You – The most important individual is YOU! You are the ultimate decider. It is your responsibility to understand all of your options, prepare for surgery and care for your new organ. Your transplant team will provide information, discuss your options, and answer your questions.
Friends/Family – These individuals are your support team and will help fill in any gaps in your care. They are also your best option for a living donor, although if they say no that doesn’t mean they love you any less or are a bad friend. Not everyone who cares about you will be able to be a donor for a variety of reasons and it is important to respect their choices and decisions.
Renal (Kidney) Healthcare Team
Doctors – Your team of doctors will consist of your primary care physician who will look after your general medical care and specialists such as your nephrologist that have responsibility for the overall care for your kidney disease. Your nephrologist in many cases will refer you to the transplant evaluation center, but others on your care team can also play a role in your referral and some places allow patients to refer themselves.
Nurses – Your nurses normally serve as your first point of contact for any questions about your care. They either know the answers to your questions or they can point you in the right direction. They can also be instrumental in helping you get a referral for a transplant evaluation.
Social worker – Your social worker is another player that can wear many hats. They can help provide you with information about a transplant, help find financial support and also help remove emotional stresses and burdens.
Dietitian/Nutritionist – These are the people that can help you get your diet on track to prepare for a transplant and help you stay healthy after your surgery. They are specialists that can help make a renal friendly diet that still takes your favorite foods into account.
Transplant Doctor/Surgeon – Once accepted into a transplant program, your transplant doctor will handle your medical care before and after your transplant. The transplant surgeon will determine if a transplant is best for you, handle the surgery itself and will also serve as an expert to help you understand the risks and benefits and care for your new organ.
Transplant Coordinator/Staff – These staff serve as a strong linkage between your pre-transplant care team and your new transplant team. As their name suggests they coordinate all of the activities surrounding your transplant. They are responsible for providing education, organizing your care, helping you schedule appointments, answer questions about the transplant and just help you through the entire process.
Pharmacist(s) – Your pharmacist is another valuable resource in your care team. Not only do they dispense your prescriptions, but they can also help you understand side effects, any possible interactions with other medications or food and can work with your doctors to fine tune your medications.
Psychologist/Psychiatrist – These experts will help with the mental health side of your total body health. Mental health is sometimes not seen as that important by some people but it is a very important part of your being prepared for your transplant. Having a good positive mental outlook can dramatically improve your physical health. Not every facility will have an individual on staff nor will every patient need this resource but it can be helpful to see someone. Your transplant team will be able to refer you to a mental health specialist if it does not have one as part of its team.
Financial Adviser – This is the individual that will help you cover the money side of getting a transplant. They will work closely with other staff such as social workers to figure out if getting a transplant is a good option for you and how to best pay for that option. It is important to know that you will be able to afford the transplant medications so that you would not lose the kidney by not being able to take them.
By Harvey Mysel I’ve often been asked: “Where can I register to get a living donor?” Unlike deceased donation where there’s one national list, (although you can multi-list because some areas have a shorter wait [...]
By Jewel Edwards-Ashman I started the year 2020 anticipating that I’d enter kidney failure and have to undergo my second kidney transplant. But I didn’t expect to start doing home dialysis and eventually have transplant [...]
Dialysis patients who are considering whether to pursue a kidney transplant can check out a new resource to help them make that decision. The resource—a guide that was written by patients with End-Stage Renal Disease—provides [...]
By Elizabeth Steinberg Christofferson, PhD and Leah Grande, MA Preparing for and receiving a kidney transplant, especially during the COVID-19 pandemic, can be an uncertain and overwhelming process. This article discusses tips to promote [...]
New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or [...]
The U.S. Public Health Service (PHS) recently released the PHS Guideline for Solid Organ Donor Assessment for Human Immunodeficiency Virus (HIV), Hepatitis B Virus (HBV), and Hepatitis C Virus (HCV) Infection and Transplant Recipient Monitoring. [...]