A New Look on Life

2020-12-11T12:20:56-05:00December 23rd, 2020|Categories: Diagnosis of Kidney Disease, The Kidney Citizen|

By Michael Ramirez The worst day of my life became the best day of my life. ''Your kidneys are failing," my physician said to me. My first thought, "What does that mean?" My doctor confirmed, "You need to see a specialist." I learned that a nephrologist is a kidney doctor, and that was the type of specialist I needed. I trusted my doctor so I asked, "Who should I see? Who do you trust?" My doctor referred me to his choice of nephrologist—and so I made an appointment right away. If your doctor says you need to see a nephrologist, don’t [...]

Care Coordination Fixes One of the Biggest Flaws in the American Health Care System

2020-12-15T14:02:04-05:00July 6th, 2020|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, The Kidney Citizen|Tags: , |

By Gloria Rohrer, DPC Patient Ambassador As a dialysis patient, it has become clear to me that one of the biggest flaws in the American health care system is the disjointed way care is often provided to patients. If patients have chronic conditions alongside other health complications, it can be exceedingly difficult to navigate the different doctors and hospitals we need in order to receive proper care. When seeing so many different doctors at various clinics and hospitals, patients like me can suffer adverse effects if all our treatments are not designed to address our full medical history, rather than a [...]

Reflections from 45 Years on Dialysis

2020-12-15T13:58:50-05:00May 2nd, 2020|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, Pediatric Kidney Disease, The Kidney Citizen|Tags: , |

By Jack Reynolds, DPC Board Member I have survived on in-center hemodialysis for the last 45 years. I have also received Medicare for all those years to pay for most of my dialysis and other medical needs. I currently reside outside the village of Palmyra, Iowa. One of the first group of Patient Ambassadors to advocate in Washington, D.C. in 2005, I have visited Capitol Hill many times since. Because of the cost, time and effort it takes to keep a kidney patient healthy, I feel that it is important to be aware of issues and legislation that can impact our [...]

New Resources for Teens

2020-04-27T21:20:25-04:00March 2nd, 2020|Categories: Additional Resources, Diagnosis of Kidney Disease, eNews, Fact Sheet, Home Hemodialysis, Humor and Laughter, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Medication, Nutrition, Pediatric Kidney Disease, Peritoneal Dialysis, Stress Management, Support, Symptoms|Tags: |

These booklets were developed for tweens and teens who learn their kidneys are not working and they will need dialysis or a transplant. The booklets provide a brief overview of coping with kidney disease, being part of their health care team, the importance of diet, taking medication, and treatment methods. They also touch on feelings related to having a chronic illness, family and friends, and being a teen. The development of both booklets included input from kids currently on dialysis, parents, adults who had kidney disease as children, and nephrologists.  Although both booklets are similar, one focuses on teens who learn [...]

Treatments and Modality Options for Kidney Disease

2020-04-27T21:20:50-04:00October 21st, 2019|Categories: Diagnosis of Kidney Disease, Early Intervention, eNews, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Stages of Kidney Disease, Symptoms, Webinar, What Causes Kidney Disease|

During this webinar you will learn: 1) how kidneys work, 2) about chronic kidney disease stages and symptoms, 3) how to slow progression, 4) end stage options for treatment and 5) about accesses. About the Presenter: Joanne Smith is a DPC Education Center Advisory Council member and has had multiple positions in the dialysis field since receiving her RN degree, ranging from Staff RN to Director of Nursing to Home Therapies Manager. She is currently a Kidney Care Advocate responsible for educating CKD and ESRD patients on kidney disease and options for treatment, focusing specifically on home dialysis. Unlike in other nursing [...]

Diabetes and Kidney Disease: Can You Get Better?

2020-04-27T21:21:17-04:00August 23rd, 2019|Categories: Diagnosis of Kidney Disease, Early Intervention, eNews, Webinar, What Causes Kidney Disease|Tags: |

During this webinar you will learn: 1) How Diabetes Affects Your Kidneys, 2) How Controlling Diabetes Improves Health and Well Being and 3) Three Proven Strategies for Controlling or Reversing Diabetes. David Spero has been a nurse for 40 years, has lived with a chronic illness for 30 years, writes regularly for Diabetes Self-Management magazine and web site and for other health publications. He is author of The Art of Getting Well: Maximizing Health When You Have a Chronic Illness (Hunter House 2003), and Diabetes: Sugar Coated Crisis – Who gets it, who profits, and how to stop it (New Society [...]

The Gap Between US Veterans and Kidney Doctors

2020-04-27T21:21:18-04:00August 13th, 2019|Categories: Diagnosis of Kidney Disease, Early Intervention, eNews, Stages of Kidney Disease|

Less than 60 percent of US Veterans with advanced stages of kidney disease (eGFR <30) receive care from a nephrologist. This is important as kidney disease is 34 percent higher among veterans than the general population. In addition, seeing a nephrologist could delay the progression of the disease and prevent other health issues from emerging. The percentage of veterans that work with a nephrologist varies by age, with patients over 69 being least likely. The data suggests that additional efforts need to be made to ensure veterans with kidney disease are getting the care they need. Read the full article. Understand [...]

Why You Should Take A Peek At Your Doctor’s Notes On Your Health

2020-04-27T21:21:18-04:00July 5th, 2019|Categories: Diagnosis of Kidney Disease, eNews|

By Victoria Knight, Kaiser Health News When Pamela DeSalvo read the clinical note from her doctor’s visit, the words on the page hit her hard: “clinically morbidly obese.” She knew she was overweight, but seeing those three words together shocked her. It also inspired her to start losing weight. “I needed to see it in black and white, what I actually in my heart already knew. It forced me to get honest with myself,” DeSalvo said. “Reading that note saved my life.” Studies show that, indeed, reading your doctor’s notes can improve your health. DeSalvo lives in Metuchen, NJ, and works [...]

A Young Man’s Life-Changing Experience with both Heart and Kidney Disease

2020-04-27T21:21:18-04:00June 28th, 2019|Categories: Diagnosis of Kidney Disease, eNews, Kidney Transplant, Webinar|

Bill Coon became a two-time heart and kidney transplant recipient in his 20s. During the webinar, he will share experiences from his 70-day hospital stay and recovery from a heart and kidney transplant to help others learn how to improve their patient experience. He will also provide insight from his personal experience on what one might expect during post-transplant recovery.

Premature Birth Increases Kidney Disease Risk

2020-04-27T21:21:19-04:00May 16th, 2019|Categories: Diagnosis of Kidney Disease, eNews, Pediatric Kidney Disease|

Researchers analyzed over four million singleton live births in Sweden during 1973-2014 and found the risk for chronic kidney disease (CKD) was doubled among births before 37 weeks of gestation and tripled among births before 28 weeks. Additionally, researchers found that the risk increased by four percent per premature week. Scientists compared the data to siblings born full-term and found the increased risk for kidney disease was not present among the siblings. The researchers concluded, "Preterm and early term birth are strong risk factors for the development of CKD from childhood into mid-adulthood. People born prematurely need long term follow-up for [...]

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