With a million things all going on at once in our lives – work, family, friends, school, health, news, etc., it’s hard to think about focusing on just a few things at a time, let alone just one. However, it is possible to train yourself to focus in just on what you are thinking or how you are feeling in the present moment (without judgement); this is mindfulness. While not a new concept, mindfulness has been gaining more attention in today’s society as a way to increase awareness between the mind and body and to help improve concentration. Additionally, it also [...]
The DPC Education Center is proud to announce a new free course, in partnership with the American Psychological Association, for parents and caregivers of children living with kidney disease. It explores the changes that happen within families due to a chronic illness and offers tips to help your family cope and thrive. Check out the Course
At the end of last year, dialysis patients were invited to submit their questions about real-life issues during COVID-19. In this first episode of the new podcast, The Elephant in the Room, experts respond to patients’ letters, including Dale Lupu from George Washington School of Nursing, Liz Anderson, a long-time social worker (both of whom were presenters for the Ed Center’s January 2021 webinar), and a kidney patient with “lived experience” John Brandon Bayton, Jr. You can listen to the first episode of the podcast on Buzzsprout here: https://www.buzzsprout.com/1642372/7476073-episode-1-fear-uncertainty-during-covid-19
In March we will be launching our first Patient Support Group meeting by telephone. Having a support group has been one of our goals for years and we are happy to announce it is now a reality. We chose to have the group meet by phone instead of online or in a Zoom meeting because we think most everyone has a phone. And we want the support group to be available to all patients at any stage of kidney disease and to their families. On the second Tuesday of each month, at 3:00 pm Eastern, you can call and join in [...]
By Jewel Edwards-Ashman I started the year 2020 anticipating that I’d enter kidney failure and have to undergo my second kidney transplant. But I didn’t expect to start doing home dialysis and eventually have transplant surgery in the middle of a pandemic. Transplant surgery in ordinary circumstances comes with a high level of stress and anxiety. Having a kidney transplant during a public health crisis only exacerbated those feelings for me. To reduce my stress and manage my emotions, here are three things I did: I prioritized self-care. Most Americans, even those who aren’t living with chronic illness, have been experiencing [...]
If the global pandemic is starting to negatively impact your mental health, there is a resource that can help you better understand and cope with the feelings you are experiencing. This toolkit includes suggestions for: increasing public awareness, building community capacity, using telemedicine and how to stay ahead of the potential emerging issues. Check out the toolkit.
By Elizabeth Steinberg Christofferson, PhD An increasingly vital aspect of the COVID-19 pandemic is how the pandemic impacts our mental health, overall well-being, and how we cope with the pandemic, especially as it continues on for a longer period than we may have anticipated or hoped. This article provides psychoeducation on the connection between stress, chronic illness, and COVID-19, tips for managing anxiety related to these stressors, and resources for further support. Stress During COVID-19 and Symptoms to Look Out for COVID-19 adds to already present stress that impacts patients and families on many levels in terms of their medical and [...]
By Elizabeth Steinberg Christofferson, PhD and Leah Grande, MA Preparing for and receiving a kidney transplant, especially during the COVID-19 pandemic, can be an uncertain and overwhelming process. This article discusses tips to promote positive mental and physical health for yourself or your loved ones. Preparing for a Transplant There are many different emotions associated with deciding to go on the transplant list, and all of these feelings are normal and valid! You may feel excited about the potential for improved health and energy, fewer restrictions on what you can eat and drink (although you still want to eat a [...]
During this webinar, Dr. Christofferson will offer advice on how to deal with feelings of fear, isolation, anxiety and stress during the coronavirus outbreak.
By Rachel Fintzy Woods, MA, MFT So many aspects of life are beyond our control. When the challenges of managing an illness such as chronic kidney disease are added to our plate, we can feel overwhelmed. Emotions such as anger, confusion, fear and sadness are common and natural, especially at the outset of our journey with illness. It can seem as if our world has been turned upside down. Yet we do have some say in how we deal with the cards we’ve been dealt, including our medical condition and life itself. We alone are responsible for our actions and our [...]