Innovation Isn’t Enough: A Dialysis Patient’s Case for Real Access

2026-06-10T16:02:38-04:00June 10th, 2026|Categories: Quality of Life, Staying Healthy, The Kidney Citizen, Treatment|

Pesh Patel, DPC Patient Ambassador In 2017, I was visiting Melbourne, Australia as part of my career as a global hospitality executive. While walking around the city, I suddenly had to stop four separate times over the course of just three city blocks because I couldn’t breathe. I thought I was out of shape. What I didn’t know was that I had been living with a single kidney since birth, and that kidney was functioning at 2%. If I hadn’t gone to the ER when I did, I would have died within 20 hours. Two hours later, I was [...]

Patient Stories are the “Secret Sauce”

2026-06-10T15:51:14-04:00June 10th, 2026|Categories: Quality of Life, Staying Healthy, The Kidney Citizen, Treatment|

Elizabeth Lively, DPC Eastern Region Advocacy Director Pamela Zielske, DPC Western Region Advocacy Director Does advocacy have a “secret sauce” for success? Are there tactics and tools that an organization needs to consider as strategies are developed to get legislation passed? What does success look like? How does optimism and the cumulative impact of advocacy work impact positive outcomes? Dialysis Patient Citizens (DPC) began a Medigap (Medicare Supplement) campaign in 2022 supporting legislation in the states to provide premium protected Medigap coverage to ESRD patients under-age 65. This campaign supports DPCs goals of improved financial security, increased [...]

Challenges, Opportunities, and Innovation in End Stage Kidney Disease and Transplantation

2026-06-10T15:39:22-04:00June 10th, 2026|Categories: Dialysis, Kidney Transplant, The Kidney Citizen, Treatment|

Dr. Velma Scantlebury, MD, FACS, GCM, DPC Education Center Health Care Consultant Over 90,000 patients sit on dialysis awaiting kidney transplantation, and thousands more are on some form of dialysis modality, with the hope of maintaining life without a kidney transplant. From chronic kidney disease (CKD) to end stage kidney disease (ESKD) there are significant challenges for both patients and healthcare providers, including delays in the onset of dialysis, complications associated with dialysis, limited access to donor organs and the need for lifelong immunosuppression following transplantation. Additionally, socioeconomic disparities and geographic barriers often impact the quality and availability [...]

Kidney Innovators Highlight New Therapies, Medicare Challenges at Congressional Hearing

2026-06-10T15:19:13-04:00June 10th, 2026|Categories: Quality of Life, Staying Healthy, The Kidney Citizen, Treatment|

Jackson Williams, DPC Vice President of Public Policy On March 18, 2026, the House Ways and Means Subcommittee on Health held a hearing titled “Improving Kidney Health Through Better Prevention and Innovative Treatment”. This hearing allowed patients, providers, and other stakeholders to highlight the struggles many kidney patients face and the barriers that prevent them from accessing better, innovative treatment. This was exciting for kidney care advocates, as challenges have mounted since Congress last addressed kidney health in 2008. Better still, the questions from Members of Congress demonstrated that committee leaders understand those challenges and potential solutions. They are [...]

Innovation, Hope, and the Gift of a Second Chance – A Gift That Rewrites a Life

2026-06-10T14:50:39-04:00June 10th, 2026|Categories: Dialysis, Kidney Transplant, Medication, Mental Health, Quality of Life, Staying Healthy, The Kidney Citizen, Treatment|

C. Andre’ Daniels, DPC Patient Ambassador Hope is not passive. It is not a soft sentiment or wishful thinking. For patients living with End-Stage Renal Disease, hope is often an act of discipline. It is the decision to keep going through the fatigue, the uncertainty, the appointments, the waiting, and the fear. It is the choice to believe that even in the face of illness--innovation, faith, and human generosity can come together to rewrite a life. I know this because I have lived it. When I woke up after my kidney transplant, I knew immediately that my life had [...]

Dialysis patients are missing out on new therapies due to Medicare’s ESRD payment structure

2026-06-10T14:44:40-04:00June 10th, 2026|Categories: Costs for Treatment, Medication, Quality of Life, Staying Healthy, The Kidney Citizen, Treatment|

Quiana Bishop, DPC Board President While dialysis treatments sustain life for people with kidney failure, they cannot replace all of the many functions of a healthy kidney. Patients rely on medications to address certain symptoms. As of January 1, 2025, all of these medications are included in the ESRD prospective payment system bundle and dialysis facilities are given the responsibility of dispensing them. This arrangement saves money for Medicare, but it does so by creating a profile for an “average patient” and discouraging expenditures on anyone else. As we know, there’s no such thing as an “average” patient, with [...]

Hope, Innovation, and Life Reimagined

2026-06-10T14:38:05-04:00June 10th, 2026|Categories: Kidney Transplant, Quality of Life, Staying Healthy, The Kidney Citizen, Treatment|

Albert Bailey Brisbane III, DPC Patient Ambassador I was a teenager when I first heard the word dialysis. In 1981, my father suddenly became critically ill while at work and was rushed to the hospital, where he passed away two weeks later. I remember being told that he refused dialysis. I didn’t know what dialysis was, only that my hero was gone forever. Years later, I heard that word again — dialysis. This time, it was my mother. Her experience came suddenly, and she began emergency dialysis in the hospital. In that moment, my sister and I didn’t think [...]

High-Volume Hemodiafiltration: Understanding a Dialysis Treatment Approach

2026-06-10T14:25:45-04:00June 10th, 2026|Categories: Dialysis, In-Center Hemodialysis, The Kidney Citizen, Treatment|

Dr. Stefano Stuard, MD, PhD, Nephrologist Dr. Michael Anger, MD, Nephrologist   Overview: Hemodiafiltration (HDF) is a type of dialysis that cleans the blood using two cleaning processes: diffusion and convection. Standard hemodialysis mainly relies on diffusion alone. Diffusion and convection remove waste in different ways. Diffusion helps remove smaller waste products, while convection helps move larger waste substances out of the blood. Using both processes allows for a broader range of waste removal during treatment. High-volume hemodiafiltration refers to HDF treatments that use a larger amount of clean, sterile replacement fluid during the dialysis session, [...]

Living with Purpose: My Journey of Strength, Advocacy, and Hope

2026-06-10T14:27:08-04:00June 10th, 2026|Categories: Dialysis, In-Center Hemodialysis, Quality of Life, The Kidney Citizen, Treatment|

Quiana Bishop, DPC Board President Ten years ago, I found myself stepping into a dialysis center for the first time. I was uncertain, overwhelmed, and scared. Kidney failure had suddenly become part of my story. But from day one, I made a decision: this diagnosis would not define me. I was going to keep living and keep finding joy wherever I could. I was raised in Chicago and now call Detroit home. My journey with kidney disease is deeply personal - not just because I live with it, but because I watched my father battle it too. He [...]

The Kidney Citizen Issue 23

2026-06-01T13:01:04-04:00June 1st, 2026|Categories: The Kidney Citizen, The Kidney Citizen (Issue)|

Welcome to the Innovation and Empowerment issue of the Kidney Citizen! The DPC Education Center is excited to share with you this latest issue that is all about expanding treatment options, staying hopeful through the journey, and advocating for new and innovative therapies to help kidney patients live their best lives.

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