Here are the top 10 ways family members can be supportive when a child has a chronic condition.
By Amy Walters, PhD, Licensed Psychologist If you missed this month's webinar on Psychosocial Factors Affecting Children and Families Living with Chronic Illness, the recording is now available! In addition, below is a handout to accompany the presentation about understanding and helping the caregivers in our life. What We Know About Caregivers Report feeling overwhelmed, frustrated and lonely Report high levels of stress and depressed symptoms Are tired and sleep deprived Have higher rates of illness (2x higher) but seek medical attention less often Often neglect their own self care Experience more relationship conflicts Feel a sense of loss – [...]
The DPC Education Center invites people living with chronic kidney disease (CKD), end-stage renal disease (ESRD), their families and professional staff to join us for our monthly webinars. You can also join by phone or view the recordings online at a later time. The webinars are planned for the fourth Thursday of the month at 2 p.m. Eastern time zone, except for November and December when they will be held during the third week of the month. You can download monthly webinar fliers to share with others and/or register for webinars at www.dpcedcenter.org/news-events/education-webinars. Join by phone by calling 1-877- 399-5186 and [...]
By Steve Wilson (download PDF) Feeling down during the holidays can be tough, especially since you seem so out of step with the world. Everyone else seems to be beaming, ruddy-cheeked, bursting with holiday spirit. You’re feeling wretched and exhausted. But here’s something to cheer you up the next time you’re stuck in a room of revelers at a holiday party. Plenty of them are probably unhappy, too. Recommendations Related to Depression Are You at Risk for Depression? Knowing what factors increase your risk of having major depression may help you get the best medical help when you need it. Depression [...]
By Steve Wilson (download PDF) Emotionally Loaded Months You probably can guess why October, November and December are called the “emotionally loaded” quarter of the year. The post-holiday period has emotional perils, too, but probably not what you think they are. What can you do to have an easier time of it all? To do a really good job of managing holiday stresses, you will need some sense of control, some sense of predictability, some optimism, and some solid practical strategies. The information in this article will help you be smarter about holiday stress, so you can beat it before it beats [...]
Individuals with chronic kidney disease (CKD) that use marijuana may lose function of their kidneys more rapidly than non-users, as found in one study. Researchers compared the mean annual rate of decline in estimated glomerular filtration rate (eGFR) among the two groups of participants. The eGFR was 3.22 mL/min/1.73 m2 among marijuana users and 1.42 mL/min/1.73 m2 among non-users. Glomerular filtration rate (GFR) measures kidney function effectiveness by documenting how well the kidneys are filtering the blood. Scientists did not observe a decline in kidney function among individuals that use marijuana and do not have CKD. Read the full article.
Life with a chronic illness can be a bumpy road with many hurdles to navigate along the way. Emotional ups and downs due to stress are common among people undergoing dialysis treatments. If you find yourself experiencing issues of depression, anxiety, fear and anger, you are having a normal reaction to stressful circumstances. And you are not alone in this. Yet, despite being surrounded by other people, a sense of isolation may arise. There are ways to address these normal feelings. This webinar will present some guidelines for coping with the array of emotions common to life with dialysis and chronic [...]
If you receive dialysis treatments for kidney disease, you probably spend a lot of time focused on your physical health. That’s important -- but so, too, is your mental and emotional well-being. Dialysis is life-saving, but it’s also life-changing. Still, by taking charge of your emotional health -- and accepting help when you need it -- you can live a rewarding life on dialysis. Rollercoaster Emotions Dialysis requires significant time and effort. In addition to the considerable time spent traveling to and from appointments and receiving treatment itself, people receiving dialysis must carefully monitor their diet and fluid intake. It’s [...]
Are you prepared for any disaster that might impact your life or your ability to dialyze? Depending on where you live, there are many different types of disasters. You and your family should have a plan in place and practice your plan so that when the need arises, you can stay calm and be prepared. You also should have alternative plans and specific means to communicate any changes that might occur. Dialysis clinics are required to provide disaster plans to their patients and practice drills. Your dialysis team will instruct you how to take yourself off of your dialysis machine if [...]
The thought of travel may seem intimidating because of your dialysis schedule, but a little planning can make it easier. Ask your local dialysis center or your doctor’s office for help finding a dialysis center away from home. You or a loved one can also visit www.dialysisfinder.com or call 1-866-889-6019 toll free to speak with a dialysis placement specialist. If your dialysis is done at home, either with hemodialysis or peritoneal dialysis, you may also want to consider contacting one of the services listed above, as traveling with the necessary supplies or finding space to do your dialysis may be difficult. Be sure [...]