New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or product before it becomes available on the market. This phase of research is called a clinical trial or a clinical research project. People can volunteer to be part of a clinical trial if they meet the specific requirements for the study. You might consider participating in the research process for many reasons including if it has a personal meaning for you or if you want to [...]
In this presentation you will learn about: 1) the different types of access for dialysis, 2) how to examine and monitor your access and 3) why it is important to avoid catheters.
During this webinar you will learn the latest on: 1) What kidney patients need to do (dialysis & transplant), 2) What dialysis facilities are doing and 3) What we can learn from New York’s COVID-19 experience.
Updated May 6, 2020 Earlier this month the President signed the “Families First Coronavirus Response Act,” which is a bill that will increase funding to several federal programs in response to the COVID-19 viral outbreak. The bill aids Americans in the areas of healthcare (including COVID-19 testing), nutrition, paid sick leave, unemployment, family and medical leave, and more. Below is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying [...]
Irwin Dunsky By Irwin Dunsky I found out my kidneys were disintegrating about seven years ago. They were working about thirty-five percent. I stated watching some of the things I was eating and a year later they were at thirty percent. My doctor told me that soon I would have to get a new kidney if I didn’t watch it. My kidneys kept going down, and four years ago they reached twenty percent functioning. I went to three hospitals to get on a kidney transplant list. They all told me that my heart was a risk factor that they [...]
Learn about COVID-19 and what you and your family can do to protect yourselves. You will also learn about the CDC’s guidance for dialysis facilities and how your facility staff is working to prevent the spread of infection. Presented by: Alan Kliger, MD, with the American Society of Nephrology (ASN) and Shannon Novosad, MD with the Centers for Disease Control and Prevention (CDC) About the Presenters: Shannon Novosad, MD, MPH is a Medical Officer with the Dialysis Safety Team in the Division of Healthcare Quality Promotion (DHQP) at the Centers for Disease Control and Prevention. Dr. Novosad received her medical degree from [...]
Updated 3/26/2020 Coronavirus disease 2019 (abbreviated COVID-19) is a new respiratory virus spreading to the United States. Although the health risk is low in this country at this time, we know that people who have chronic illnesses, weakened immune systems and/or are over the age of 60 could pose an increased risk if they develop the disease. That said, it is not a time to panic, but rather a time to use procedures that help prevent the flu, coronavirus and other infections. Prevention A great prevention tip is to avoid getting or sharing germs that can cause infections. Here are [...]
These booklets were developed for tweens and teens who learn their kidneys are not working and they will need dialysis or a transplant. The booklets provide a brief overview of coping with kidney disease, being part of their health care team, the importance of diet, taking medication, and treatment methods. They also touch on feelings related to having a chronic illness, family and friends, and being a teen. The development of both booklets included input from kids currently on dialysis, parents, adults who had kidney disease as children, and nephrologists. Although both booklets are similar, one focuses on teens who learn [...]
During this webinar you will learn: 1) how kidneys work, 2) about chronic kidney disease stages and symptoms, 3) how to slow progression, 4) end stage options for treatment and 5) about accesses. About the Presenter: Joanne Smith is a DPC Education Center Advisory Council member and has had multiple positions in the dialysis field since receiving her RN degree, ranging from Staff RN to Director of Nursing to Home Therapies Manager. She is currently a Kidney Care Advocate responsible for educating CKD and ESRD patients on kidney disease and options for treatment, focusing specifically on home dialysis. Unlike in other nursing [...]
By Mark Scirocco, Patient Ambassador I have been on in-center hemodialysis for three years. It was a rough start, as I went through 11 chest catheters in a little over a year. Two of them just fell out while I was sitting at home; the others got clogged. The last one almost killed me, stopping fluid in my upper body and head. My fistula was barely ready when they took that one out and placed a stent in my chest to allow fluid past my upper body. Three months after starting my fistula, I needed a fistulogram to open it up. [...]