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My Personal Experience with a Rare Condition

2019-05-10T13:48:13-04:00March 29th, 2019|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, Lifestyle, Physical Health, The Kidney Citizen|Tags: |

By Mark Scirocco, Patient Ambassador I have been on in-center hemodialysis for three years. It was a rough start, as I went through 11 chest catheters in a little over a year. Two of them just fell out while I was sitting at home; the others got clogged. The last one almost killed me, stopping fluid in my upper body and head. My fistula was barely ready when they took that one out and placed a stent in my chest to allow fluid past my upper body. Three months after starting my fistula, I needed a fistulogram to open it up. [...]

Free Monthly Webinars/Conference Calls

2019-05-10T13:12:23-04:00March 21st, 2019|Categories: About DPC Ed Center, Costs for Treatment, Diagnosis of Kidney Disease, Early Intervention, Employment, Home Hemodialysis, Humor and Laughter, Immunizations, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Medication, Mental Health, Music, Nutrition, Pediatric Kidney Disease, Peritoneal Dialysis, Physical Health, Sex and Intimacy, Stages of Kidney Disease, Stress Management, Support, Symptoms, The Kidney Citizen, Webinar, What Causes Kidney Disease|

The DPC Education Center invites people living with chronic kidney disease (CKD), end-stage renal disease (ESRD), their families and professional staff to join us for our monthly webinars. You can also join by phone or view the recordings online at a later time. The webinars are planned for the fourth Thursday of the month at 2 p.m. Eastern time zone, except for November and December when they will be held during the third week of the month. You can download monthly webinar fliers to share with others and/or register for webinars at www.dpcedcenter.org/news-events/education-webinars. Join by phone by calling 1-877- 399-5186 and [...]

Insights from the Dialysis Patient Citizens 2018 Patient Survey: Patients’ Priorities for Quality Measures and New Innovations in ESRD Care

2019-03-18T13:22:49-04:00March 11th, 2019|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, The Kidney Citizen|

By Jackson Williams, Director of Regulatory Affairs and General Counsel, Dialysis Patient Citizens Dialysis Patient Citizens (DPC) thanks everyone who completed its 2018 Patient Survey. It is another way to make your voices heard. We use our patient survey to get your input on current issues and to convey your opinions to policymakers in Washington, DC. This year, our survey included questions on two recent developments in Washington: Medicare’s “Meaningful Measures” Initiative: In early 2018, Medicare officials announced plans to reduce the number of quality measures it uses to hold health care providers accountable. This meant that for dialysis care, the [...]

Home Dialysis: Is It Your Best Treatment Option? – Recording and Slides

2019-02-12T10:24:34-04:00August 23rd, 2018|Categories: eNews, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis|

If you were unable to attend last week's education seminar, the recording is now available! Please see the video below for details. In addition, download the slides. We want to keep getting better. Please help us by sharing your comments and suggestions here: Webinar Review This program helps you: Learn about treatment options Weigh the benefits of more frequent dialysis Develop questions to ask your doctor when choosing your treatment choice Understand the patient's perspective by hearing a patient's dialysis story

RSVP for Thursday’s Webinar – Home Dialysis: Is It Your Best Treatment Option?

2019-02-12T10:25:26-04:00August 10th, 2018|Categories: eNews, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Webinar|

Join us on Thursday, August 16 at 2:00PM Eastern to learn if home dialysis would be an appropriate treatment option for you or your family. This program will help you: Learn about treatment options Weigh the benefits of more frequent dialysis Develop questions to ask your doctor when choosing your treatment choice Understand the patient's perspective by hearing a patient's dialysis story RSVP to attend. This webinar will be presented by: Dr. Michael Kraus, MD, FACP Nephrologist,  Indiana University School of Medicine Associate Chief Medical Officer, NxStage Medical, Inc. Vanessa Evans, Dialysis Patient Patient Advocate Manager, NxStage Medical, Inc. Dialysis patient for 20 [...]

Preparing for National Kidney Month

2019-02-12T10:26:31-04:00February 28th, 2017|Categories: eNews, Hemodialysis, Kidney Transplant|Tags: , |

As Black History month comes to a close, and national kidney month is about to begin, it’s important to think about the relationship between kidney health and African Americans. Kidney disease can affect anyone regardless of age, gender or ethnicity. However, African Americans are disproportionately affected by kidney disease for a variety of reasons including genetics and socio-economics. Compared to other ethnic groups, African Americans have higher rates of diabetes and high blood pressure which are the two leading causes of kidney disease. While most patients may be aware of their diabetes or high blood pressure, many don’t know these conditions [...]

New Tool Available to Help Patients Choose their Treatment

2019-02-12T10:28:19-04:00July 18th, 2016|Categories: eNews, In-Center Hemodialysis, News & Events, Peritoneal Dialysis, What Is Kidney Disease|

We frequently hear from dialysis patients about how they were not adequately informed of their treatment options before having to start treatment. While many patients end up “crashing” into dialysis, those who are diagnosed with Chronic Kidney Disease (CKD) early need to begin educating themselves on their treatment options to be prepared for End Stage Renal Disease (ESRD). There are three avenues of treatment you can choose for renal replacement therapy: hemodialysis, peritoneal dialysis, and kidney transplant.  While it is possible to receive a transplant before needing dialysis, it is still important to know what those dialysis options are in the [...]

In-Center Hemodialysis

2019-02-09T16:27:44-04:00April 11th, 2016|Categories: eNews, Fact Sheet, Hemodialysis|

Currently, in-center hemodialysis is the most utilized form of dialysis treatment for Americans with end stage renal disease. With in-center hemodialysis a patient goes to a dialysis center where a staff of nurses and technicians administer treatment. Generally, in-center hemodialysis occurs three days a week for between three to five hours per session. During dialysis treatment the blood is removed from the body via an access (fistula, graft or catheter), filtered through an artificial kidney (dialyzer) and returned back to the body through the access. This blood is filtered many times during treatment to remove waste and maintain the chemical balance [...]

Peritoneal Dialysis

2019-02-12T10:29:14-04:00April 11th, 2016|Categories: eNews, Fact Sheet, Peritoneal Dialysis|

One advantage of peritoneal dialysis (PD) is that people who choose PD can do it while they sleep using a cycler. The cycler is a machine that fills and drains dialysate into the peritoneal cavity in the abdomen several times during the night. While the dialysate is in the peritoneal cavity, it helps pull toxins from the blood through the peritoneal lining. After a time of dwelling, the dialysate is drained from the peritoneal cavity which is refilled with fresh dialysate. While it may seem difficult to sleep during dialysis, many who choose Automated Peritoneal Dialysis (APD) report that they [...]

Home Hemodialysis

2019-02-12T11:11:02-04:00April 11th, 2016|Categories: eNews, Fact Sheet, Home Hemodialysis|

For people on dialysis who are stable, and who desire more control and flexibility over their treatments, home hemodialysis is another treatment option. With home hemodialysis a patient, along with a partner in most cases, will set up a dialysis machine in his or her home and learn to perform dialysis. This requires a patient, and/or partner, to learn how to self-cannulate, or put the needles into the access, set up the dialysis machine, monitor the machine, take and record vital statistics during treatment. Home hemodialysis patients must have a room in their home capable of accommodating the dialysis machine [...]