Enjoy Your Life!

2024-02-08T09:57:40-05:00February 8th, 2024|Categories: Dialysis, eNews, Lifestyle, Mental Health, Physical Health, Quality of Life, Staying Healthy, Stress Management|

Dialysis does not mean the end of your life! You are still able to perform many of the tasks that you did prior to dialysis but patience and planning are necessary. Please read the following tips provided by Fresenius Medical Care (www.freseniusmedicalcare.com). Talking to the staff at the dialysis centers. Writing down questions ahead of time and inform family members about changes in treatment. Finding out as much as possible about the illness through a National Kidney Association or Society, local or national support groups, written materials, and educational classes. Staying involved in the pleasures, activities, and responsibilities of daily living. [...]

DPC Education Center 2023 Review and 2024 Preview

2024-01-11T15:32:50-05:00January 11th, 2024|Categories: About DPC Ed Center, eNews, Patient Support Group, Quality of Life, Resources, Staying Healthy, The Kidney Citizen, Treatment|

GREETINGS! This past year was an exciting one for the Education Center. We ramped up our social media platforms, allowing more direct exposure and interaction with our audience, including monthly LIVEs on Instagram and Facebook. Dr. Velma Scantlebury, our medical consultant, was available on Instagram every first Wednesday and on Facebook every third Wednesday—both occurred at 12:30 pm. Our support group, the Kidney Chat, was the second Tuesday of each month by telephone. Nephrologists, nutritionists, and social workers (just to name a few) were guests on the call, and shared important information and resources with patients. We also published an informative [...]

How does my loved one qualify to become a Living Kidney Donor?

2023-10-11T09:31:18-04:00September 26th, 2023|Categories: eNews, Kidney Transplant, Treatment|

By V. Scantlebury, MD, FACS If someone you know is thinking about becoming a living donor, then they obviously want to help save a life or drastically improve the quality of life for the person they care about. This is one of the most obvious benefits to living donation. So, what is the criteria to become a living kidney donor? Most of all, you must be at least 18 years of age and have two functioning kidneys. Potential donors must also be in good health, and this is determined by the transplant center’s medical workup. Each transplant center’s criteria may be [...]

Why do I need my Parathyroid glands removed?

2023-09-08T12:42:34-04:00August 22nd, 2023|Categories: Dialysis, eNews, Physical Health, Staying Healthy|

By V. Scantlebury, MD, FACS Chronic kidney disease is associated with phosphate retention due to a decrease in the ability of the kidneys to filter phosphate, especially as your kidney function falls below 25 ml/min. Once you start renal replacement therapy, there is an accumulation of phosphorus that is not removed by dialysis treatments. This occurs because of both decreased filtration and decreased excretion of phosphate in various areas of the kidney. High phosphate levels are a stimulus for hyperparathyroidism: the over secretion of parathyroid hormone (PTH) from the glands. There are usually four parathyroid glands located in the neck, all [...]

A Look at Home Hemodialysis

2023-08-03T15:47:56-04:00August 3rd, 2023|Categories: Dialysis, eNews, Hemodialysis, Home Hemodialysis, Peritoneal Dialysis, Quality of Life, Treatment|

Summary by V. Scantlebury, MD, FACS Home dialysis modalities, which include home hemodialysis (HHD) and peritoneal dialysis (PD), offer several benefits for patients with end-stage kidney disease (ESKD). Home dialysis is associated with improvements in blood pressure, less issues with mineral metabolism, better sleep quality and improvement of left heart enlargement. It also allows patients the flexibility of adjusting their own dialysis schedule with more time and less cost of traveling to the dialysis center. However, despite these advantages, only 2% of all dialysis patients in the d U. S.  and 3-6% in Canada are on HHD.  The authors from a [...]

ESRD and COVID-19 VACCINATION

2023-07-12T12:41:01-04:00June 30th, 2023|Categories: Dialysis, eNews, Immunizations, Kidney Transplant, Physical Health, Staying Healthy|Tags: |

By V. Scantlebury, MD, FACS, DPC Education Center Healthcare Consultant Patients with ESRD have a reduced response to immunizations compared to the general population. This is because the response of their immune system is suppressed, leading to the inability to adequately form an antibody response or maintain antibody titers over time.  The low antibody response appears to be correlated with the degree of kidney failure. Despite the inadequate antibody response, getting vaccinated is still recommended and is most important for patients who are immunocompromised. Just as the annual influenza vaccine is updated every year to cover the most prominent strains of [...]

Dialysis Cruising

2023-06-18T15:46:04-04:00June 14th, 2023|Categories: Dialysis, Hemodialysis, Quality of Life, The Kidney Citizen|

Joanne Smith, RN, Kidney Care Advocate, Fresenius Kidney Care Whether you are on in-center hemodialysis, peritoneal dialysis, or home hemodialysis taking a cruise is an option for you. It takes a bit of planning, but what vacation doesn’t? I have experienced several cruises that have offered services for dialysis patients. The treatments were performed in staterooms on the lower level of the ship, close to the infirmary. We used a portable reverse osmosis machine attached to the water from the bathroom to provide the purified water needed for the dialysis treatments. We used jugged acid and bicarbonate solutions [...]

Andrew Carr Knows There’s More for Him

2023-06-14T14:22:23-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Mental Health, Stress Management, The Kidney Citizen|

Andrew Carr Kidney disease has been part of Andrew’s life since he was 7 years old, when he was diagnosed with Hydronephrosis. Now 29, Andrew has had kidney disease for the majority of his life, but he’s guided by the principle that his kidney disease doesn’t control his life, he does. Andrew began dialysis treatments when he was 19. While Andrew’s exposure to kidney disease happened so early in his life, he does not remember how he felt about it at its outset, but vividly remembers the beginning of his dialysis treatments. For three-and-a-half years Andrew persevered through [...]

The Making of An Advocate

2023-06-14T14:17:06-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Medication, Mental Health, Support, The Kidney Citizen, Treatment|

Gene Blankenship, DPC Board of Directors Thinking about Life Sitting in my recliner watching the leaves fall like big fat orange snowflakes, I see the trees begin to change colors. My immediate first thought is “How many more seasons of change will I see? Is this my last fall”? Polycystic Kidney Disease (PKD) is a constant passenger in my life. Anytime you have a passenger with you for long periods of time, you will go through events together that stamp your life. For example, as a child, I watched Eugene Taylor Jr., my dad, hook himself up every [...]

Spring 2023 State Advocacy Update

2023-06-14T14:15:01-04:00June 14th, 2023|Categories: Costs for Treatment, Resources, The Kidney Citizen|

Elizabeth Lively, DPC Eastern Region Advocacy Director Pamela Zielske, DPC Western Region Advocacy Director The 2023 legislative session has been a busy and productive one for DPC’s state advocacy efforts. Bills impacting dialysis patients have been introduced in multiple state legislatures and in most cases have moved quickly through the legislative process. Improving access to Medigap coverage is a top priority for DPC, and we are thrilled that legislation was introduced in multiple states this session to expand Medigap access to patients under the age of 65. Last month, DPC celebrated Governor Glenn Youngkin's (R) signing [...]

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