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During this webinar you will learn the latest on: 1) What kidney patients need to do (dialysis & transplant), 2) What dialysis facilities are doing and 3) What we can learn from New York’s COVID-19 experience.
Updated May 6, 2020 Earlier this month the President signed the “Families First Coronavirus Response Act,” which is a bill that will increase funding to several federal programs in response to the COVID-19 viral outbreak. The bill aids Americans in the areas of healthcare (including COVID-19 testing), nutrition, paid sick leave, unemployment, family and medical leave, and more. Below is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying safe. In addition, visit your state department of health website for COVID-19 information that [...]
Irwin Dunsky By Irwin Dunsky I found out my kidneys were disintegrating about seven years ago. They were working about thirty-five percent. I stated watching some of the things I was eating and a year later they were at thirty percent. My doctor told me that soon I would have to get a new kidney if I didn’t watch it. My kidneys kept going down, and four years ago they reached twenty percent functioning. I went to three hospitals to get on a kidney transplant list. They all told me that my heart was a risk factor that they wouldn’t take. My kidneys finally went down to fifteen percent. Then three and a [...]
Learn about COVID-19 and what you and your family can do to protect yourselves. You will also learn about the CDC’s guidance for dialysis facilities and how your facility staff is working to prevent the spread of infection. Presented by: Alan Kliger, MD, with the American Society of Nephrology (ASN) and Shannon Novosad, MD with the Centers for Disease Control and Prevention (CDC) About the Presenters: Shannon Novosad, MD, MPH is a Medical Officer with the Dialysis Safety Team in the Division of Healthcare Quality Promotion (DHQP) at the Centers for Disease Control and Prevention. Dr. Novosad received her medical degree from the University of Alabama at Birmingham (UAB). In 2015, Dr. Novosad came to CDC [...]
Updated 3/26/2020 Coronavirus disease 2019 (abbreviated COVID-19) is a new respiratory virus spreading to the United States. Although the health risk is low in this country at this time, we know that people who have chronic illnesses, weakened immune systems and/or are over the age of 60 could pose an increased risk if they develop the disease. That said, it is not a time to panic, but rather a time to use procedures that help prevent the flu, coronavirus and other infections. Prevention A great prevention tip is to avoid getting or sharing germs that can cause infections. Here are some ways to practice this tip. Wash your hands. It is one of the [...]
These booklets were developed for tweens and teens who learn their kidneys are not working and they will need dialysis or a transplant. The booklets provide a brief overview of coping with kidney disease, being part of their health care team, the importance of diet, taking medication, and treatment methods. They also touch on feelings related to having a chronic illness, family and friends, and being a teen. The development of both booklets included input from kids currently on dialysis, parents, adults who had kidney disease as children, and nephrologists. Although both booklets are similar, one focuses on teens who learn they have kidney disease and the other is for teens who already have cystinosis [...]
DPC Education Center is now offering an online, free-to-use resource center to learn more about chronic pain and effective ways to live with it. In the program, you will explore the concept of pain, learn ways to talk about it, and discover methods of managing pain including medication, alternative medicine, nutrition and exercise, self-management, and laughter and humor. You will also have the opportunity to tell your story and hear from others about their experiences. Check out the Course
There is a resource—developed by patients with kidney disease—that provides an overview of where to get help with medical bills and employment. The types of medical bill tips highlighted include: An overview of Medicare coverage for people with End-Stage Renal Disease Where you may find help in getting supplemental coverage for the 20% Medicare doesn't pay Assistance for special populations (e.g., veterans, children, people with disabilities, etc.) Programs that help cover expenses related to health insurance premiums, living organ donation and medications. Assistance provided by some electric companies for home hemodialysis patients Employment tips featured include where to find help with: Returning to work Beginning a new line [...]
If you worry that you or someone you love will get heart disease or even have a heart attack, it’s understandable. February is American Heart Month, and heart disease is the leading cause of death for men and women in the United States, according to the National Heart, Lung, and Blood Institute (NHLBI). Research shows you can lower your risk, particularly if you team up with family, friends or co-workers. This kind of social support may be the key to your success. “Studies show that having positive, close relationships and feeling connected to others benefits overall health, blood pressure, weight and more,” said NHLBI’s Dr. David Goff, director of cardiovascular sciences. Consider these five tips [...]
Sometimes, having a chronic disease—such as End-Stage Renal Disease—can result in spending the night in the hospital unexpectedly. One tip to make the stay more comfortable is having a pre-packed "go bag". This could be helpful for not only patients being admitted, but also the caregivers that accompany them. To get started, below are some areas to focus on when pre-packing the bag: Comfortable clothes and bedding Entertainment Sleep aids Snacks Copies of important documents and helpful lists Toiletries For more details about specific items to include in these categories, read the full article.
During this webinar the following points will be covered: 1) Learn about the benefits of receiving a kidney from a living donor, 2) Learn how to talk to others about kidney donation, 3) You don’t need to “ask” someone to donate, it’s all about “telling your story” and 4) Join us to develop a plan for a successful living kidney transplant experience.
The DPC Education Center is developing an online program to serve as a resource for parents of children with kidney disease. In order for this program to be successful, we need the guidance of parents willing to share tips and stories about how they helped their child thrive while living with this condition and juggling life's multiple demands. Feedback is needed in the areas of treatment, medication and mental health. If you are a parent of a child with kidney disease and would like to help us with this project, please click this link (or answer the questions in the box below) to fill out the short survey: Create your own user feedback survey
There are more than 37 million people in the US living with Chronic Kidney Disease (CKD) and over 700,000 with End-Stage Renal Disease (ESRD). ESRD patients require multiple dialysis treatments a week in order to stay alive. Many CKD and ESRD patients find it difficult to continue working because of the time consuming treatments and the toll it has on their bodies. If you have kidney disease or ESRD and are not able to continue working, you may file a claim for Social Security benefits. While not guaranteed, these benefits help many patients cover some of their lost wages. Many CKD or ESRD patients use disability benefits to pay for living expenses like food, rent, [...]
This January marks the 19th annual National Mentoring Month, a campaign aimed at expanding quality mentoring opportunities to connect more of our community’s young people with caring adults. There is a powerful mentoring effect demonstrated by research and the experiences of young people who are connected to a mentor in real life. Mentoring is linked to improved academic, social and economic prospects for young people, and that ultimately strengthens our community. Research has shown that when matched through a quality mentoring program, mentors can play a powerful role in providing young people with the tools to make responsible decisions, stay focused and engaged in school, and reduce or avoid risky behavior like skipping school, drug [...]
Do you have an idea to help others living with kidney disease? Are you interested in going back to school or work? There’s a grant for that. If you’ve never applied for a grant before, don’t worry. With resources to help guide you, it doesn’t have to be overwhelming. The End Stage Renal Disease National Coordinating Center (ESRD NCC) Patient Grant Library has what you need to help find the grant that’s right for you. It also offers links to sources for writing a proposal, creating a budget and submitting an application.
En Español By María Eugenia Rodríguez, MS, RD, CSR, LND, Licensed Dietitian Nutritionist You have probably heard about the importance of eating a low sodium diet. The general recommendation for people with kidney disease is to consume less than 2,000 mg of sodium per day. According to statistics from NHANES 2007-2010, the adult man in the United States consumes 4,240 mg of sodium and the adult woman consumes 2,980 mg.1 In some South American countries such as Argentina, Brazil and Costa Rica sodium intakes have been reported between 4,400 and 4,700 mg per day.2 One of the sources of sodium in our diet are the condiments we use for [...]
English Version Por María Eugenia Rodríguez, MS, RD, CSR, LND, Nutricionista Dietista Licenciada Probablemente, ha escuchado sobre la importancia de llevar una alimentación baja en sodio. La recomendación general para personas con enfermedad renal es consumir menos de 2,000 mg de sodio al día. Según estadísticas de NHANES 2007-2010, el hombre adulto en Estados Unidos consume 4,240 mg de sodio y la mujer adulta consume 2,980 mg.1 En algunos países de Sur América como Argentina, Brasil y Costa Rica se han reportado ingestas de sodio entre 4,400 y 4,700 mg al día.2 Una de las fuentes de sodio en nuestra alimentación son los condimentos que usamos para cocinar. Muchos condimentos comunes [...]
Support the Dialysis Patient Citizens Education Center We want to take this opportunity to say thank you. As you know, it is our mission to reduce the occurrence and delay the progression of kidney disease. We work to accomplish our goals by: developing unique educational programs to empower patients and increasing public awareness of kidney disease. Our organization is led by kidney disease patients for kidney disease patients. We cannot accomplish our critical mission without you. Join in our efforts to improve patient quality of life and delay the occurrence of end-stage renal disease by donating today. For more information about our programs, visit us HERE. Make A Gift From all of us [...]