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DPC’s 2023 Advocacy Day

2024-04-26T15:39:19-04:00April 26th, 2024|Categories: Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, The Kidney Citizen|

Megan Hashbarger, DPC Vice President of Government Relations In October 2023, DPC held its’ annual Advocacy Day in Washington, D.C. This year, we were able to bring over 50 patients to D.C. from 23 different states. Unfortunately, due to Covid complications and for the best safety of our patients, we did end up having to make their Hill meetings virtual. Despite this, we were still able to meet with almost 60 Congressional offices about issues facing dialysis patients such as the need for access to Medigap and private insurance. We were also able to host a day of [...]

A Look at Home Hemodialysis

2024-03-28T20:57:18-04:00August 3rd, 2023|Categories: Dialysis, eNews, Hemodialysis, Home Hemodialysis, Peritoneal Dialysis, Quality of Life, Treatment|

Summary by V. Scantlebury, MD, FACS Home dialysis modalities, which include home hemodialysis (HHD) and peritoneal dialysis (PD), offer several benefits for patients with end-stage kidney disease (ESKD). Home dialysis is associated with improvements in blood pressure, less issues with mineral metabolism, better sleep quality and improvement of left heart enlargement. It also allows patients the flexibility of adjusting their own dialysis schedule with more time and less cost of traveling to the dialysis center. However, despite these advantages, only 2% of all dialysis patients in the d U. S.  and 3-6% in Canada are on HHD.  The authors from a [...]

Ask the Doctor

2024-03-28T20:57:29-04:00June 14th, 2023|Categories: Costs for Treatment, Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Medication, The Kidney Citizen|

Velma Scantlebury, MD, DPC Education Center Health Care Consultant 1. Four hours is too long for me to sit in dialysis. Do I have to attend every treatment? Answer: Think of dialysis as being the only way to get the toxins out of your body from the food that you consume everyday - three times a day. When you lose kidney function and are on dialysis, you are usually then only cleansing your body every other day. Those toxins will build up and can cause your body to deteriorate over time. Missing dialysis is harmful to your body. [...]

My Experience as a Kidney Patient in CKD, Dialysis, and Transplant

2024-03-28T20:58:16-04:00April 25th, 2022|Categories: Diagnosis of Kidney Disease, Dialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Stages of Kidney Disease, The Kidney Citizen|

By Orlando A. Torres After a 30-year battle with chronic kidney disease (CKD), in 2016 I had Stage Five kidney failure. This was the end of a three-decade battle which took countless hours of treatment. For years, I had been followed medically for CKD, having a special test done monthly and eating a special diet. As a CKD patient, my condition affected other organs in my body. The number of regular activities I could do also declined, but I never quit and refused to accept those limitations. I never let CKD limit what I did. I think it is [...]

Travel Lovers, Don’t Let Dialysis Slow You Down

2024-03-28T20:58:46-04:00December 17th, 2021|Categories: Home Hemodialysis, Peritoneal Dialysis, Quality of Life, The Kidney Citizen, Treatment|

By Vanessa Evans, Sr. Manager, Patient Communities and Advocacy at Fresenius Medical Care North America and DPC Board Member Brenda and Bernie Alvey are the consummate camper travelers, crisscrossing the United States and taking in sights from the St. Louis Arch to the Grand Canyon. But their camper has a few unusual features, including two recliners, extra outlets, and a homemade stand to accommodate Brenda’s portable home hemodialysis equipment. The Alveys have always loved traveling, but they thought their trips had come to an end when Brenda was diagnosed with Membranoproliferative Glomerulonephritis (MPGN), an autoimmune disease that destroys kidney [...]

One Step Closer to a Wearable Artificial Kidney

2024-03-28T20:59:02-04:00August 11th, 2021|Categories: Dialysis, eNews, Home Hemodialysis|

For the past 20 years, Victor Gura, MD, FASN, an associate clinical professor of medicine at the Geffen School of Medicine at UCLA, has been working on a wearable artificial kidney, or WAK. Gura has been through multiple iterations - from prototype 1.0, which weighed over 200 pounds, to prototype 2.0, which weighed 11 pounds and was tested in clinical trials in Italy, London, and Seattle, to the latest version, WAK 3.0. Weighing in at just 2 pounds and powered by a rechargeable battery, WAK 3.0 was issued patent number 10,993,183 for a combination wearable and stationary dialysis system. The description [...]

There Is No Place Like Home

2024-03-28T20:59:12-04:00April 19th, 2021|Categories: Home Hemodialysis, Peritoneal Dialysis, The Kidney Citizen|

By Shaminder Gupta, MD, Nephrologist End Stage Renal Disease (ESRD) is a life changing diagnosis and impacts both the patient and the family. While waiting for renal transplantation, renal replacement therapy (RRT) is required to sustain life. RRT, also known as dialysis, can be provided either in-center or at home. Home therapies can either be via peritoneum (PD) or via fistula (HHD). Patients are concerned about their own abilities to provide this life sustaining therapy on their own. This is natural and should be anticipated as a barrier. Most of us, including medical professionals, would also share these apprehensions. Success at [...]

Participating in a Clinical Trial

2024-03-28T20:59:56-04:00August 21st, 2020|Categories: Additional Resources, Early Intervention, eNews, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Treatment, Webinar|

New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or product before it becomes available on the market. This phase of research is called a clinical trial or a clinical research project. People can volunteer to be part of a clinical trial if they meet the specific requirements for the study. You might consider participating in the research process for many reasons including if it has a personal meaning for you or if you want to [...]

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