Mike Guffey When Mike Guffey began dialysis treatments in 2008, one of his top priorities was to ensure he had a reason to keep moving forward, something to look forward to when he got out of bed which would allow him to push through his treatment regimen. For him, that meant returning to work as quickly as he could after starting his treatments, especially given how quickly he crashed into life on dialysis. Normally based in Kansas City, Mike was working temporarily as a project manager in Colorado when he noticed something was off. He went to the [...]
Velma Scantlebury, MD, DPC Education Center Health Care Consultant 1. Four hours is too long for me to sit in dialysis. Do I have to attend every treatment? Answer: Think of dialysis as being the only way to get the toxins out of your body from the food that you consume everyday - three times a day. When you lose kidney function and are on dialysis, you are usually then only cleansing your body every other day. Those toxins will build up and can cause your body to deteriorate over time. Missing dialysis is harmful to your body. [...]
By Gene Blankenship, DPC Board Member I was 42 years old when I crashed into dialysis, though my family obviously knew about my kidney disease. I also worked full time and so the next step was to tell my employer, OPEA. I cannot compliment my employer enough. From the second I told my Supervisor and our Executive Director it was, as the cool kids say, "cake". First words out of their collective mouths were "How can we help?' My doctor and I had already discussed what I could do while still keeping my health a priority. This made [...]
By Gene Blankenship, DPC Board Member Being a dad with kidney disease is something that I never imagined when I was younger. Actually, I never once pictured myself as a person who would be challenged by kidney failure, even though I watched my dad "Big Gene" struggle with end stage renal failure all my life until his death when I was 12 years old. Now, my weeks each have an automatic 16 hours at the dialysis center (20 hours with travel) during “prime time” completely scheduled for me until I receive a transplant. Those 20 hours are the perfect [...]
By Orlando A. Torres After a 30-year battle with chronic kidney disease (CKD), in 2016 I had Stage Five kidney failure. This was the end of a three-decade battle which took countless hours of treatment. For years, I had been followed medically for CKD, having a special test done monthly and eating a special diet. As a CKD patient, my condition affected other organs in my body. The number of regular activities I could do also declined, but I never quit and refused to accept those limitations. I never let CKD limit what I did. I think it is [...]
New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or product before it becomes available on the market. This phase of research is called a clinical trial or a clinical research project. People can volunteer to be part of a clinical trial if they meet the specific requirements for the study. You might consider participating in the research process for many reasons including if it has a personal meaning for you or if you want to [...]
In this presentation you will learn about: 1) the different types of access for dialysis, 2) how to examine and monitor your access and 3) why it is important to avoid catheters.
By Gloria Rohrer, DPC Patient Ambassador As a dialysis patient, it has become clear to me that one of the biggest flaws in the American health care system is the disjointed way care is often provided to patients. If patients have chronic conditions alongside other health complications, it can be exceedingly difficult to navigate the different doctors and hospitals we need in order to receive proper care. When seeing so many different doctors at various clinics and hospitals, patients like me can suffer adverse effects if all our treatments are not designed to address our full medical history, rather than a [...]
By Jack Reynolds, DPC Board Member I have survived on in-center hemodialysis for the last 45 years. I have also received Medicare for all those years to pay for most of my dialysis and other medical needs. I currently reside outside the village of Palmyra, Iowa. One of the first group of Patient Ambassadors to advocate in Washington, D.C. in 2005, I have visited Capitol Hill many times since. Because of the cost, time and effort it takes to keep a kidney patient healthy, I feel that it is important to be aware of issues and legislation that can impact our [...]
During this webinar you will learn the latest on: 1) What kidney patients need to do (dialysis & transplant), 2) What dialysis facilities are doing and 3) What we can learn from New York’s COVID-19 experience.