Coping with Chronic Illness During COVID-19: How to Live Well in the Context of Stress

2020-09-10T13:31:55-04:00September 9th, 2020|Categories: Additional Resources, eNews, Fact Sheet, Mental Health, Stress Management|Tags: |

By Elizabeth Steinberg Christofferson, PhD An increasingly vital aspect of the COVID-19 pandemic is how the pandemic impacts our mental health, overall well-being, and how we cope with the pandemic, especially as it continues on for a longer period than we may have anticipated or hoped. This article provides psychoeducation on the connection between stress, chronic illness, and COVID-19, tips for managing anxiety related to these stressors, and resources for further support. Stress During COVID-19 and Symptoms to Look Out for COVID-19 adds to already present stress that impacts patients and families on many levels in terms of their medical and [...]

Supporting Your Health and Wellbeing Before, During, and After Kidney Transplant

2020-10-07T22:21:00-04:00September 3rd, 2020|Categories: Additional Resources, Fact Sheet, Kidney Transplant, Lifestyle, Mental Health, Physical Health, Stress Management, Support, The Kidney Citizen|Tags: |

By Elizabeth Steinberg Christofferson, PhD and Leah Grande, MA Preparing for and receiving a kidney transplant, especially during the COVID-19 pandemic, can be an uncertain and overwhelming process. This article discusses tips to promote positive mental and physical health for yourself or your loved ones. Preparing for a Transplant There are many different emotions associated with deciding to go on the transplant list, and all of these feelings are normal and valid! You may feel excited about the potential for improved health and energy, fewer restrictions on what you can eat and drink (although you still want to eat a [...]

Are You Scared or Anxious about COVID-19?

2020-09-10T17:16:07-04:00June 2nd, 2020|Categories: eNews, Lifestyle, Mental Health, Support|Tags: |

Updated September 10, 2020 We are living in a time of uncertainty with the COVID-19 pandemic, which can lead to stress, fear, depression, and anxiety. We may feel overwhelmed at times and bored at other times. We may be at a loss for how to cope with social distancing, not seeing friends and family, and the possibility of getting sick. If you are a dialysis patient, receiving treatment either in-center or at home, your facility social worker is a great resource for you. Or, if you are a transplant patient, you can talk to your transplant social worker for support. [...]

Beyond Sanitizing and Social Distancing–A Healthy Circadian Rhythm May Keep You Sane and Increase Resilience to Fight COVID-19

2020-04-27T21:20:24-04:00April 20th, 2020|Categories: eNews, Lifestyle, Mental Health, Physical Health|Tags: |

By Satchin Panda, University of California San Diego Social distancing and washing hands have become the frontline in the fight against COVID-19, but there is another powerfully protective resource immediately available to all: your circadian rhythm. I head a lab that researches circadian rhythms, the daily cycles of bodily functions that form the foundation of good health. These body clocks, found in nearly every organ of the body and part of the brain, are central and vital to a properly functioning immune system. A synchronized circadian rhythm in the lungs, heart, kidney and brain ensures that the processes in our body [...]

Survey: Seeking Advice from Parents of Children with Kidney Disease

2020-04-27T21:20:26-04:00January 25th, 2020|Categories: eNews, Hemodialysis, Medication, Mental Health, Pediatric Kidney Disease|

The DPC Education Center is developing an online program to serve as a resource for parents of children with kidney disease. In order for this program to be successful, we need the guidance of parents willing to share tips and stories about how they helped their child thrive while living with this condition and juggling life's multiple demands. Feedback is needed in the areas of treatment, medication and mental health. If you are a parent of a child with kidney disease and would like to help us with this project, please click this link (or answer the questions in the box [...]

There’s a Grant for That!

2020-04-27T21:20:47-04:00January 1st, 2020|Categories: Additional Resources, Costs for Treatment, Employment, Humor and Laughter, Lifestyle, Mental Health, Music, Physical Health, Webinar|

Do you have an idea to help others living with kidney disease? Are you interested in going back to school or work? There’s a grant for that. If you’ve never applied for a grant before, don’t worry. With resources to help guide you, it doesn’t have to be overwhelming. The End Stage Renal Disease National Coordinating Center (ESRD NCC) Patient Grant Library has what you need to help find the grant that’s right for you. It also offers links to sources for writing a proposal, creating a budget and submitting an application.

8 Things About Living with A Chronic Disease That Others May Not Understand

2020-04-27T21:21:17-04:00August 27th, 2019|Categories: eNews, Lifestyle, Mental Health, Physical Health, Stress Management|

"If you see us 'enjoying' ourselves, it doesn’t mean we aren’t sick." This is one of a handful of ideas shared by a woman who has lived with a chronic illness for the past 12 years. She decided to create a blog to share her experience and spread awareness about others that may be going through something similar. If there are friends or family in your life that are having trouble relating to what you are going through, it may be helpful to share this article with them. Or perhaps it will inspire you to put your thoughts on paper and [...]

Caregivers for People with Chronic Illness

2020-04-27T21:21:19-04:00May 31st, 2019|Categories: eNews, Fact Sheet, Lifestyle, Mental Health, Stress Management, Support|

By Amy Walters, PhD, Licensed Psychologist If you missed this month's webinar on Psychosocial Factors Affecting Children and Families Living with Chronic Illness, the recording is now available! In addition, below is a handout to accompany the presentation about understanding and helping the caregivers in our life. What We Know About Caregivers Report feeling overwhelmed, frustrated and lonely Report high levels of stress and depressed symptoms Are tired and sleep deprived Have higher rates of illness (2x higher) but seek medical attention less often Often neglect their own self care Experience more relationship conflicts Feel a sense of loss – [...]

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