The Gap Between US Veterans and Kidney Doctors

2019-08-13T15:15:35-04:00August 13th, 2019|Categories: Diagnosis of Kidney Disease, Early Intervention, eNews, Stages of Kidney Disease|

Less than 60 percent of US Veterans with advanced stages of kidney disease (eGFR <30) receive care from a nephrologist. This is important as kidney disease is 34 percent higher among veterans than the general population. In addition, seeing a nephrologist could delay the progression of the disease and prevent other health issues from emerging. The percentage of veterans that work with a nephrologist varies by age, with patients over 69 being least likely. The data suggests that additional efforts need to be made to ensure veterans with kidney disease are getting the care they need. Read the full article. Understand [...]

Why You Should Take A Peek At Your Doctor’s Notes On Your Health

2019-07-23T11:04:26-04:00July 5th, 2019|Categories: Diagnosis of Kidney Disease, eNews|

By Victoria Knight, Kaiser Health News When Pamela DeSalvo read the clinical note from her doctor’s visit, the words on the page hit her hard: “clinically morbidly obese.” She knew she was overweight, but seeing those three words together shocked her. It also inspired her to start losing weight. “I needed to see it in black and white, what I actually in my heart already knew. It forced me to get honest with myself,” DeSalvo said. “Reading that note saved my life.” Studies show that, indeed, reading your doctor’s notes can improve your health. DeSalvo lives in Metuchen, NJ, and works [...]

A Young Man’s Life-Changing Experience with both Heart and Kidney Disease

2019-06-27T10:42:57-04:00June 28th, 2019|Categories: Diagnosis of Kidney Disease, eNews, Kidney Transplant, Webinar|

Bill Coon became a two-time heart and kidney transplant recipient in his 20s. During the webinar, he will share experiences from his 70-day hospital stay and recovery from a heart and kidney transplant to help others learn how to improve their patient experience. He will also provide insight from his personal experience on what one might expect during post-transplant recovery.

Premature Birth Increases Kidney Disease Risk

2019-05-20T15:20:25-04:00May 16th, 2019|Categories: Diagnosis of Kidney Disease, eNews, Pediatric Kidney Disease|

Researchers analyzed over four million singleton live births in Sweden during 1973-2014 and found the risk for chronic kidney disease (CKD) was doubled among births before 37 weeks of gestation and tripled among births before 28 weeks. Additionally, researchers found that the risk increased by four percent per premature week. Scientists compared the data to siblings born full-term and found the increased risk for kidney disease was not present among the siblings. The researchers concluded, "Preterm and early term birth are strong risk factors for the development of CKD from childhood into mid-adulthood. People born prematurely need long term follow-up for [...]

My Personal Experience with a Rare Condition

2019-05-10T13:48:13-04:00March 29th, 2019|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, Lifestyle, Physical Health, The Kidney Citizen|Tags: |

By Mark Scirocco, Patient Ambassador I have been on in-center hemodialysis for three years. It was a rough start, as I went through 11 chest catheters in a little over a year. Two of them just fell out while I was sitting at home; the others got clogged. The last one almost killed me, stopping fluid in my upper body and head. My fistula was barely ready when they took that one out and placed a stent in my chest to allow fluid past my upper body. Three months after starting my fistula, I needed a fistulogram to open it up. [...]

Free Monthly Webinars/Conference Calls

2019-05-10T13:12:23-04:00March 21st, 2019|Categories: About DPC Ed Center, Costs for Treatment, Diagnosis of Kidney Disease, Early Intervention, Employment, Home Hemodialysis, Humor and Laughter, Immunizations, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Medication, Mental Health, Music, Nutrition, Pediatric Kidney Disease, Peritoneal Dialysis, Physical Health, Sex and Intimacy, Stages of Kidney Disease, Stress Management, Support, Symptoms, The Kidney Citizen, Webinar, What Causes Kidney Disease|

The DPC Education Center invites people living with chronic kidney disease (CKD), end-stage renal disease (ESRD), their families and professional staff to join us for our monthly webinars. You can also join by phone or view the recordings online at a later time. The webinars are planned for the fourth Thursday of the month at 2 p.m. Eastern time zone, except for November and December when they will be held during the third week of the month. You can download monthly webinar fliers to share with others and/or register for webinars at www.dpcedcenter.org/news-events/education-webinars. Join by phone by calling 1-877- 399-5186 and [...]

Advance Care Planning

2019-05-10T12:35:19-04:00March 15th, 2019|Categories: Diagnosis of Kidney Disease, Lifestyle, The Kidney Citizen|Tags: |

By David Mahoney, MD As a member of Dialysis Patient Citizens, you have chosen to become involved, speak up for what is important to you and take charge of the management of your health. Dialysis modality, diet, medications, exercise, management of your other health-related issues, all require your informed decision-making and action. But despite this high level of involvement in their health care, few dialysis patients have addressed the issue of advance care planning. “I don’t want to talk about that now.” “That’s for sick people, and I am doing well.” “That really scares me.” “I am NOT ready to talk [...]

Insights from the Dialysis Patient Citizens 2018 Patient Survey: Patients’ Priorities for Quality Measures and New Innovations in ESRD Care

2019-03-18T13:22:49-04:00March 11th, 2019|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, The Kidney Citizen|

By Jackson Williams, Director of Regulatory Affairs and General Counsel, Dialysis Patient Citizens Dialysis Patient Citizens (DPC) thanks everyone who completed its 2018 Patient Survey. It is another way to make your voices heard. We use our patient survey to get your input on current issues and to convey your opinions to policymakers in Washington, DC. This year, our survey included questions on two recent developments in Washington: Medicare’s “Meaningful Measures” Initiative: In early 2018, Medicare officials announced plans to reduce the number of quality measures it uses to hold health care providers accountable. This meant that for dialysis care, the [...]

Improvements in Dialysis Care Are Outpacing Other Serious Chronic Disease Conditions – Including Cancer and Heart Failure

2019-03-04T15:07:33-04:00March 4th, 2019|Categories: Costs for Treatment, Diagnosis of Kidney Disease, eNews|

Improvements in dialysis care are outpacing outcomes for other chronic disease conditions, improvements that allow patients with End Stage Renal Disease (ESRD) to live longer lives – and yielding substantial savings to Medicare – according to a new fact sheet created from the health care consulting firm Discern Health, which analyzed United States Renal Data System (USRDS) data. An analysis of the USRDS data set by Discern Health reveals that, although ESRD patients are among the most complex and costly Medicare beneficiaries to treat, improvements in dialysis care have led to improvements that translate into larger gains in patient survival than other [...]

ESRD Patients Living Longer Despite Growth of CKD

2019-01-25T23:07:18-04:00March 17th, 2016|Categories: Diagnosis of Kidney Disease, eNews|Tags: |

According to a study by the US Renal Data System (USRDS), the University of Michigan, and the Arbor Research Collective for Health, the number of people newly diagnosed with end stage renal disease (ESRD) has been steadily declining since 2010. In 2012, only 114,813 people were newly diagnosed with ESRD, bringing the total number of ESRD patients in the US to 636,905. Mortality rates for ESRD patients have also been declining, indicating that patients on dialysis or with kidney transplants are living longer. This means dialysis patients are receiving higher quality care on the whole. While 14% of US adults have [...]