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The Making of An Advocate

2023-06-14T14:17:06-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Medication, Mental Health, Support, The Kidney Citizen, Treatment|

Gene Blankenship, DPC Board of Directors Thinking about Life Sitting in my recliner watching the leaves fall like big fat orange snowflakes, I see the trees begin to change colors. My immediate first thought is “How many more seasons of change will I see? Is this my last fall”? Polycystic Kidney Disease (PKD) is a constant passenger in my life. Anytime you have a passenger with you for long periods of time, you will go through events together that stamp your life. For example, as a child, I watched Eugene Taylor Jr., my dad, hook himself up every [...]

8 Ways to Be a Safe Patient

2023-06-14T14:08:23-04:00June 14th, 2023|Categories: Immunizations, Medication, Physical Health, Resources, Staying Healthy, The Kidney Citizen|

When you have surgery, receive dialysis, or visit your doctor, you deserve safe care. Everyone plays a role in patient safety and quality health care. CDC and its partners provide expertise, data, and programs for safe health care to support public health, healthcare workers, patients, and caregivers. How Can I Be a Safe Patient? Speak up. Talk to your healthcare provider about any questions or worries. Ask what they’re doing to protect you from infections. Keep hands clean. Make sure everyone, including friends and family, cleans their hands before touching you. If you don’t see your healthcare providers clean their [...]

Ask the Doctor

2023-06-18T15:44:42-04:00June 14th, 2023|Categories: Costs for Treatment, Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Medication, The Kidney Citizen|

Velma Scantlebury, MD, DPC Education Center Health Care Consultant 1. Four hours is too long for me to sit in dialysis. Do I have to attend every treatment? Answer: Think of dialysis as being the only way to get the toxins out of your body from the food that you consume everyday - three times a day. When you lose kidney function and are on dialysis, you are usually then only cleansing your body every other day. Those toxins will build up and can cause your body to deteriorate over time. Missing dialysis is harmful to your body. [...]

A Step Forward: Inhibiting APOL1 (Gene) to Treat Kidney Disease

2023-06-07T16:45:09-04:00June 5th, 2023|Categories: Early Intervention, eNews, Medication|

By V. Scantlebury, MD, FACS, DPC Education Center Healthcare Consultant A recent article in the New England Journal of Medicine by Egbuna and colleagues (1) reported that in a small study, patients with focal segmental glomerulosclerosis (FSGS) who are homozygous for the variants in the gene encoding apolipoprotein L1 (APOL1) when treated with the drug Inaxaplin, (which inhibits APOL1 function) demonstrated significantly reduced protein excretion. Inaxaplin is the first investigational therapy that is directed at treating  APOL1-mediated kidney disease. Why is this significant? There is a disproportionate burden of chronic kidney disease in persons of African ancestry. FSGS and other [...]

ADA Advises New BP, Lipid Targets for People With Diabetes

2023-06-06T13:21:02-04:00April 5th, 2023|Categories: eNews, Medication, Staying Healthy|

By V. Scantlebury, MD, FACS, DPC Education Center Healthcare Consultant The American Diabetes Association has recently made more aggressive changes to the Standard of Care in Diabetes -2023. Published in December 2022 as a supplement in Diabetes Care, this document is considered the gold standard for the care of over 100 million Americans living with diabetes and pre-diabetes. Below is a summary of some of the recommendations: A blood pressure target for people with diabetes of less than 130/80 mmHg, if it can be reached safely. Blood pressure targets should be individualized through a shared decision-making process that addresses the [...]

Value-Based Health Care & Medicare – Weighing the Pros and Cons

2022-07-07T10:02:30-04:00June 14th, 2022|Categories: Costs for Treatment, eNews, Medication, Treatment|

Value-based care has become a hot topic in the health care industry. The model of paying providers bonuses for better patient health outcomes and penalizing them for poor outcomes may seem like a great idea and one that would encourage a more holistic approach to patient care. Some health care experts have concerns about what this means for people on Medicare Advantage (MA), though; specifically, there may be more focus on costs and less focus on quality. Janice Horowitz, author of Health Your Self, has three primary concerns when it comes to value-based care in MA plans: Restrictions on where you [...]

Medicare Surprise: Drug Plan Prices Touted During Open Enrollment Can Rise Within a Month

2022-06-06T12:46:41-04:00June 6th, 2022|Categories: Costs for Treatment, eNews, Medication|

By Susan Jaffe May 3, 2022 Something strange happened between the time Linda Griffith signed up for a new Medicare prescription drug plan during last fall’s enrollment period and when she tried to fill her first prescription in January. She picked a Humana drug plan for its low prices, with help from her longtime insurance agent and Medicare’s Plan Finder, an online pricing tool for comparing a dizzying array of options. But instead of the $70.09 she expected to pay for her dextroamphetamine, used to treat attention-deficit/hyperactivity disorder, her pharmacist told her she owed $275.90. “I didn’t pick it up because [...]

Depression and Dialysis – A Look at Two Potential Treatments

2022-11-21T17:11:41-05:00January 3rd, 2022|Categories: Dialysis, eNews, Medication, Mental Health, The Kidney Citizen|

It is not uncommon for patients receiving dialysis treatment to have depression, though it can be hard to distinguish the symptoms of depression from those of kidney failure. Trouble sleeping, poor appetite, headaches, and fatigue are all symptoms of both conditions, leaving dialysis patients to wonder not only if they have depression, but if treatment would help to improve the symptoms they are feeling. Talking to your kidney care team is a great first step to figuring out who you should talk to about whether you have depression, along with figuring out potential treatment options. Though there are many ways [...]

Sifting Through the Many Options for Integrative Chronic Pain Treatment

2021-10-04T11:54:14-04:00October 8th, 2021|Categories: eNews, Lifestyle, Medication, Mental Health, News & Events, Physical Health, Quality of Life, Staying Healthy, Stress Management|

For the more than 50 million Americans who experience chronic pain every day, trying to create a treatment plan can be an exhausting battle. Due to the complex nature and differences in individuals’ pain, it is usually most effect to have an integrated or multidisciplinary treatment plan, which is the use of different methods of treatments together in order to manage/reduce pain. Although there are a wide range of integrated treatments that exist, multidisciplinary specialists are hard to come by, causing most of the research to fall onto the patient. While it is still important to work closely with your doctor [...]

Treatment of Hyperkalemia in Dialysis Patients

2020-05-12T15:07:13-04:00May 12th, 2020|Categories: eNews, Medication, What Is Kidney Disease|

Hyperkalemia is a potentially life-threatening electrolyte disorder and is more often seen in people who have End Stage Kidney Disease than the general public. For people WITHOUT kidney failure, potassium, an important mineral within the body, helps regulate fluid balance, muscle contractions and nerve signals. When people eat more potassium than their body needs, the kidneys filter and excrete out any extra through the urine. However, when the kidneys do not work, potassium can build up in the blood and cause hyperkalemia/high potassium. You can learn more about foods high in potassium and hyperkalemia in Issue 10 of our patient newsletter, [...]

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