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Post-Election Recap

November 16th, 2022|

Presented by Vanessa Evans and Lacye Trevino on November 17, 2022 at 2pm EST. Learn tips and trick for storing your supplies, questions should you ask your team, and the importance of routine and organization and how to help yourself succeed.

Recipe of the Month: Cauliflower Potato Salad

November 9th, 2022|

Get a brand new, kidney-friendly recipe* delivered to your inbox each month, courtesy of Jessianna Saville, MS, RDN, CSR, LD, CLT, a member of the Ed Center Advisory Council and Founder & CEO of the Kidney Nutrition Institute. November’s recipe would be a great addition  to a Thanksgiving spread: Cauliflower Potato Salad Ingredients: Makes 6 servings 1 large russet potato peeled, cubed into 1/2" cubes (about 1 Cup) 1 medium head of cauliflower cut into small florets (about 4 1/2 Cups) 3/4 cup vegan mayonnaise 1 dill pickle chopped (about 1/2 cup) 2 tablespoons apple cider vinegar 1 tablespoon Dijon mustard 2 tablespoons dried dill or 4 tablespoons fresh dill chopped A pinch of pepper to taste 1/4 red onion thinly sliced or diced 2 celery stalks chopped 2 stalks green onion chopped Optional: a sprinkle [...]

Say What? Hearing Aids Available Over-the-Counter for as Low as $199, and Without a Prescription

November 9th, 2022|

By Phil Galewitz October 17, 2022 Starting Monday, consumers will be able to buy hearing aids directly off store shelves and at dramatically lower prices as a 2017 federal law finally takes effect. Where for decades it cost thousands of dollars to get a device that could be purchased only with a prescription from an audiologist or other hearing professional, now a new category of over-the-counter aids are selling for hundreds of dollars. Walmart says it will sell a hearing aid for as little as $199. The over-the-counter aids are intended for adults with mild to moderate hearing loss — a market of tens of millions of people, many of whom have until now avoided [...]

The Case for Personalized Kidney Screening for People with Type 1 Diabetes

November 3rd, 2022|

A new analysis by the Epidemiology of Diabetes Interventions and Complications study group (funded by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the National Institutes of Health) makes a strong case for taking a more personalized approach to screening people with Type 1 Diabetes (T1D) for kidney disease. New findings suggest that urinary albumin excretion rate (AER) could be personalized to individuals with T1D to decrease costs and increase the rate of early detection. People with T1D have about a 50% risk of developing chronic kidney disease (CKD) over their lifetime; if individuals who are at a lower risk could be tested for AER less frequently than the current [...]

Building Legacy Through Advocacy

October 27th, 2022|

By Yolonda Brisbane, DPC Grassroots Manager As the Grassroots Manager for Dialysis Patients Citizens (DPC) Yolonda recruits and coaches new DPC patient advocates, helps plan and execute our Annual Advocacy Day, and hosts Patient Ambassador training calls. She came to DPC having led youth ambassador programs for the New York State Office of Children and Family Services and the Boys and Girls Clubs of America. For her, elevating the voices of dialysis patients is personal work. "When I was fourteen, I lost my father to kidney failure when he refused to go on dialysis. I had no clue about what dialysis was. Years later, my mother had to go on dialysis. My brother [...]

Supreme Court Erases Kidney Patients’ Insurance Protections

October 27th, 2022|

By Megan Hashbarger, DPC Vice President of Government Relations and Jackson Williams, DPC Vice President of Public Policy A U.S. Supreme Court ruling has nullified the law that protects dialysis patients from discrimination by insurers, threatening the system of financing kidney care that has stood for 40 years. The Court ruled that employer health plans may limit dialysis benefits. For four decades, employers understood the law as prohibiting limitations that only applied to dialysis. Some health benefit consultants encouraged a few small employers to disregard the law by paying no more than Medicare rates for dialysis. DaVita sued them, and one of the cases was appealed to the Supreme Court. The [...]

The Social Worker – Patient Relationship: One Social Worker’s Reflections

October 27th, 2022|

By Jean Carosella, LCSW In April 2021, I retired from dialysis social work after working in the same clinic for almost 44 years. I had actually planned to retire a year earlier but the pandemic played a major role in my staying on another year. I just couldn’t leave knowing the stress and worry that COVID was creating for everyone in the clinic, patients and staff alike. But now a year into retirement, I can see one positive outcome for me as a result of the pandemic. COVID forced me to slow down and take the time to reflect on what my role as a dialysis social worker has meant to me. I [...]

Anemia in People with Chronic Kidney Disease

October 27th, 2022|

By Jay Wish, MD Anemia is defined as a lower-than-normal level of hemoglobin in the blood. Hemoglobin is the protein in red blood cells that carries oxygen to all tissues and allows those tissues to carry on their functions, including the creation of building blocks for energy. Hemoglobin is what makes red blood cells red, and this explains why people with low hemoglobin levels may appear pale. Hemoglobin levels less than 13 in men and less than 12 in women is considered anemia. Anemia is common in people with chronic kidney disease (CKD) and may have many causes. It is estimated that 15.4% of people with CKD (stages 1-5) have anemia, compared to [...]

Navigating a Renal Diet: Decoding the Mystery

October 27th, 2022|

By Fanny Sung Whelan, MS, RDN, LDN How to navigate a renal diet based on your kidneys’ needs No matter what stage of kidney disease you’re in, all of the different diet recommendations can cause your head to spin. Pair it with other conditions you may have, and you’ve got a real recipe for confusion! So how can you sort out all of the differences in what you can and can’t eat? Here we are going to outline the diet guidelines for the different stages of kidney disease. Disclaimer: it is important to discuss any diet changes with your health care team before you proceed. Everyone’s needs will differ based on the individual. [...]

Conquering Dialysis Fatigue

October 27th, 2022|

By Patricia McCarley, RN, MSN, ACNP and Felicia Speed, PhD, LMSW Patients on dialysis may complain of an intense feeling of tiredness or fatigue with 60-97% of patients finding it as important a health outcome as mobility or pain. While it may be difficult to identify the exact cause, patients with chronic kidney disease (CKD) or end stage renal disease (ESRD) have several factors contributing to fatigue, including uremia, an increased level of waste products in the blood, and anemia, a decrease in red blood cell production. Anemia is a condition in which your body does not produce enough red blood cells to carry oxygen throughout the body. Fatigue is one [...]

Advanced Care Planning: Turning “What If?” Into “Here’s How”

October 27th, 2022|

By David L. Mahoney, MD, FASN, FASDIN A number of years ago, I attended a lecture on Advance Care Planning. The speaker was a very engaging man who had recently dealt with end-of-life issues for a loved one. There were about 150 people in attendance at the lecture, which began with a series of questions: “How many of you have life insurance?” Virtually every hand in the room went up. “How many of you have a will?” About three quarters of the hands were raised. “How many of you have a living will?” About 10% of hands were raised in response to this question. I think that this illustrates the fact that we [...]

Telehealth with a Behavioral Health Professional: What to Know Before You Start

October 27th, 2022|

By Kirsten Weir If you or a family member is managing chronic kidney disease, you’re probably thinking a lot about physical health—the health of the kidney and the rest of the body. Caring for your behavioral health is just as important. And with telehealth options that let you see a behavioral health professional from your home, it’s more convenient than ever. “The increased availability and acceptance of telehealth might be one of the few positive changes to come out of the [COVID-19] pandemic,” says Amy Walters, PhD, a clinical health psychologist and the director of Behavioral Health Services for St. Luke's Humphreys Diabetes Center. There are very good reasons to establish care with a [...]

Digital Health Records – You can now access them, but not easily

October 7th, 2022|

On October 6, 2022, new federal rules took effect that require health care organizations to give patients unrestricted access to their digital health records. These rules that were passed under the 21st Century Cares Act are designed to empower patients by not only giving them the ability to access their own data, but also decide who to share that data with, which was previously not the case. This means that patients can better understand their care, shop for services, and engage in their own research. It also removes roadblocks such as fees and delays that were the norm for patients requesting their medical records before, despite HIPAA requirements providers turn over records when patients ask [...]

Recipe of the Month: Spider Cheeseball

October 1st, 2022|

Get a brand new, kidney-friendly recipe* delivered to your inbox each month, courtesy of Jessianna Saville, MS, RDN, CSR, LD, CLT, a member of the Ed Center Advisory Council and Founder & CEO of the Kidney Nutrition Institute. October’s recipe is perfect for a Halloween get together, or just anytime you’re craving some cheese (disguised as a spooky spider or not!): Spider Cheeseball Ingredients: Makes 16 servings 1 8 oz package, softened cream cheese (Check your packages carefully. Lowfat is not always the lowest in sodium.) 2 oz feta cheese crumbled 2 tablespoons olive oil 2 cloves garlic minced (If you love garlic, we actually did 3 garlic cloves and it tasted fantastic.) 1 teaspoon dried oregano 2 teaspoons dried dill weed 1/2 teaspoon cracked black pepper 5 green onions finely diced [...]

How to be a Successful Home Patient

September 21st, 2022|

Presented by Vanessa Evans and Lacye Trevino on November 17, 2022 at 2pm EST. Learn tips and trick for storing your supplies, questions should you ask your team, and the importance of routine and organization and how to help yourself succeed.

Organ Transplants Are Up, but the Agency in Charge Is Under Fire

September 20th, 2022|

By Blake Farmer, Nashville Public Radio September 7, 2022 For the past decade, Precious McCowan’s life has revolved around organ transplants. She’s a doctoral candidate studying human behavior in Dallas who has survived two kidney transplants. And in the midst of her end-stage renal disease, her 2-year-old son died. She chose to donate his organs in hopes they would save a life. Now her kidney function is failing again, and she’s facing the possibility of needing a third transplant. But the process of finding that lifesaving organ is rife with problems. Roughly 5,000 patients a year are dying on the waitlist — even as perfectly good donated organs end up in the trash. The agency that oversees donations [...]

New Study Shows Age-Related Kidney Function Differs by Gender

September 8th, 2022|

A study of 1,837 people aged 50-62, which replicated accurate measurements of kidney function in health women and men over time, may partly explain why more women are diagnosed with early CKD and more men develop severe CKD and kidney failure as they age. The baseline mean glomerular filtration rate (GFR) was 90 ml/min/1.73 m.2 for women and 98 ml/min/1.73m.2 for men (P<0.001). However, additional measurements over 11 years of follow-up showed that men experienced a mean decrease in GFR 25% more than women. The study, published in Journal of the American Society of Nephrology (JSN) showed that the relationship between age and GFR was about linear in women, but curvilinear in men, with [...]

Recipe of the Month: Baked Apples with Crumble Topping

September 2nd, 2022|

Welcome to our new article series, Recipe of the Month! Get a brand new, kidney-friendly recipe* delivered to your inbox each month, courtesy of Jessianna Saville, MS, RDN, CSR, LD, CLT, a member of the Ed Center Advisory Council and Founder & CEO of the Kidney Nutrition Institute. For September, we have a great recipe to get you in the mood for autumn: Baked Apples with Crumble Topping Ingredients: Makes 4 servings 3 tablespoons coconut oil cold and firm 2 tablespoons all purpose flour 2 tablespoons brown sugar packed ¼ cup rolled oats ¼ cup chopped walnuts ¼ teaspoon ground cinnamon or up to ½ teaspoon for stronger flavor 1 dash of salt 2 apples A splash of lemon juice Optional topping: sweetened whipped coconut cream Instructions: Preheat the oven to [...]

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