World’s First HIV-Positive to HIV-Positive Heart Transplant Performed

2022-08-08T15:39:52-04:00August 4th, 2022|Categories: eNews, Kidney Transplant|

Earlier this spring, a woman in her 60s became the first to receive an HIV-positive to HIV-positive heart transplant. She suffered from advanced heart failure and received the donation, which happened simultaneously with a kidney transplant, during a four-hour surgery at Montefiore Health System in the Bronx. The woman spent five weeks recovering in the hospital and is currently being monitored by transplant physicians at Montefiore. In 2013, the HIV Organ Policy Equality Act enabled people living with HIV to donate their organs to HIV-positive recipients, but this is the first time this opportunity has been able to happen for heart [...]

Will the COVID-19 Pandemic Ever End?

2022-08-08T15:37:03-04:00August 1st, 2022|Categories: Dialysis, eNews, Immunizations, Mental Health|Tags: |

By Alan S. Kliger, MD, Clinical Professor of Medicine, Yale School of Medicine, and Chair, Excellence in Patient Care Advisory Committee, American Society of Nephrology Some recent quotes I’ve heard - - - I’ll bet you have too: “Who can even pay attention when the subject of COVID-19 is raised?” “Enough already – I’m through with it” “What’s the difference? Even with vaccines and boosters, I still got COVID twice!” After nearly three years of this pandemic, COVID-19 infection has gone from a frightening and deadly disease to a major disruptor of our lives, to annoying background noise for most of [...]

Just how accurate are rapid antigen tests? Two testing experts explain the latest data

2022-07-07T12:42:50-04:00July 1st, 2022|Categories: eNews, Immunizations, Staying Healthy, Uncategorized|Tags: |

Once in short supply, rapid antigen tests are now available throughout the U.S. Nathaniel Hafer, UMass Chan Medical School and Apurv Soni, UMass Chan Medical School As of May 2022, the U.S. is experiencing another uptick in the number of COVID-19 cases. High rates of infection in Europe and Asia, along with the continued emergence of new sub-variants, such as omicron BA.4 and BA.5, raise concerns that another surge could be on the way. Even though demand for COVID-19 tests greatly overwhelmed supply earlier in the pandemic, rapid home tests are more available today. While home tests provide a quick, [...]

Value-Based Health Care & Medicare – Weighing the Pros and Cons

2022-07-07T10:02:30-04:00June 14th, 2022|Categories: Costs for Treatment, eNews, Medication, Treatment|

Value-based care has become a hot topic in the health care industry. The model of paying providers bonuses for better patient health outcomes and penalizing them for poor outcomes may seem like a great idea and one that would encourage a more holistic approach to patient care. Some health care experts have concerns about what this means for people on Medicare Advantage (MA), though; specifically, there may be more focus on costs and less focus on quality. Janice Horowitz, author of Health Your Self, has three primary concerns when it comes to value-based care in MA plans: Restrictions on where you [...]

Medicare Surprise: Drug Plan Prices Touted During Open Enrollment Can Rise Within a Month

2022-06-06T12:46:41-04:00June 6th, 2022|Categories: Costs for Treatment, eNews, Medication|

By Susan Jaffe May 3, 2022 Something strange happened between the time Linda Griffith signed up for a new Medicare prescription drug plan during last fall’s enrollment period and when she tried to fill her first prescription in January. She picked a Humana drug plan for its low prices, with help from her longtime insurance agent and Medicare’s Plan Finder, an online pricing tool for comparing a dizzying array of options. But instead of the $70.09 she expected to pay for her dextroamphetamine, used to treat attention-deficit/hyperactivity disorder, her pharmacist told her she owed $275.90. “I didn’t pick it up because [...]

Advocate for Your Health!

2022-06-06T12:29:40-04:00May 27th, 2022|Categories: eNews, Treatment|

Written by Orlando A. Torres, a DPC Patient Ambassador from Guaynabo, Puerto Rico Last year, I participated in my first Dialysis Patient Citizens (DPC) virtual Fly-In. DPC is an advocacy organization that represents all kidney patients in our community. The Fly-In was a virtual event where kidney patients, along with DPC staff, and other advocates, engaged in conversations with Congress members and their staffers in relation to new legislation to benefit renal patients. We discussed the concept of the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act that extended Medicare coverage of life saving immunosuppressive medications for the [...]

Telehealth with a Mental Health Professional: What to Know Before You Start

2022-05-10T13:00:27-04:00May 5th, 2022|Categories: Dialysis, eNews, Kidney Transplant, Lifestyle, Mental Health, Stress Management|

By Kirsten Weir If you or a family member are managing chronic kidney disease, you’re probably thinking a lot about physical health—the health of the kidney and the rest of the body. Caring for your mental health is just as important. And with telehealth options that let you see a mental health professional from your home, it’s more convenient than ever. “The increased availability and acceptance of telehealth might be one of the few positive changes to come out of the [COVID-19] pandemic,” says Amy Walters, PhD, a clinical health psychologist and the director of Behavioral Health Services for St. Luke's [...]

DPC’s State Advocacy Efforts Flourish with Elevated Voice of DPC Patient Ambassadors

2022-05-09T16:58:33-04:00April 25th, 2022|Categories: Costs for Treatment, Kidney Transplant, The Kidney Citizen, Uncategorized|

Image: Medigap champion Kentucky State Rep. Tom Burch and Elizabeth Lively, DPC Eastern Region Advocacy Director By Kelly Goss, J.D., LL.M., Western Region Advocacy Director and Elizabeth Lively, Eastern Region Advocacy Director, Dialysis Patient Citizens (DPC) It’s been a busy start in 2022 for DPC’s state advocacy efforts. Many states are holding shorter legislative sessions due to the upcoming primary elections, and several bills impacting dialysis patients have been introduced and are moving quickly through the legislative process. Legislation to expand Medigap access has been introduced in Arizona, Kentucky, Louisiana, Maryland, Nebraska, New Jersey, Rhode Island, Vermont, and Wisconsin. Improving access [...]

Falling by the Wayside? Falls Prevention in Dialysis

2022-05-06T16:08:10-04:00April 25th, 2022|Categories: Dialysis, Fact Sheet, Physical Health, The Kidney Citizen|

By Laura Plantinga, PhD, Bernard Jaar, MD, MPH, and C. Barrett Bowling, MD, MSPH Why are dialysis patients at particular risk for falls? Studies show that approximately one-quarter of dialysis patients fall every year, meaning that they are about three times more likely to fall in any given year, compared to the general population. While older age certainly plays a role, there are several other factors that put dialysis patients — regardless of age — at higher risk for falls. In fact, most falls probably result from a combination of factors, usually a combination of long-term “predisposing” risk factors [...]

The Courage to Self-Cannulate – Taking Control Means Less Pain, More Independence

2022-05-06T15:41:22-04:00April 25th, 2022|Categories: Dialysis, Quality of Life, The Kidney Citizen|

By Michelle Carver, Vice President Clinical Service Initiatives at Fresenius Kidney Care If the idea of self-cannulating every time you dialyze seems impossible, you are not alone. Many people fear needles, especially the large ones used for dialysis. But trust me, when you learn to do it, you’ll wonder why you ever doubted yourself. It gives you control, may make your access site last longer and, believe it or not, hurt less. One of my dialysis patients compared it to putting a cotton-tipped swab in your ear – would you rather do it yourself or have someone else do [...]

Go to Top