By Orlando A. Torres After a 30-year battle with chronic kidney disease (CKD), in 2016 I had Stage Five kidney failure. This was the end of a three-decade battle which took countless hours of treatment. For years, I had been followed medically for CKD, having a special test done monthly and eating a special diet. As a CKD patient, my condition affected other organs in my body. The number of regular activities I could do also declined, but I never quit and refused to accept those limitations. I never let CKD limit what I did. I think it is [...]
By Vanessa Evans, Sr. Manager, Patient Communities and Advocacy at Fresenius Medical Care North America and DPC Board Member Brenda and Bernie Alvey are the consummate camper travelers, crisscrossing the United States and taking in sights from the St. Louis Arch to the Grand Canyon. But their camper has a few unusual features, including two recliners, extra outlets, and a homemade stand to accommodate Brenda’s portable home hemodialysis equipment. The Alveys have always loved traveling, but they thought their trips had come to an end when Brenda was diagnosed with Membranoproliferative Glomerulonephritis (MPGN), an autoimmune disease that destroys kidney [...]
For the past 20 years, Victor Gura, MD, FASN, an associate clinical professor of medicine at the Geffen School of Medicine at UCLA, has been working on a wearable artificial kidney, or WAK. Gura has been through multiple iterations - from prototype 1.0, which weighed over 200 pounds, to prototype 2.0, which weighed 11 pounds and was tested in clinical trials in Italy, London, and Seattle, to the latest version, WAK 3.0. Weighing in at just 2 pounds and powered by a rechargeable battery, WAK 3.0 was issued patent number 10,993,183 for a combination wearable and stationary dialysis system. The description [...]
By Shaminder Gupta, MD, Nephrologist End Stage Renal Disease (ESRD) is a life changing diagnosis and impacts both the patient and the family. While waiting for renal transplantation, renal replacement therapy (RRT) is required to sustain life. RRT, also known as dialysis, can be provided either in-center or at home. Home therapies can either be via peritoneum (PD) or via fistula (HHD). Patients are concerned about their own abilities to provide this life sustaining therapy on their own. This is natural and should be anticipated as a barrier. Most of us, including medical professionals, would also share these apprehensions. Success at [...]
New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or product before it becomes available on the market. This phase of research is called a clinical trial or a clinical research project. People can volunteer to be part of a clinical trial if they meet the specific requirements for the study. You might consider participating in the research process for many reasons including if it has a personal meaning for you or if you want to [...]
In this presentation you will learn about: 1) the different types of access for dialysis, 2) how to examine and monitor your access and 3) why it is important to avoid catheters.
During this webinar you will learn the latest on: 1) What kidney patients need to do (dialysis & transplant), 2) What dialysis facilities are doing and 3) What we can learn from New York’s COVID-19 experience.
Learn about COVID-19 and what you and your family can do to protect yourselves. You will also learn about the CDC’s guidance for dialysis facilities and how your facility staff is working to prevent the spread of infection. Presented by: Alan Kliger, MD, with the American Society of Nephrology (ASN) and Shannon Novosad, MD with the Centers for Disease Control and Prevention (CDC) About the Presenters: Shannon Novosad, MD, MPH is a Medical Officer with the Dialysis Safety Team in the Division of Healthcare Quality Promotion (DHQP) at the Centers for Disease Control and Prevention. Dr. Novosad received her medical degree from [...]
These booklets were developed for tweens and teens who learn their kidneys are not working and they will need dialysis or a transplant. The booklets provide a brief overview of coping with kidney disease, being part of their health care team, the importance of diet, taking medication, and treatment methods. They also touch on feelings related to having a chronic illness, family and friends, and being a teen. The development of both booklets included input from kids currently on dialysis, parents, adults who had kidney disease as children, and nephrologists. Although both booklets are similar, one focuses on teens who learn [...]
During this webinar you will learn: 1) how kidneys work, 2) about chronic kidney disease stages and symptoms, 3) how to slow progression, 4) end stage options for treatment and 5) about accesses. About the Presenter: Joanne Smith is a DPC Education Center Advisory Council member and has had multiple positions in the dialysis field since receiving her RN degree, ranging from Staff RN to Director of Nursing to Home Therapies Manager. She is currently a Kidney Care Advocate responsible for educating CKD and ESRD patients on kidney disease and options for treatment, focusing specifically on home dialysis. Unlike in other nursing [...]