Mike Guffey When Mike Guffey began dialysis treatments in 2008, one of his top priorities was to ensure he had a reason to keep moving forward, something to look forward to when he got out of bed which would allow him to push through his treatment regimen. For him, that meant returning to work as quickly as he could after starting his treatments, especially given how quickly he crashed into life on dialysis. Normally based in Kansas City, Mike was working temporarily as a project manager in Colorado when he noticed something was off. He went to the [...]
By Gene Blankenship, DPC Board Member I was 42 years old when I crashed into dialysis, though my family obviously knew about my kidney disease. I also worked full time and so the next step was to tell my employer, OPEA. I cannot compliment my employer enough. From the second I told my Supervisor and our Executive Director it was, as the cool kids say, "cake". First words out of their collective mouths were "How can we help?' My doctor and I had already discussed what I could do while still keeping my health a priority. This made [...]
By Alan Kliger, MD Updated March 18, 2022 I am writing this mid-March 2022, as the last peak of COVID infection with the Omicron variant has rapidly fallen in every US state, but wastewater analysis has shown places in the US where virus infection in some communities is rising again. A new sub-variant, BA.2 is making up about 23% of cases. Abroad, the United Kingdom is seeing increasing hospitalizations with COVID infection, and many locations in the far east have raging infections. The effects of the surge in Omicron cases around the world this past winter have deeply affected [...]
By Merida Bourjolly, DPC Education Center President ANXIETY OF COMING BACK I am sure everyone has felt the impact of the COVID-19 Pandemic. This is the first time I have experienced a complete shut down in my industry due to a virus. Additionally, the lockdown provided an opportunity for a pause and a chance to rethink my priorities and what is meaningful. From a financial perspective, this shut down taught me how to adapt to uncertain economic times. I am really grateful for technology that helped us connect virtually, provided an opportunity to work, and to make it through a stressful [...]
Updated May 6, 2020 Earlier this month the President signed the “Families First Coronavirus Response Act,” which is a bill that will increase funding to several federal programs in response to the COVID-19 viral outbreak. The bill aids Americans in the areas of healthcare (including COVID-19 testing), nutrition, paid sick leave, unemployment, family and medical leave, and more. Below is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying [...]
There is a resource—developed by patients with kidney disease—that provides an overview of where to get help with medical bills and employment. The types of medical bill tips highlighted include: An overview of Medicare coverage for people with End-Stage Renal Disease Where you may find help in getting supplemental coverage for the 20% Medicare doesn't pay Assistance for special populations (e.g., veterans, children, people with disabilities, etc.) Programs that help cover expenses related to health insurance premiums, living organ donation and medications. Assistance provided by some electric companies for home hemodialysis patients Employment tips [...]
There are more than 37 million people in the US living with Chronic Kidney Disease (CKD) and over 700,000 with End-Stage Renal Disease (ESRD). ESRD patients require multiple dialysis treatments a week in order to stay alive. Many CKD and ESRD patients find it difficult to continue working because of the time consuming treatments and the toll it has on their bodies. If you have kidney disease or ESRD and are not able to continue working, you may file a claim for Social Security benefits. While not guaranteed, these benefits help many patients cover some of their lost wages. Many CKD [...]
Do you have an idea to help others living with kidney disease? Are you interested in going back to school or work? There’s a grant for that. If you’ve never applied for a grant before, don’t worry. With resources to help guide you, it doesn’t have to be overwhelming. The End Stage Renal Disease National Coordinating Center (ESRD NCC) Patient Grant Library has what you need to help find the grant that’s right for you. It also offers links to sources for writing a proposal, creating a budget and submitting an application.
Employment is higher for working-age Americans with disabilities than one year ago as published in a report by the Bureau of Labor Statistics. Specifically, "the employment-to-population ratio for working-age people with disabilities increased from 29.5 percent in June 2018 to 31 percent in June 2019 (up 5.1 percent or 1.5 percentage points)." Additionally, the labor force participation rate—which is the percentage of the population that is working or actively looking for work—saw gains from 32.5 percent in June 2018 to 33.9 percent in June 2019 (up 4.3 percent or 1.4 percentage points) among working-age people with disabilities. These findings are important [...]
During this webinar Elizabeth Jones, MSW, LCSW will discuss 1) the benefits of working, furthering your education, training, volunteering and remaining active, 2) how these benefits can increase the likelihood of receiving a kidney transplant and decrease depression and 3) about work incentives for Social Security Disability Insurance and Medicaid recipients.