She’s a doctoral candidate studying human behavior in Dallas who has survived two kidney transplants. And in the midst of her end-stage renal disease, her 2-year-old son died. She chose to donate his organs in hopes they would save a life. Now her kidney function is failing again, and she’s facing the possibility of needing a third transplant. But the process of finding that lifesaving organ is rife with problems. Roughly 5,000 patients a year are dying on the waitlist — even as [...]

World’s First HIV-Positive to HIV-Positive Heart Transplant Performed

2022-08-08T15:39:52-04:00August 4th, 2022|Categories: eNews, Kidney Transplant|

Earlier this spring, a woman in her 60s became the first to receive an HIV-positive to HIV-positive heart transplant. She suffered from advanced heart failure and received the donation, which happened simultaneously with a kidney transplant, during a four-hour surgery at Montefiore Health System in the Bronx. The woman spent five weeks recovering in the hospital and is currently being monitored by transplant physicians at Montefiore. In 2013, the HIV Organ Policy Equality Act enabled people living with HIV to donate their organs to HIV-positive recipients, but this is the first time this opportunity has been able to happen for heart [...]

Telehealth with a Mental Health Professional: What to Know Before You Start

2022-05-10T13:00:27-04:00May 5th, 2022|Categories: Dialysis, eNews, Kidney Transplant, Lifestyle, Mental Health, Stress Management|

By Kirsten Weir If you or a family member are managing chronic kidney disease, you’re probably thinking a lot about physical health—the health of the kidney and the rest of the body. Caring for your mental health is just as important. And with telehealth options that let you see a mental health professional from your home, it’s more convenient than ever. “The increased availability and acceptance of telehealth might be one of the few positive changes to come out of the [COVID-19] pandemic,” says Amy Walters, PhD, a clinical health psychologist and the director of Behavioral Health Services for St. Luke's [...]

DPC’s State Advocacy Efforts Flourish with Elevated Voice of DPC Patient Ambassadors

2022-05-09T16:58:33-04:00April 25th, 2022|Categories: Costs for Treatment, Kidney Transplant, The Kidney Citizen, Uncategorized|

Image: Medigap champion Kentucky State Rep. Tom Burch and Elizabeth Lively, DPC Eastern Region Advocacy Director By Kelly Goss, J.D., LL.M., Western Region Advocacy Director and Elizabeth Lively, Eastern Region Advocacy Director, Dialysis Patient Citizens (DPC) It’s been a busy start in 2022 for DPC’s state advocacy efforts. Many states are holding shorter legislative sessions due to the upcoming primary elections, and several bills impacting dialysis patients have been introduced and are moving quickly through the legislative process. Legislation to expand Medigap access has been introduced in Arizona, Kentucky, Louisiana, Maryland, Nebraska, New Jersey, Rhode Island, Vermont, and Wisconsin. Improving access [...]

My Experience as a Kidney Patient in CKD, Dialysis, and Transplant

2022-05-09T12:48:26-04:00April 25th, 2022|Categories: Diagnosis of Kidney Disease, Dialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Stages of Kidney Disease, The Kidney Citizen|

By Orlando A. Torres After a 30-year battle with chronic kidney disease (CKD), in 2016 I had Stage Five kidney failure. This was the end of a three-decade battle which took countless hours of treatment. For years, I had been followed medically for CKD, having a special test done monthly and eating a special diet. As a CKD patient, my condition affected other organs in my body. The number of regular activities I could do also declined, but I never quit and refused to accept those limitations. I never let CKD limit what I did. I think it is [...]

COVID-19 and Patients with Kidney Disease on Dialysis

2022-05-06T15:50:34-04:00February 25th, 2022|Categories: Dialysis, Employment, eNews, Immunizations, Kidney Transplant, Lifestyle, Mental Health|Tags: |

By Alan Kliger, MD Updated March 18, 2022 I am writing this mid-March 2022, as the last peak of COVID infection with the Omicron variant has rapidly fallen in every US state, but wastewater analysis has shown places in the US where virus infection in some communities is rising again. A new sub-variant, BA.2 is making up about 23% of cases. Abroad, the United Kingdom is seeing increasing hospitalizations with COVID infection, and many locations in the far east have raging infections. The effects of the surge in Omicron cases around the world this past winter have deeply affected [...]

Kidneys: Holy Grail Pursuit of Regenerative Medicine

2022-03-30T13:11:26-04:00December 17th, 2021|Categories: Kidney Transplant, The Kidney Citizen, Treatment|

By Anthony Atala, MD, Director, Wake Forest Institute for Regenerative Medicine Recently, two teams of scientists from the Wake Forest Institute for Regenerative Medicine (WFIRM) won first and second place in NASA's Vascular Tissue Challenge, a prize competition that aims to accelerate tissue-engineering innovations. Vascularization of engineered solid organs – like the kidney – is part of the Holy Grail pursuit of regenerative medicine. Being able to create organs with the needed blood vessel structure means the organs are supplied with needed nutrients and oxygen to survive when implanted. The two Wake Forest teams both used 3D bioprinting technology to create [...]

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