Hannah Bracamonte2025-10-01T21:54:48-04:00October 1st, 2025|Categories: The Kidney Citizen, The Kidney Citizen (Issue)|
Welcome to the Living Well with Kidney Disease issue of the Kidney Citizen! The DPC Education Center is excited to share with you this latest issue that is all about supporting yourself, supporting your community, and continuing to live your best possible life.
Hannah Bracamonte2025-10-10T15:58:59-04:00October 1st, 2025|Categories: Quality of Life, Resources, Staying Healthy, The Kidney Citizen, Treatment|
Yolonda Brisbane, DPC Grassroots Manager From July 12–15, 2025, the nation’s capital was infused with a powerful sense of purpose and unity as Dialysis Patient Citizens (DPC) welcomed 36 extraordinary Patient Ambassadors—dialysis patients, transplant recipients, and family members of those living with or lost to End Stage Renal Disease (ESRD)—to Washington, D.C. for our Annual Congressional Advocacy Day. Our time together began with preparation and purpose. Patient Ambassadors entered a space of belonging that offered state-of-the-art meeting rooms and delicious kidney-friendly meals—nourishing both body and spirit. This setting became the heart of meaningful conversations, new friendships, and genuine camaraderie. [...]
Hannah Bracamonte2025-10-10T15:45:35-04:00October 1st, 2025|Categories: Recipes, Spanish Materials, Staying Healthy, The Kidney Citizen|
Esta receta fue adaptada por Collette Powers, MA, RD, LDN, ACSM EP-C, a partir de Our best summer casserole recipes, abril 2017, Taste of Home. Tiempo de preparación: 25 min Tiempo de cocción: 10 min Tiempo total: 35 min Porciones: 6 Ingredientes: 2 cucharadas aceite de oliva extra virgen 2 calabacines medianos, cortados en rodajas de ¼ de pulgada (aproximadamente 2 tazas) 1½ calabaza amarilla mediana, cortada en rodajas de ¼ de pulgada (aproximadamente 2 tazas) 2 chalotes, picados finamente ½ cucharadita orégano seco ¼ cucharadita pimienta negra molida gruesa 4 dientes de ajo, picados finamente 1 taza pan rallado [...]
Hannah Bracamonte2025-10-10T15:18:18-04:00October 1st, 2025|Categories: Dialysis, Quality of Life, Support, The Kidney Citizen|
Arthur Hill, DPC Board Member “When Death Couldn't Stop Me, I Knew I Had Work to Do” When I first learned I had Goodpasture's disease – a rare condition that would forever change my life – I had no idea I was about to embark on a journey that would reveal depths of strength I never knew I possessed. September 2010 marked the beginning of what I now call my awakening. Despite feeling unwell, I pushed forward with determination, traveling to Mississippi for work. My body was sending me urgent signals, but I was too focused on my responsibilities [...]
Hannah Bracamonte2025-10-10T15:14:07-04:00October 1st, 2025|Categories: Dialysis, Mental Health, Quality of Life, Support, The Kidney Citizen|
Maria Robinson, DPC Board Member I’ve lived with kidney disease for most of my life. Nearly 30 years ago, I began my dialysis journey. Like so many patients, I was not fully prepared for such drastic change. I had to give up my dream job in order to take care of myself. I felt like I was losing the life I had worked so hard to build. Yet, over time, I realized that kidney failure was not the end of my life, but rather the beginning of a new one. It’s one filled with challenges, yes, but also filled [...]
Hannah Bracamonte2025-10-10T15:01:20-04:00October 1st, 2025|Categories: Dialysis, Kidney Transplant, Support, The Kidney Citizen, Treatment|
Adam Goldstein, DPC Board Member When I was 19, I had my whole life planned out, but cancer had other plans. I survived, but not unscathed. The chemotherapy that saved my life also damaged my kidneys. I was diagnosed with kidney failure and began dialysis soon after. For years, I was determined to push forward and live “normally.” I got a transplant. It gave me back a sense of independence, a sense that maybe life would stop orbiting around hospitals and lab results. But as many of you know, a transplant isn’t always a cure. Mine eventually failed. And [...]
Hannah Bracamonte2025-10-10T14:57:01-04:00October 1st, 2025|Categories: Dialysis, Immunizations, Lifestyle, Medication, Mental Health, Nutrition, Physical Health, Quality of Life, Staying Healthy, The Kidney Citizen|
Velma Scantlebury MD, FACS, GCM, DPC Education Center Health Care Consultant In the United States, there are over 35 million persons who have chronic kidney disease, which accounts for one in every seven adults. Unfortunately, many millions also have chronic kidney disease and are not aware of the diagnosis. However, having chronic kidney disease may mean having to alter some of your lifestyle habits to protect your kidney function, but many of us must make sacrifices to stay healthy: limiting fats and high calorie drinks, increasing vegetables and healthy greens, and engaging in regular physical activity. However, with hypertension [...]
Hannah Bracamonte2025-10-10T14:51:48-04:00October 1st, 2025|Categories: Costs for Treatment, Dialysis, Kidney Transplant, Resources, The Kidney Citizen|
Elizabeth Lively, DPC Eastern Region Advocacy Director Pamela Zielske, DPC Western Region Advocacy Director DPC achieved key state wins for ESRD patients as several states passed Medigap premium protections during the 2025 session, with legislation in additional states still in play. In addition, several states passed “birthday rule” bills, which aim to allow more flexibility and patient choice for individuals with Medicare Supplement plans by providing a window for Medigap enrollees to change their plans without medical underwriting. As insurers price their plans differently, enrollees may find a more affordable premium for the same plan from a [...]
Hannah Bracamonte2025-10-10T14:28:38-04:00October 1st, 2025|Categories: Dialysis, Lifestyle, Mental Health, Nutrition, Physical Health, Quality of Life, The Kidney Citizen|
Quiana Bishop, DPC Board President When my father was diagnosed with End-Stage Renal Disease (ESRD), our family stepped into unfamiliar territory. We didn't know what it meant, how to help, or even what questions to ask. We learned fast – but we learned through fear, frustration, and love. Today, I share our journey not just to honor him, but to help others avoid that helplessness and find hope sooner. My mother became the caregiver overnight. One minute she was his partner; the next, she was managing medications, appointments, and emotions that none of us had language for. The strength [...]
Hannah Bracamonte2025-10-10T14:09:18-04:00October 1st, 2025|Categories: Dialysis, Kidney Transplant, Lifestyle, Mental Health, Physical Health, Quality of Life, Staying Healthy, The Kidney Citizen, Treatment|
Adrian Miller, DPC Board Member Thirteen years ago, I thought my story was over before it really began. I was walking with my brother on Super Bowl Sunday in February 2012, following our tradition of visiting neighborhood bars before heading to our parents' house. But that day, I couldn't even make it a block without stopping to catch my breath. I was gasping for air like I'd just run a marathon. Deep down, I knew something was seriously wrong. The next morning, I asked my sister to take me to the emergency room. When they checked my blood pressure [...]
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