About Hannah Bracamonte

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So far Hannah Bracamonte has created 529 blog entries.

The Making of An Advocate

2024-03-28T20:57:25-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Medication, Mental Health, Support, The Kidney Citizen, Treatment|

Gene Blankenship, DPC Board of Directors Thinking about Life Sitting in my recliner watching the leaves fall like big fat orange snowflakes, I see the trees begin to change colors. My immediate first thought is “How many more seasons of change will I see? Is this my last fall”? Polycystic Kidney Disease (PKD) is a constant passenger in my life. Anytime you have a passenger with you for long periods of time, you will go through events together that stamp your life. For example, as a child, I watched Eugene Taylor Jr., my dad, hook himself up every [...]

Spring 2023 State Advocacy Update

2024-03-28T20:57:26-04:00June 14th, 2023|Categories: Costs for Treatment, Resources, The Kidney Citizen|

Elizabeth Lively, DPC Eastern Region Advocacy Director Pamela Zielske, DPC Western Region Advocacy Director The 2023 legislative session has been a busy and productive one for DPC’s state advocacy efforts. Bills impacting dialysis patients have been introduced in multiple state legislatures and in most cases have moved quickly through the legislative process. Improving access to Medigap coverage is a top priority for DPC, and we are thrilled that legislation was introduced in multiple states this session to expand Medigap access to patients under the age of 65. Last month, DPC celebrated Governor Glenn Youngkin's (R) signing [...]

For Mike Guffey, Working Was Key to Staying Positive

2024-03-28T20:57:27-04:00June 14th, 2023|Categories: Diagnosis of Kidney Disease, Dialysis, Employment, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Mental Health, Quality of Life, The Kidney Citizen|

Mike Guffey When Mike Guffey began dialysis treatments in 2008, one of his top priorities was to ensure he had a reason to keep moving forward, something to look forward to when he got out of bed which would allow him to push through his treatment regimen. For him, that meant returning to work as quickly as he could after starting his treatments, especially given how quickly he crashed into life on dialysis. Normally based in Kansas City, Mike was working temporarily as a project manager in Colorado when he noticed something was off. He went to the [...]

Black and Hispanic Patients on Dialysis Have Higher Rates of Staph Bloodstream Infections

2024-03-28T20:57:27-04:00June 14th, 2023|Categories: Diagnosis of Kidney Disease, Dialysis, Early Intervention, Stages of Kidney Disease, Staying Healthy, The Kidney Citizen|

Actions to Reduce Inequities Can Save Lives CDC Newsroom Media Statement – Originally published February 6, 2023 Contact: Media Relations, (404) 639-3286 Adults on dialysis treatment for end-stage kidney disease were 100 times more likely to have a Staphylococcus aureus (staph) bloodstream infection than adults not on dialysis during 2017–2020, according to a new Vital Signs report released today by the Centers for Disease Control and Prevention (CDC). More than half of people in the U.S. receiving dialysis belong to a racial or ethnic minority group—about 1 in every 3 people receiving dialysis is Black and 1 in every 5 [...]

8 Ways to Be a Safe Patient

2024-03-28T20:57:28-04:00June 14th, 2023|Categories: Immunizations, Medication, Physical Health, Resources, Staying Healthy, The Kidney Citizen|

When you have surgery, receive dialysis, or visit your doctor, you deserve safe care. Everyone plays a role in patient safety and quality health care. CDC and its partners provide expertise, data, and programs for safe health care to support public health, healthcare workers, patients, and caregivers. How Can I Be a Safe Patient? Speak up. Talk to your healthcare provider about any questions or worries. Ask what they’re doing to protect you from infections. Keep hands clean. Make sure everyone, including friends and family, cleans their hands before touching you. If you don’t see your healthcare providers clean their [...]

Ask the Doctor

2024-03-28T20:57:29-04:00June 14th, 2023|Categories: Costs for Treatment, Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Medication, The Kidney Citizen|

Velma Scantlebury, MD, DPC Education Center Health Care Consultant 1. Four hours is too long for me to sit in dialysis. Do I have to attend every treatment? Answer: Think of dialysis as being the only way to get the toxins out of your body from the food that you consume everyday - three times a day. When you lose kidney function and are on dialysis, you are usually then only cleansing your body every other day. Those toxins will build up and can cause your body to deteriorate over time. Missing dialysis is harmful to your body. [...]

The DPC Education Center is Pleased to Welcome Velma Scantlebury, MD, to the Team!

2024-03-28T20:57:30-04:00June 14th, 2023|Categories: Staying Healthy, The Kidney Citizen, Treatment|

Velma Scantlebury, MD, the first African-American female transplant surgeon in the United States, has joined Dialysis Patient Citizens as a healthcare consultant. Dr. Scantlebury served as a kidney surgeon for over 30 years, dedicating her life’s work to educating and raising awareness for the health disparities people in the Black community face from kidney disease. Born in Barbados, Dr. Scantlebury’s family moved to New York City when she was 15. She attended Long Island University on a full academic scholarship, obtaining a biology degree with a pre-med focus. Dr. Scantlebury then earned her medical degree from Columbia University, completed her [...]

A Step Forward: Inhibiting APOL1 (Gene) to Treat Kidney Disease

2024-03-28T20:57:32-04:00June 5th, 2023|Categories: Early Intervention, eNews, Medication|

By V. Scantlebury, MD, FACS, DPC Education Center Healthcare Consultant A recent article in the New England Journal of Medicine by Egbuna and colleagues (1) reported that in a small study, patients with focal segmental glomerulosclerosis (FSGS) who are homozygous for the variants in the gene encoding apolipoprotein L1 (APOL1) when treated with the drug Inaxaplin, (which inhibits APOL1 function) demonstrated significantly reduced protein excretion. Inaxaplin is the first investigational therapy that is directed at treating  APOL1-mediated kidney disease. Why is this significant? There is a disproportionate burden of chronic kidney disease in persons of African ancestry. FSGS and other [...]

Recipe of the Month: Kidney Friendly Honey-Garlic Kebabs

2024-03-28T20:57:33-04:00June 1st, 2023|Categories: eNews, Nutrition, Recipe of the Month, Recipes, Staying Healthy|

Get a brand new, kidney-friendly recipe* delivered to your inbox each month, courtesy of Jessianna Saville, MS, RDN, CSR, LD, CLT, a member of the Ed Center Advisory Council and Founder & CEO of the Kidney Nutrition Institute. Fire up that grill! Our June recipe is: Kidney Friendly Honey-Garlic Kebabs. Ingredients Makes 15 servings Marinade: 1/4 c olive oil 1/3 c honey 1/4 c Bragg's Liquid Aminos 1/4 tsp black pepper 3 garlic cloves crushed Kebabs: 4 medium chicken breasts 4 small onions 3 medium bell peppers Instructions Mix all marinade ingredients together in a plastic bag. Add chicken (or prepared kebabs) [...]

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