By Elizabeth Steinberg Christofferson, PhD and Leah Grande, MA Preparing for and receiving a kidney transplant, especially during the COVID-19 pandemic, can be an uncertain and overwhelming process. This article discusses tips to promote positive mental and physical health for yourself or your loved ones. Preparing for a Transplant There are many different emotions associated with deciding to go on the transplant list, and all of these feelings are normal and valid! You may feel excited about the potential for improved health and energy, fewer restrictions on what you can eat and drink (although you still want to eat a [...]
New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or product before it becomes available on the market. This phase of research is called a clinical trial or a clinical research project. People can volunteer to be part of a clinical trial if they meet the specific requirements for the study. You might consider participating in the research process for many reasons including if it has a personal meaning for you or if you want to [...]
Emergency grants can help cover costs for transportation, medication, rent and food when someone is sick. This one-page guide will help you better understand the submission process with a summary of searching, preparing, applying and tracking grants. Included is a list of documents you may be asked to submit with your grant request. Reach out to your social worker if you need help. Check out the guide.
In this presentation you will learn about: 1) the different types of access for dialysis, 2) how to examine and monitor your access and 3) why it is important to avoid catheters.
Public Health Service Guidelines on Organ Donation for HIV, HBV, HCV and Transplant Recipient Monitoring
The U.S. Public Health Service (PHS) recently released the PHS Guideline for Solid Organ Donor Assessment for Human Immunodeficiency Virus (HIV), Hepatitis B Virus (HBV), and Hepatitis C Virus (HCV) Infection and Transplant Recipient Monitoring. This document updates existing PHS guidance pertaining to solid organ donors and recipients and testing for HIV, HBV, and HCV in addition to informed consent and appropriately communicating the risk of disease transmission to transplant candidates. The revised guideline reflects substantial advances in testing technology and treatment that improve patient safety. Key things for you to know: Risk of infection due to transplant is very low. [...]
During this webinar You will learn about 1) The risks vs benefits of a transplant, 2) The choice of a deceased vs living donor, 3) How to find a living donor, and 4) Tips from patients’ own transplant experiences.
Hyperkalemia is a potentially life-threatening electrolyte disorder and is more often seen in people who have End Stage Kidney Disease than the general public. For people WITHOUT kidney failure, potassium, an important mineral within the body, helps regulate fluid balance, muscle contractions and nerve signals. When people eat more potassium than their body needs, the kidneys filter and excrete out any extra through the urine. However, when the kidneys do not work, potassium can build up in the blood and cause hyperkalemia/high potassium. You can learn more about foods high in potassium and hyperkalemia in Issue 10 of our patient newsletter, [...]
During this webinar you will learn the latest on: 1) What kidney patients need to do (dialysis & transplant), 2) What dialysis facilities are doing and 3) What we can learn from New York’s COVID-19 experience.
Updated May 6, 2020 Earlier this month the President signed the “Families First Coronavirus Response Act,” which is a bill that will increase funding to several federal programs in response to the COVID-19 viral outbreak. The bill aids Americans in the areas of healthcare (including COVID-19 testing), nutrition, paid sick leave, unemployment, family and medical leave, and more. Below is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying [...]
Irwin Dunsky By Irwin Dunsky I found out my kidneys were disintegrating about seven years ago. They were working about thirty-five percent. I stated watching some of the things I was eating and a year later they were at thirty percent. My doctor told me that soon I would have to get a new kidney if I didn’t watch it. My kidneys kept going down, and four years ago they reached twenty percent functioning. I went to three hospitals to get on a kidney transplant list. They all told me that my heart was a risk factor that they [...]