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Finding My Path Through Treatment Options

2026-01-09T13:00:21-05:00January 5th, 2026|Categories: Dialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Quality of Life, Support, The Kidney Citizen, Treatment|

Cheri Rodriguez Jones, DPC Board Secretary I was seven years old when doctors diagnosed me with a rare kidney disease. The 1980s and 90s didn't offer much in terms of treatment – just managing symptoms and preserving kidney function as long as possible. Hospital visits became routine. At 19, after some tests, my doctor called with surprising news: "You need to start dialysis." While unexpected, I'd always known dialysis was coming eventually. By then I was already a mother to my infant son. Discovering What Worked for Me The medical team recommended peritoneal dialysis so I could do [...]

The Holidays!!!

2025-12-08T10:42:53-05:00December 8th, 2025|Categories: Lifestyle, Mental Health, Nutrition, Physical Health, Quality of Life, Staying Healthy, Stress Management|

The holidays are here! Let us not forget that the holidays are not always joyous for everyone, especially those with chronic diseases. Holiday events tend to focus on food and often food that is not renal friendly. Research foods that still taste good but are also good for you! Get plenty of rest and watch your fluids. You can still have fun but just be mindful so that you can enjoy the holidays because of being compliant. On another note, some individuals may be sad for many reasons—lack of support, loss of a loved one, finances, not feeling well most of [...]

National Diabetes Month

2025-11-12T13:04:08-05:00November 3rd, 2025|Categories: eNews, Physical Health, Staying Healthy|

November is National Diabetes Month. This is a time when it is necessary to focus on prevention, awareness and management. Most are aware that diabetes and hypertension are the number two risk factors for kidney disease. Not all patients with kidney disease have diabetes or hypertension but some have both. Educate yourself about diabetes—know the risk factors, your family history, exercise and eat healthy. Diabetes can be fatal but it can also be managed. It is always advisable to consult with a physician. There are numerous findings that children with diabetes should be genetically tested because in some cases, diabetes [...]

How Are You?

2025-10-08T14:02:24-04:00October 8th, 2025|Categories: eNews, Mental Health, Physical Health, Quality of Life, Staying Healthy, Stress Management|

How are you? The usual answers are: “I am okay” or “I am fine”. But, how are you really doing? Are you sad? Are you afraid? Are you depressed? Are you feeling anxious? Are you angry? Are you happy? Let us focus on emotional well-being. What is emotional well-being? Many scholars believe that emotional well-being refers to a state of mental health characterized by positive emotions, resilience, and the ability to manage one’s thoughts and feelings in a healthy way. In other words, try to focus more on the positive and less on the negative. Negative thoughts and emotions can affect [...]

DPC Advocacy Day 2025: When Patients Lead, Policy Listens

2025-10-10T15:58:59-04:00October 1st, 2025|Categories: Quality of Life, Resources, Staying Healthy, The Kidney Citizen, Treatment|

Yolonda Brisbane, DPC Grassroots Manager From July 12–15, 2025, the nation’s capital was infused with a powerful sense of purpose and unity as Dialysis Patient Citizens (DPC) welcomed 36 extraordinary Patient Ambassadors—dialysis patients, transplant recipients, and family members of those living with or lost to End Stage Renal Disease (ESRD)—to Washington, D.C. for our Annual Congressional Advocacy Day. Our time together began with preparation and purpose. Patient Ambassadors entered a space of belonging that offered state-of-the-art meeting rooms and delicious kidney-friendly meals—nourishing both body and spirit. This setting became the heart of meaningful conversations, new friendships, and genuine camaraderie. [...]

From Flatline to Front Lines: A Dialysis Warrior’s Fight for Every Patient’s Future

2025-10-10T15:18:18-04:00October 1st, 2025|Categories: Dialysis, Quality of Life, Support, The Kidney Citizen|

Arthur Hill, DPC Board Member “When Death Couldn't Stop Me, I Knew I Had Work to Do” When I first learned I had Goodpasture's disease – a rare condition that would forever change my life – I had no idea I was about to embark on a journey that would reveal depths of strength I never knew I possessed. September 2010 marked the beginning of what I now call my awakening. Despite feeling unwell, I pushed forward with determination, traveling to Mississippi for work. My body was sending me urgent signals, but I was too focused on my responsibilities [...]

Choosing Life: My Journey with Kidney Disease

2025-10-10T15:14:07-04:00October 1st, 2025|Categories: Dialysis, Mental Health, Quality of Life, Support, The Kidney Citizen|

Maria Robinson, DPC Board Member I’ve lived with kidney disease for most of my life. Nearly 30 years ago, I began my dialysis journey. Like so many patients, I was not fully prepared for such drastic change. I had to give up my dream job in order to take care of myself. I felt like I was losing the life I had worked so hard to build. Yet, over time, I realized that kidney failure was not the end of my life, but rather the beginning of a new one. It’s one filled with challenges, yes, but also filled [...]

Living Well with Kidney Disease

2025-10-10T14:57:01-04:00October 1st, 2025|Categories: Dialysis, Immunizations, Lifestyle, Medication, Mental Health, Nutrition, Physical Health, Quality of Life, Staying Healthy, The Kidney Citizen|

Velma Scantlebury MD, FACS, GCM, DPC Education Center Health Care Consultant In the United States, there are over 35 million persons who have chronic kidney disease, which accounts for one in every seven adults. Unfortunately, many millions also have chronic kidney disease and are not aware of the diagnosis. However, having chronic kidney disease may mean having to alter some of your lifestyle habits to protect your kidney function, but many of us must make sacrifices to stay healthy: limiting fats and high calorie drinks, increasing vegetables and healthy greens, and engaging in regular physical activity. However, with hypertension [...]

Empowerment in My Voice

2025-10-10T14:28:38-04:00October 1st, 2025|Categories: Dialysis, Lifestyle, Mental Health, Nutrition, Physical Health, Quality of Life, The Kidney Citizen|

Quiana Bishop, DPC Board President When my father was diagnosed with End-Stage Renal Disease (ESRD), our family stepped into unfamiliar territory. We didn't know what it meant, how to help, or even what questions to ask. We learned fast – but we learned through fear, frustration, and love. Today, I share our journey not just to honor him, but to help others avoid that helplessness and find hope sooner. My mother became the caregiver overnight. One minute she was his partner; the next, she was managing medications, appointments, and emotions that none of us had language for. The strength [...]

One Day at a Time: Life Beyond Kidney Failure

2025-10-10T14:09:18-04:00October 1st, 2025|Categories: Dialysis, Kidney Transplant, Lifestyle, Mental Health, Physical Health, Quality of Life, Staying Healthy, The Kidney Citizen, Treatment|

Adrian Miller, DPC Board Member Thirteen years ago, I thought my story was over before it really began. I was walking with my brother on Super Bowl Sunday in February 2012, following our tradition of visiting neighborhood bars before heading to our parents' house. But that day, I couldn't even make it a block without stopping to catch my breath. I was gasping for air like I'd just run a marathon. Deep down, I knew something was seriously wrong. The next morning, I asked my sister to take me to the emergency room. When they checked my blood pressure [...]

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