Advance Care Planning

2020-04-27T21:22:04-04:00March 15th, 2019|Categories: Diagnosis of Kidney Disease, Lifestyle, The Kidney Citizen|Tags: |

By David Mahoney, MD As a member of Dialysis Patient Citizens, you have chosen to become involved, speak up for what is important to you and take charge of the management of your health. Dialysis modality, diet, medications, exercise, management of your other health-related issues, all require your informed decision-making and action. But despite this high level of involvement in their health care, few dialysis patients have addressed the issue of advance care planning. “I don’t want to talk about that now.” “That’s for sick people, and I am doing well.” “That really scares me.” “I am NOT ready to talk [...]

Insights from the Dialysis Patient Citizens 2018 Patient Survey: Patients’ Priorities for Quality Measures and New Innovations in ESRD Care

2020-04-27T21:22:04-04:00March 11th, 2019|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, The Kidney Citizen|

By Jackson Williams, Director of Regulatory Affairs and General Counsel, Dialysis Patient Citizens Dialysis Patient Citizens (DPC) thanks everyone who completed its 2018 Patient Survey. It is another way to make your voices heard. We use our patient survey to get your input on current issues and to convey your opinions to policymakers in Washington, DC. This year, our survey included questions on two recent developments in Washington: Medicare’s “Meaningful Measures” Initiative: In early 2018, Medicare officials announced plans to reduce the number of quality measures it uses to hold health care providers accountable. This meant that for dialysis care, the [...]

Growing Up On Dialysis

2020-04-27T21:22:05-04:00February 25th, 2019|Categories: Lifestyle, Pediatric Kidney Disease, The Kidney Citizen|Tags: |

By Julie Crandall, CBCS, CMAA, Patient Ambassador, DPC Education Center Board Member How was it to grow up with end-stage renal disease (ESRD)? Since I didn’t know any other way; for me, it was normal. I can tell you that in my case, my family was the most important people that helped me navigate childhood. It helped that they didn’t treat me like the ‘sick kid’ of the family; I was a daughter and a little sister. I didn’t know what to focus on for this article. It was difficult to narrow down my childhood with ESRD and dialysis to write [...]

Work Those Kidneys Out!

2020-04-27T21:22:05-04:00February 23rd, 2019|Categories: Early Intervention, Fact Sheet, Lifestyle, Physical Health, The Kidney Citizen|

By Collette Powers, MA, RDN, LDN, ACSM EP-C We have all heard it, and we all know it. We have been told from our doctor, a friend or a loved one. Whether it is for controlling high cholesterol, managing weight, reducing blood sugar or keeping our bodies healthy overall, we have all been told at some point we should exercise. But did you know exercise may help protect your kidneys too? Fatigue is a common struggle that many patients with chronic kidney disease (CKD) face. When we are tired, our instinct is to rest. However, over time, that “rest” can [...]

2018 Midterm Election Wrap-Up

2020-04-27T21:22:57-04:00February 22nd, 2019|Categories: The Kidney Citizen, Uncategorized|

By Megan Hashbarger, Director of Congressional and State Relations, Dialysis Patient Citizens This past November, America held its 2018 midterm elections. We call it a midterm election because it is held between the four-year cycle of Presidential elections and is often seen as a reflection of the country’s temperament towards the President’s agenda. This cycle saw big wins for Democrats but also some solid victories for Republicans. While Democrats picked up over 40 seats and retook the majority in the House, Republicans held on to and increased their majority in the Senate. The only thing clear now is that for at [...]

The Sweetest Taboo

2020-04-27T21:24:20-04:00May 3rd, 2018|Categories: Sex and Intimacy, The Kidney Citizen|

By Charissa Rice Shhh…not so loud. This is a topic or subject that not too many want to talk about. That’s funny because most of us spend a lifetime trying to do it. So why is sex and anything pertaining to it so taboo? I guess as a patient with a chronic illness that should be the last thing on my mind. I can remember when visiting my many doctors, hearing them discuss different symptoms and what I might expect with my many illnesses. I have lupus and also kidney failure. There are a lot of things that can cause my [...]

The Kidney Citizen Issue 8

2020-04-27T21:24:20-04:00May 1st, 2018|Categories: The Kidney Citizen, The Kidney Citizen (Back Issue), The Kidney Citizen (Issue)|

In this Issue: Dialysis Patients Secure Access to Life Saving Care Why Advocate? Going Home Beginning the Dialysis Adventure Staying Safe from Violence at Dialysis Finding Answers Through Research Living Well on Dialysis When a Kidney Transplant Fails Choosing a Partner with Kidney Disease The Sweetest Taboo Put Out the Fire! Simple Strategies to Reduce Chronic Inflammation Download PDF President's Message Dear friends, As I watch the change of seasons from winter to spring, I also see some exciting things in store for our membership. We still have our two Facebook pages, one [...]

Clinical Research 101: Participating in a Trial

2020-08-18T12:23:52-04:00November 7th, 2017|Categories: Fact Sheet, The Kidney Citizen, Treatment|

EN ESPAÑOL By Kurt Mussina, MBA, Frenova Renal Research What Is Clinical Research? Long before a medicine is approved by the U.S. Food and Drug Administration and put on the market, it undergoes rigorous testing to ensure it is safe and effective — a process that can take many years. Testing new and/or already approved medicines in people is what we call clinical research. Although there are many different types of clinical trials, I am focusing here on the clinical development and approval process for drugs and devices, in particular. Clinical research is vital to finding ways to improve quality [...]

When You Have Lost That Loving Feeling: Sex and Intimacy on Dialysis

2020-04-27T21:25:46-04:00November 3rd, 2017|Categories: Sex and Intimacy, The Kidney Citizen|

By Erich Ditschman “Well, hello, Mr. Ditschman. How is your sex life?” This is one greeting I have never heard in my dialysis clinic. Okay, well maybe by Michael in the waiting room. And yes, I did blush. But, I never heard this once from my doctor, nurse, dietitian or social worker. In my 17-years on dialysis, sex has not been that big of a concern for my medical team, certainly not as big as keeping me alive. If you check out your dialysis clinic’s website, you will probably find a link near the bottom of the page to a “Sexuality [...]

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