Updated May 6, 2020 Earlier this month the President signed the “Families First Coronavirus Response Act,” which is a bill that will increase funding to several federal programs in response to the COVID-19 viral outbreak. The bill aids Americans in the areas of healthcare (including COVID-19 testing), nutrition, paid sick leave, unemployment, family and medical leave, and more. Below is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying [...]
There is a resource—developed by patients with kidney disease—that provides an overview of where to get help with medical bills and employment. The types of medical bill tips highlighted include: An overview of Medicare coverage for people with End-Stage Renal Disease Where you may find help in getting supplemental coverage for the 20% Medicare doesn't pay Assistance for special populations (e.g., veterans, children, people with disabilities, etc.) Programs that help cover expenses related to health insurance premiums, living organ donation and medications. Assistance provided by some electric companies for home hemodialysis patients Employment tips [...]
There are more than 37 million people in the US living with Chronic Kidney Disease (CKD) and over 700,000 with End-Stage Renal Disease (ESRD). ESRD patients require multiple dialysis treatments a week in order to stay alive. Many CKD and ESRD patients find it difficult to continue working because of the time consuming treatments and the toll it has on their bodies. If you have kidney disease or ESRD and are not able to continue working, you may file a claim for Social Security benefits. While not guaranteed, these benefits help many patients cover some of their lost wages. Many CKD [...]
Do you have an idea to help others living with kidney disease? Are you interested in going back to school or work? There’s a grant for that. If you’ve never applied for a grant before, don’t worry. With resources to help guide you, it doesn’t have to be overwhelming. The End Stage Renal Disease National Coordinating Center (ESRD NCC) Patient Grant Library has what you need to help find the grant that’s right for you. It also offers links to sources for writing a proposal, creating a budget and submitting an application.
Employment is higher for working-age Americans with disabilities than one year ago as published in a report by the Bureau of Labor Statistics. Specifically, "the employment-to-population ratio for working-age people with disabilities increased from 29.5 percent in June 2018 to 31 percent in June 2019 (up 5.1 percent or 1.5 percentage points)." Additionally, the labor force participation rate—which is the percentage of the population that is working or actively looking for work—saw gains from 32.5 percent in June 2018 to 33.9 percent in June 2019 (up 4.3 percent or 1.4 percentage points) among working-age people with disabilities. These findings are important [...]
During this webinar Elizabeth Jones, MSW, LCSW will discuss 1) the benefits of working, furthering your education, training, volunteering and remaining active, 2) how these benefits can increase the likelihood of receiving a kidney transplant and decrease depression and 3) about work incentives for Social Security Disability Insurance and Medicaid recipients.
Print out the flier At the Dialysis Patient Citizens Education Center we believe it is extremely important to educate kidney patients at all stages of kidney disease as well as their family members. We offer free, monthly webinars and conference calls on an assortment of topics related to kidney care. We work hard to help fill in the gaps for people living with kidney disease who need to learn more about their disease, treatments and quality of life to enable them to be key members of their health care team. Included is a list of educational topics for the [...]
The DPC Education Center invites people living with chronic kidney disease (CKD), end-stage renal disease (ESRD), their families and professional staff to join us for our monthly webinars. You can also join by phone or view the recordings online at a later time. The webinars are planned for the fourth Thursday of the month at 2 p.m. Eastern time zone, except for November and December when they will be held during the third week of the month. You can download monthly webinar fliers to share with others and/or register for webinars at www.dpcedcenter.org/news-events/education-webinars. Join by phone by calling 1-877- 399-5186 and [...]
Here are a couple employment and financial resources that may be helpful to people with and without disabilities.
The US Department of Labor's Wage and Hour Division published an opinion letter last week stating that surgery for people who donate an organ qualifies as a “serious health condition” under the Family and Medical Leave Act (FMLA). The letter may provide reassurance to individuals that are considering donating a kidney, but are concerned about losing their jobs due to being away for surgery or post-surgery care. About the Family and Medical Leave Act The FMLA allows “eligible employees of covered employers” the ability to take 12 workweeks of unpaid leave during a 12-month period for certain family and medical conditions. [...]