When Your Parent is Sick: Tips for Children on Managing Feelings

2019-02-14T14:22:22+00:00February 11th, 2019|Categories: eNews, Fact Sheet, Mental Health, Pediatric Kidney Disease|

Having a sick parent can be scary and stressful, especially if there are long hospital stays or physically intense treatments. Having a parent diagnosed with a serious health condition, like kidney disease, can seem especially frightening if you don’t know how it will affect your family. It is estimated that one in seven adults have chronic kidney disease.1 Your parents, doctors and family members can help you get through this tough time. Here are some tips to help you manage your feelings: Prepare for change. You may notice changes with your family and home as your parent spends more time at [...]

When Your Child Is Diagnosed with Kidney Disease: Tips on How to Cope

2019-01-23T11:53:53+00:00January 3rd, 2019|Categories: eNews, Fact Sheet, Pediatric Kidney Disease|

By Elizabeth Lewan, Communications & Grassroots Program Coordinator at the American Psychological Association Parents want to make sure their child has a healthy and happy life, but sometimes a health complication can change things. Having a child diagnosed with pediatric chronic kidney disease (CKD) can leave parents feeling overwhelmed, anxious and scared for their child’s overall well-being, especially in the beginning. However, you can play an active role in your child’s care and treatment by providing the emotional support he/she needs and educating yourself about kidney disease and its treatments. Below are some tips that parents and caregivers may find helpful [...]

Scientists Observe Delayed Progression of Rare Kidney Disease with the Aid of Medication

2018-09-07T17:21:17+00:00July 24th, 2018|Categories: eNews, Medication, Pediatric Kidney Disease, What Is Kidney Disease|

Researchers are making progress toward developing medications to delay the progression of rare kidney diseases. A study published in the Clinical Journal of the American Society of Nephrology reported a lower decline of estimated glomerular filtration rate (eGFR) among individuals with autosomal dominant polycystic kidney disease (ADPKD) treated with medication, compared to the control group. Glomerular filtration rate (GFR) measures kidney function effectiveness by documenting how well the kidneys are filtering the blood. Researchers hope this type of medication will prevent or delay the need for an individual to go on dialysis or other kidney replacement therapy. The decline of eGFR [...]

Vaccine Changes for the 2016-2017 Flu Season

2018-12-11T22:50:46+00:00July 18th, 2016|Categories: eNews, Immunizations, Pediatric Kidney Disease|

While it feels like summer just started, the Centers for Disease Control has already begun preparation for the next flu season. The CDC’s Advisory Committee on Immunization Practices (ACIP) voted that live attenuate influenza vaccine (LAIV) also known as the “nasal spray” flu vaccine, should not be used during the 2016-2017 flu season. ACIP is a panel of immunization experts that advise the CDC. Their decision to vote against using LAIV is based on data showing poor or relatively lower effectiveness from 2013 to 2016. In late May, preliminary data on the effectiveness of LAIVE among children ages 2 through 17 [...]

Utilizing Public Resources to Prevent Kidney Disease

2019-01-29T21:18:22+00:00March 17th, 2016|Categories: Early Intervention, eNews, Pediatric Kidney Disease, What Causes Kidney Disease|Tags: |

People living with diabetes know that diabetes might affect their eyes, feet and heart. But, many do not realize that they also have to think about their kidneys. In fact, diabetes is the leading cause of kidney disease, followed by high blood pressure. The National Kidney Disease Education Program (NKDEP), an initiative of the National Institutes of Health (NIH), has a number of helpful resources and materials to educate people at risk for chronic kidney disease (CKD). These materials help people and their loved ones understand the connection between diabetes, high blood pressure and kidney disease. For people with diabetes or [...]

Treatment Options for Pediatric Kidney Disease

2019-02-12T11:27:30+00:00January 4th, 2013|Categories: eNews, Hemodialysis, Kidney Transplant, Pediatric Kidney Disease, Peritoneal Dialysis|

Children with kidney failure have a few options to choose from, depending on the severity of their disease.  The primary goal is to have a successful transplant, however viable kidneys are not always available and some children are not strong candidates for transplants. In some cases a nephrectomy is a solution that can make childhood disease easier to manage. In most cases parents choose home dialysis options either home hemodialysis or peritoneal dialysis. Transplants In adults, most transplanted kidneys come from donors who have just perished. However, about half of the kidney transplants in children come from a living donor, usually a [...]

Issues Specific to Children with Pediatric Kidney Disease

2018-11-15T02:52:42+00:00January 4th, 2013|Categories: Immunizations, Mental Health, Pediatric Kidney Disease, Quality of Life, What Causes Kidney Disease, What Is Kidney Disease|

Children are not just little versions of adults. They endure their own physical and mental issues that deserve extra attention. Physical Immunizations Early childhood is when several series of immunizations are scheduled, which can create additional issues in children with renal failure. Due to weakened immune systems, it is even more important that children with CKD receive all recommended vaccinations plus pneumonia and influenza. Children who are on immunosuppressive medication to prevent transplant rejection or treat an autoimmune disease should not receive live viruses though, those include the polio oral vaccine, the measles, mumps and rubella (MMR) vaccine or the varicella [...]

Tips for Communicating with Your Kidney Care Team

2018-12-11T22:29:12+00:00December 14th, 2012|Categories: Dialysis, eNews, Pediatric Kidney Disease|

It’s easy to get confused when you’re trying to talk with your kidney care team. Sometimes they use complicated, unfamiliar terms. But being able to communicate effectively with your kidney care team can help you have some control over your health care. One way to help you communicate effectively is to take P.A.R.T.: Prepare. Make a list of important questions or concerns, and bring these up at the beginning of your visit. Ask. Ask questions regarding tests, treatments, and any follow-up steps that are necessary. Make sure you understand the doctor’s answers. If you don’t, ask until you do. Repeat. Once you have gotten [...]

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