ESRD Teen Booklets Are Now Available in Spanish

2020-10-08T09:15:52-04:00October 2nd, 2020|Categories: eNews, Pediatric Kidney Disease, Spanish Materials|Tags: |

Our two popular booklets, "Tips for Teens Living with Kidney Disease" and "Kidney Disease Tips for Teens Living with Cystinosis" are now available for download in Spanish. These booklets provide information for teens who learn they have kidney disease. They include a brief overview of living with End stage renal disease, the importance of diet and medication adherence, and potential treatment methods. They also touch on feelings related to having a chronic illness, family and friends, and being a teen. Download the booklets

Identifying Sepsis Risk and Symptoms

2020-09-04T16:04:37-04:00September 4th, 2020|Categories: The Kidney Citizen, What Causes Kidney Disease|Tags: |

By Marijke Vroomen Durning, RN People who live with kidney disease are more susceptible to contracting infections than the general public. A weakened immune system, frequent hospital or clinical visits/stays, and possible points of entry for infection (catheters, ports, etc.) all contribute to this increased risk. Unfortunately, some of these infections can lead to sepsis, which can be life altering, even fatal for thousands of people. Sepsis is your body’s inflammatory response to an infection. It can be any type of infection—viral, as with influenza; bacterial, as with a urinary tract infection (UTI); even fungal or parasitic. No one knows why [...]

Treatment of Hyperkalemia in Dialysis Patients

2020-05-12T15:07:13-04:00May 12th, 2020|Categories: eNews, Medication, What Is Kidney Disease|

Hyperkalemia is a potentially life-threatening electrolyte disorder and is more often seen in people who have End Stage Kidney Disease than the general public. For people WITHOUT kidney failure, potassium, an important mineral within the body, helps regulate fluid balance, muscle contractions and nerve signals. When people eat more potassium than their body needs, the kidneys filter and excrete out any extra through the urine. However, when the kidneys do not work, potassium can build up in the blood and cause hyperkalemia/high potassium. You can learn more about foods high in potassium and hyperkalemia in Issue 10 of our patient newsletter, [...]

New Resources for Teens

2020-04-27T21:20:25-04:00March 2nd, 2020|Categories: Additional Resources, Diagnosis of Kidney Disease, eNews, Fact Sheet, Home Hemodialysis, Humor and Laughter, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Medication, Nutrition, Pediatric Kidney Disease, Peritoneal Dialysis, Stress Management, Support, Symptoms|Tags: |

These booklets were developed for tweens and teens who learn their kidneys are not working and they will need dialysis or a transplant. The booklets provide a brief overview of coping with kidney disease, being part of their health care team, the importance of diet, taking medication, and treatment methods. They also touch on feelings related to having a chronic illness, family and friends, and being a teen. The development of both booklets included input from kids currently on dialysis, parents, adults who had kidney disease as children, and nephrologists.  Although both booklets are similar, one focuses on teens who learn [...]

5 Ways to Improve Your Heart Health

2020-04-27T21:20:26-04:00February 13th, 2020|Categories: eNews, Lifestyle, Nutrition, Physical Health, Stress Management, What Causes Kidney Disease|

If you worry that you or someone you love will get heart disease or even have a heart attack, it’s understandable. February is American Heart Month, and heart disease is the leading cause of death for men and women in the United States, according to the National Heart, Lung, and Blood Institute (NHLBI). Research shows you can lower your risk, particularly if you team up with family, friends or co-workers. This kind of social support may be the key to your success. “Studies show that having positive, close relationships and feeling connected to others benefits overall health, blood pressure, weight and [...]

Survey: Seeking Advice from Parents of Children with Kidney Disease

2020-04-27T21:20:26-04:00January 25th, 2020|Categories: eNews, Hemodialysis, Medication, Mental Health, Pediatric Kidney Disease|

The DPC Education Center is developing an online program to serve as a resource for parents of children with kidney disease. In order for this program to be successful, we need the guidance of parents willing to share tips and stories about how they helped their child thrive while living with this condition and juggling life's multiple demands. Feedback is needed in the areas of treatment, medication and mental health. If you are a parent of a child with kidney disease and would like to help us with this project, please click this link (or answer the questions in the box [...]

November is National Diabetes Month

2020-04-27T21:20:50-04:00November 8th, 2019|Categories: Additional Resources, eNews, Lifestyle, Nutrition, Physical Health, What Causes Kidney Disease|Tags: |

Diabetes is one of the leading causes of disability and death in the United States. One in 10 Americans have diabetes — that’s more than 30 million people. And another 84 million adults in the United States are at high risk of developing type 2 diabetes. To raise awareness about diabetes and healthy living, we are proudly participating in American Diabetes Month. Around one in three adults with diabetes has chronic kidney disease. Depending on your age, weight, and other factors, you may be at higher risk of developing type 2 diabetes. The good news is that making healthy changes can [...]

Treatments and Modality Options for Kidney Disease

2020-04-27T21:20:50-04:00October 21st, 2019|Categories: Diagnosis of Kidney Disease, Early Intervention, eNews, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Stages of Kidney Disease, Symptoms, Webinar, What Causes Kidney Disease|

During this webinar you will learn: 1) how kidneys work, 2) about chronic kidney disease stages and symptoms, 3) how to slow progression, 4) end stage options for treatment and 5) about accesses. About the Presenter: Joanne Smith is a DPC Education Center Advisory Council member and has had multiple positions in the dialysis field since receiving her RN degree, ranging from Staff RN to Director of Nursing to Home Therapies Manager. She is currently a Kidney Care Advocate responsible for educating CKD and ESRD patients on kidney disease and options for treatment, focusing specifically on home dialysis. Unlike in other nursing [...]

Resources for People with Diabetes and Kidney Disease

2020-04-27T21:20:50-04:00September 30th, 2019|Categories: Additional Resources, eNews, Nutrition, Physical Health, What Causes Kidney Disease|Tags: |

If you missed last week's webinar on diabetes and kidney disease, the recording is now available. In addition, below is a handout to accompany the presentation. Herbs Some of these articles provide information about what some people have tried, but the overall research is not necessarily strong. Some of these could be an option for you, but remember: IT IS VERY IMPORTANT TO CHECK WITH YOUR DOCTOR BEFORE USING ANY ALTERNATIVE TREATMENTS.  Herbs for Diabetes: https://www.diabetesselfmanagement.com/blog/herbs-for-diabetes/ Bitter Melon, Diabetes (one of the speaker's favorites): https://www.diabetesselfmanagement.com/blog/bitter-melon-diabetes/ Apple Cider Vinegar and Diabetes: https://www.diabetesselfmanagement.com/blog/apple-cider-vinegar-and-diabetes/ Six Supplements for Diabetes:  https://www.diabetesselfmanagement.com/blog/six-supplements-for-diabetes/ Kidney Diet Diabetes Diet [...]

Elevate the Patient Voice in ADPKD Research

2020-04-27T21:20:50-04:00September 20th, 2019|Categories: eNews, What Causes Kidney Disease|

A patient registry is available for people with autosomal dominant polycystic kidney disease (ADPKD). The registry is a way to empower patients within a research community while providing information about the impact of ADPKD on the lives of those affected. Participants will be asked to provide information about their diagnosis, symptoms, family history and more. Researchers will connect registry volunteers with studies and clinical trials they may be eligible to participate in. The hope is that registry participation will contribute towards the goal of curing ADPKD. Read more about participating. About ADPKD ADPKD is a genetic disorder—affecting approximately 400,000 people in [...]

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