DPC Education Center 2023 Review and 2024 Preview

2024-01-11T15:32:50-05:00January 11th, 2024|Categories: About DPC Ed Center, eNews, Patient Support Group, Quality of Life, Resources, Staying Healthy, The Kidney Citizen, Treatment|

GREETINGS! This past year was an exciting one for the Education Center. We ramped up our social media platforms, allowing more direct exposure and interaction with our audience, including monthly LIVEs on Instagram and Facebook. Dr. Velma Scantlebury, our medical consultant, was available on Instagram every first Wednesday and on Facebook every third Wednesday—both occurred at 12:30 pm. Our support group, the Kidney Chat, was the second Tuesday of each month by telephone. Nephrologists, nutritionists, and social workers (just to name a few) were guests on the call, and shared important information and resources with patients. We also published an informative [...]

Fighting Back Against Implicit Bias in Health Care

2023-06-14T14:23:42-04:00June 14th, 2023|Categories: Additional Resources, Mental Health, Physical Health, Quality of Life, The Kidney Citizen|

Tips for how to speak up and speak out against discrimination in a medical setting Kirsten Weir The receptionist requests two forms of identification from you, yet the White person in front of you required no identification to be verified. A nurse who uses a condescending tone of voice: “you people are all alike.” A doctor who doesn’t listen to you: Having just told the doctor you have knee problems, he recommended that you walk 30 minutes every day. Are they just having a bad day — or is it implicit bias? Implicit bias is an attitude or [...]

Four Things You Should Know About the New Medicare Dental Rule

2023-06-14T14:19:46-04:00June 14th, 2023|Categories: Additional Resources, Physical Health, The Kidney Citizen|

Andrea Moore, LMSW, Health Equity Specialist, Quality Insights Renal Network 5 1. Before January 1, 2023, Medicare would pay for a dental exam only for patients who were actively seeking a kidney transplant. Now, the new Medicare dental rule will pay for a dental exam and dental treatment (e.g., dental filling, teeth removal, replacement of teeth, etc.) for patients actively seeking any organ transplant. If you are living with kidney disease--with or without dialysis--Medicare will not pay for preventative care, like teeth cleanings. What this means for you: If you have Medicare and are actively seeking transplant, meaning [...]

The Making of An Advocate

2023-06-14T14:17:06-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Medication, Mental Health, Support, The Kidney Citizen, Treatment|

Gene Blankenship, DPC Board of Directors Thinking about Life Sitting in my recliner watching the leaves fall like big fat orange snowflakes, I see the trees begin to change colors. My immediate first thought is “How many more seasons of change will I see? Is this my last fall”? Polycystic Kidney Disease (PKD) is a constant passenger in my life. Anytime you have a passenger with you for long periods of time, you will go through events together that stamp your life. For example, as a child, I watched Eugene Taylor Jr., my dad, hook himself up every [...]

Spring 2023 State Advocacy Update

2023-06-14T14:15:01-04:00June 14th, 2023|Categories: Costs for Treatment, Resources, The Kidney Citizen|

Elizabeth Lively, DPC Eastern Region Advocacy Director Pamela Zielske, DPC Western Region Advocacy Director The 2023 legislative session has been a busy and productive one for DPC’s state advocacy efforts. Bills impacting dialysis patients have been introduced in multiple state legislatures and in most cases have moved quickly through the legislative process. Improving access to Medigap coverage is a top priority for DPC, and we are thrilled that legislation was introduced in multiple states this session to expand Medigap access to patients under the age of 65. Last month, DPC celebrated Governor Glenn Youngkin's (R) signing [...]

8 Ways to Be a Safe Patient

2023-06-14T14:08:23-04:00June 14th, 2023|Categories: Immunizations, Medication, Physical Health, Resources, Staying Healthy, The Kidney Citizen|

When you have surgery, receive dialysis, or visit your doctor, you deserve safe care. Everyone plays a role in patient safety and quality health care. CDC and its partners provide expertise, data, and programs for safe health care to support public health, healthcare workers, patients, and caregivers. How Can I Be a Safe Patient? Speak up. Talk to your healthcare provider about any questions or worries. Ask what they’re doing to protect you from infections. Keep hands clean. Make sure everyone, including friends and family, cleans their hands before touching you. If you don’t see your healthcare providers clean their [...]

Building Legacy Through Advocacy

2022-11-02T22:12:52-04:00October 27th, 2022|Categories: Quality of Life, Support, The Kidney Citizen|

By Yolonda Brisbane, DPC Grassroots Manager As the Grassroots Manager for Dialysis Patients Citizens (DPC) Yolonda recruits and coaches new DPC patient advocates, helps plan and execute our Annual Advocacy Day, and hosts Patient Ambassador training calls. She came to DPC having led youth ambassador programs for the New York State Office of Children and Family Services and the Boys and Girls Clubs of America. For her, elevating the voices of dialysis patients is personal work. "When I was fourteen, I lost my father to kidney failure when he refused to go on dialysis. I had no clue about [...]

The New 988 Suicide & Crisis Lifeline Has Launched

2022-08-08T15:42:25-04:00July 21st, 2022|Categories: eNews, Mental Health, Support|

As of July 16th, people experiencing a mental health crisis (or their family and friends) can call or text 9-8-8 to reach help. The new 988 Suicide & Crisis Lifeline is modeled after 911 in order be easier to remember and provide a quick way for those in crisis to connect to a trained mental health professional, 24/7. The Lifeline is a national network of over 200 local crisis centers, providing free and confidential emotional support, along with connection to local resources, if necessary. When calling into the Lifeline, you will: First hear an automated message – this will outline additional [...]

Falling by the Wayside? Falls Prevention in Dialysis

2022-05-06T16:08:10-04:00April 25th, 2022|Categories: Dialysis, Fact Sheet, Physical Health, The Kidney Citizen|

By Laura Plantinga, PhD, Bernard Jaar, MD, MPH, and C. Barrett Bowling, MD, MSPH Why are dialysis patients at particular risk for falls? Studies show that approximately one-quarter of dialysis patients fall every year, meaning that they are about three times more likely to fall in any given year, compared to the general population. While older age certainly plays a role, there are several other factors that put dialysis patients — regardless of age — at higher risk for falls. In fact, most falls probably result from a combination of factors, usually a combination of long-term “predisposing” risk factors [...]

Living With Painful Diabetic Peripheral Neuropathy (PDPN)

2022-04-12T12:31:54-04:00April 12th, 2022|Categories: eNews, Mental Health, Physical Health, Resources|

Living with diabetes can be a challenge all on its own, in addition to the complications that can come with it. Painful diabetic peripheral neuropathy (PDPN) is a common type of diabetic neuropathy that occurs in one-fourth of those with Type II Diabetes and is characterized by feelings of pins and needles, prickling, tingling, numbness, or shooting pain, most commonly in the feet. The American Chronic Pain Association has many PDPN resources for both patients and caregivers. There is a PDPN Conversation Guide, which can help patients communicate with their healthcare provider about the location, specific feelings, and severity of their [...]

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