Inside this issue you will find information about one of the rare diseases that can cause kidney disease, Fabry. You’ll also find information about getting through the holidays and patient advocacy.

In this Issue:

  • Kidney Patients Seek Information About Fabry Disease
  • My Journey with Fabry Disease and Kidney Disease
  • Your Life-Your Choice! Learn how you can have the best possible life on dialysis
  • If You Really Want to Feel Better
  • A Call to Action: The End of the Word “Diet”
  • Living Well with Dialysis: Gett­ing the News
  • Be Safe: Prevent Bloodstream Infections
  • The Benefits of Patient Advocacy: A look into DPC’s Patient Ambassador Program
  • Celebrating Special Days or Holidays

President’s Message

Dear friends,

On behalf of the Dialysis Patient Citizens (DPC) Education Center Board of Directors, staff­ and volunteers, I want to thank you and all of our donors for your continued involvement and support. This past year was a busy year at the DPC Education Center. We improved access to patient-driven education materials, provided additional resources and trainings for patients to become more active in their care, and collaborated with multiple partners to bring the best ideas to the table to advance patient care.

Our work is far from over. As a kidney failure patient, I understand the challenges that kidney patients continue to face in caring for their health and having access to accurate and empowering educational information. In 2017, we plan to: create new opportunities for patients to support one another in their care, add new interactive resources to our website, produce more educational resources in Spanish, and work even harder to reach renal patients in support of their efforts to delay and potentially prevent kidney failure.

Our organization cannot continue its mission and serve kidney disease patients like you without the strong support of the kidney community. We need your continued assistance to carry out and fulfill our mission. One way you can help is to mail in a contribution in the enclosed envelope. Your donation will go directly towards helping us increase public awareness to prevent and delay the progression of kidney disease. We greatly appreciate each contribution no matter how small to help us achieve our goal.

I hope I can count on your support as we work together to improve the quality of life for all kidney disease patients.

Nancy L. Scott
DPC Education Center
Board President