Coping with Chronic Illness During COVID-19: How to Live Well in the Context of Stress

2020-09-10T13:31:55-04:00September 9th, 2020|Categories: Additional Resources, eNews, Fact Sheet, Mental Health, Stress Management|Tags: |

By Elizabeth Steinberg Christofferson, PhD An increasingly vital aspect of the COVID-19 pandemic is how the pandemic impacts our mental health, overall well-being, and how we cope with the pandemic, especially as it continues on for a longer period than we may have anticipated or hoped. This article provides psychoeducation on the connection between stress, chronic illness, and COVID-19, tips for managing anxiety related to these stressors, and resources for further support. Stress During COVID-19 and Symptoms to Look Out for COVID-19 adds to already present stress that impacts patients and families on many levels in terms of their medical and [...]

Supporting Your Health and Wellbeing Before, During, and After Kidney Transplant

2020-09-10T17:10:43-04:00September 3rd, 2020|Categories: Additional Resources, Fact Sheet, Kidney Transplant, Lifestyle, Mental Health, Physical Health, Stress Management, Support, The Kidney Citizen|Tags: |

By Elizabeth Steinberg Christofferson, PhD and Leah Grande, MA Preparing for and receiving a kidney transplant, especially during the COVID-19 pandemic, can be an uncertain and overwhelming process. This article discusses tips to promote positive mental and physical health for yourself or your loved ones. Preparing for a Transplant There are many different emotions associated with deciding to go on the transplant list, and all of these feelings are normal and valid! You may feel excited about the potential for improved health and energy, fewer restrictions on what you can eat and drink (although you still want to eat a [...]

COVID-19 Resources for Dialysis Patients

2020-05-22T16:40:02-04:00March 31st, 2020|Categories: Additional Resources, Employment, eNews, Fact Sheet, In-Center Hemodialysis, Lifestyle, Nutrition, Stress Management|Tags: |

Updated May 6, 2020 Earlier this month the President signed the “Families First Coronavirus Response Act,” which is a bill that will increase funding to several federal programs in response to the COVID-19 viral outbreak. The bill aids Americans in the areas of healthcare (including COVID-19 testing), nutrition, paid sick leave, unemployment, family and medical leave, and more. Below is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying [...]

New Resources for Teens

2020-04-27T21:20:25-04:00March 2nd, 2020|Categories: Additional Resources, Diagnosis of Kidney Disease, eNews, Fact Sheet, Home Hemodialysis, Humor and Laughter, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Medication, Nutrition, Pediatric Kidney Disease, Peritoneal Dialysis, Stress Management, Support, Symptoms|Tags: |

These booklets were developed for tweens and teens who learn their kidneys are not working and they will need dialysis or a transplant. The booklets provide a brief overview of coping with kidney disease, being part of their health care team, the importance of diet, taking medication, and treatment methods. They also touch on feelings related to having a chronic illness, family and friends, and being a teen. The development of both booklets included input from kids currently on dialysis, parents, adults who had kidney disease as children, and nephrologists.  Although both booklets are similar, one focuses on teens who learn [...]

Where Kidney Patients Can Get Help with Medical Bills and Employment

2020-04-27T21:20:26-04:00February 20th, 2020|Categories: Additional Resources, Costs for Treatment, Employment, eNews, Fact Sheet, Support|

There is a resource—developed by patients with kidney disease—that provides an overview of where to get help with medical bills and employment. The types of medical bill tips highlighted include: An overview of Medicare coverage for people with End-Stage Renal Disease Where you may find help in getting supplemental coverage for the 20% Medicare doesn't pay Assistance for special populations (e.g., veterans, children, people with disabilities, etc.) Programs that help cover expenses related to health insurance premiums, living organ donation and medications. Assistance provided by some electric companies for home hemodialysis patients Employment tips [...]

Quick Guide for Receiving Medical Services Not Offered by Medicare

2020-04-27T21:21:18-04:00June 19th, 2019|Categories: Additional Resources, Costs for Treatment, eNews, Fact Sheet|

Thousands of Americans with end-stage renal disease rely on Medicare for their healthcare needs. However, there are some medical services, such as dental, vision and hearing, where Medicare coverage is lacking. If you are on Medicare and need these services, here is a three-page guide that provides free and lower-cost treatment resources. Check out the guide.

Caregivers for People with Chronic Illness

2020-04-27T21:21:19-04:00May 31st, 2019|Categories: eNews, Fact Sheet, Lifestyle, Mental Health, Stress Management, Support|

By Amy Walters, PhD, Licensed Psychologist If you missed this month's webinar on Psychosocial Factors Affecting Children and Families Living with Chronic Illness, the recording is now available! In addition, below is a handout to accompany the presentation about understanding and helping the caregivers in our life. What We Know About Caregivers Report feeling overwhelmed, frustrated and lonely Report high levels of stress and depressed symptoms Are tired and sleep deprived Have higher rates of illness (2x higher) but seek medical attention less often Often neglect their own self care Experience more relationship conflicts Feel a sense of loss – [...]

Work Those Kidneys Out!

2020-04-27T21:22:05-04:00February 23rd, 2019|Categories: Early Intervention, Fact Sheet, Lifestyle, Physical Health, The Kidney Citizen|

By Collette Powers, MA, RDN, LDN, ACSM EP-C We have all heard it, and we all know it. We have been told from our doctor, a friend or a loved one. Whether it is for controlling high cholesterol, managing weight, reducing blood sugar or keeping our bodies healthy overall, we have all been told at some point we should exercise. But did you know exercise may help protect your kidneys too? Fatigue is a common struggle that many patients with chronic kidney disease (CKD) face. When we are tired, our instinct is to rest. However, over time, that “rest” can [...]

When Your Parent is Sick: Tips for Children on Managing Feelings

2020-04-27T21:22:59-04:00February 11th, 2019|Categories: eNews, Fact Sheet, Mental Health, Pediatric Kidney Disease|

By Elizabeth Lewan, Communications & Grassroots Program Coordinator at the American Psychological Association Having a sick parent can be scary and stressful, especially if there are long hospital stays or physically intense treatments. Having a parent diagnosed with a serious health condition, like kidney disease, can seem especially frightening if you don’t know how it will affect your family. It is estimated that one in seven adults have chronic kidney disease.1 Your parents, doctors and family members can help you get through this tough time. Here are some tips to help you manage your feelings: Prepare for change. You may notice [...]

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