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Participating in a Clinical Trial

2024-03-28T20:59:56-04:00August 21st, 2020|Categories: Additional Resources, Early Intervention, eNews, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Treatment, Webinar|

New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or product before it becomes available on the market. This phase of research is called a clinical trial or a clinical research project. People can volunteer to be part of a clinical trial if they meet the specific requirements for the study. You might consider participating in the research process for many reasons including if it has a personal meaning for you or if you want to [...]

Guide for Submitting Emergency Grants

2024-03-28T20:59:59-04:00August 5th, 2020|Categories: Costs for Treatment, eNews, Stress Management, Support|

Emergency grants can help cover costs for transportation, medication, rent and food when someone is sick. This one-page guide will help you better understand the submission process with a summary of searching, preparing, applying and tracking grants. Included is a list of documents you may be asked to submit with your grant request. Reach out to your social worker if you need help. Check out the guide.

Understanding Chronic Pain and Depression

2024-03-28T21:00:02-04:00July 13th, 2020|Categories: Fact Sheet, Mental Health, Physical Health, The Kidney Citizen|

How Chronic Pain Can Impact Your Mental Health When You Have Kidney Disease By Hannah Calkins Chronic pain and depression are closely linked and because as many as 60 percent of hemodialysis patients report moderate to severe chronic pain, it’s likely that many of them have experienced depression—or are at risk for it. But it may not look or feel the way you expect, according to psychologist Robert Kerns, PhD. “Depression among people with chronic pain may not be experienced as profound sadness,” says Kerns, a professor of psychiatry, neurology and psychology at Yale University. “Other symptoms may be more likely [...]

4 Cereales integrales para incorporar en tu alimentación

2024-03-28T21:00:05-04:00June 22nd, 2020|Categories: Spanish Materials, The Kidney Citizen|

Por María Eugenia Rodríguez León, MS, RD, CSR, LND, Nutricionista Dietista Licenciada https://menutritionpr.com Una de las recomendaciones para llevar una alimentación saludable es que la mitad de los cereales y farináceos que comemos sean integrales. Se ha demostrado que los cereales y farináceos integrales ayudan en la prevención de algunas enfermedades (ej. diabetes, cáncer, alta presión y enfermedades cardiovasculares).1 Un grano integral tiene las tres partes originales de la semilla: salvado, germen y endospermo.2 Salvado: es la parte comestible del exterior de la semilla. Contiene antioxidantes, vitaminas del complejo B y fibra. Germen: es el embrión de la semilla. Es [...]

4 Whole Grains to Add to Your Diet

2024-03-28T21:00:06-04:00June 22nd, 2020|Categories: Fact Sheet, Nutrition, The Kidney Citizen|

By María Eugenia Rodríguez León, MS, RD, CSR, LND, Registered Dietitian Nutritionist https://menutritionpr.com One of the recommendations given for following a healthy diet is choosing half of your daily grains as whole grains. Whole grains can help in preventing some diseases (e.g., diabetes, cancer, high blood pressure and heart disease).1 A whole grain has the three original parts of the seed: bran, germ and endosperm.2 Bran is the edible part surrounding the seed. It contains antioxidants, B vitamins and fiber. Germ is the seed embryo. It is the part that has the potential to become a new plant. It contains [...]

Spoon-Saving Strategies

2024-03-28T21:00:07-04:00June 15th, 2020|Categories: Fact Sheet, Lifestyle, Physical Health, Stress Management, The Kidney Citizen|

By Sara Naveed Raise your hand if getting out of bed feels like an accomplishment to you, if you have ever felt the need to nap after taking a shower or if being tired feels like it's a part of your personality now! How about constantly finding yourself in a push/crash cycle—pushing way past your limit one day and then paying the price for it in the form of heightened symptoms and having to rest several days in order to recover? Don't worry—you're not the only one! We currently live in an era where we are constantly fed the narrative that [...]

Managing Chronic Pain in Dialysis Patients

2024-03-28T21:00:08-04:00June 8th, 2020|Categories: Fact Sheet, Mental Health, Music, Physical Health, Stress Management, The Kidney Citizen|

By Amanda Nelli, MD and Padma Gulur, MD Pain is a complex symptom and a common concern for all patients with a chronic illness. In particular, end-stage renal disease (ESRD) poses unique challenges. It has been found that 37-50 percent of patients with ESRD on hemodialysis experience chronic pain, and more than 80 percent of these patients experience moderate to severe pain.1 Pain in dialysis patients often goes undertreated, which may be because it is often caused by multiple problems. The pain experienced in dialysis patients is often a combination of physical, social and psychological influences.2 There are multiple medical [...]

Are You Scared or Anxious about COVID-19?

2024-03-28T21:00:09-04:00June 2nd, 2020|Categories: eNews, Lifestyle, Mental Health, Support|Tags: |

Updated September 10, 2020 We are living in a time of uncertainty with the COVID-19 pandemic, which can lead to stress, fear, depression, and anxiety. We may feel overwhelmed at times and bored at other times. We may be at a loss for how to cope with social distancing, not seeing friends and family, and the possibility of getting sick. If you are a dialysis patient, receiving treatment either in-center or at home, your facility social worker is a great resource for you. Or, if you are a transplant patient, you can talk to your transplant social worker for support. [...]

COVID-19 Resources for Dialysis Patients

2024-03-28T21:00:23-04:00March 31st, 2020|Categories: Additional Resources, Employment, eNews, Fact Sheet, In-Center Hemodialysis, Lifestyle, Nutrition, Stress Management|Tags: |

Updated May 6, 2020 Earlier this month the President signed the “Families First Coronavirus Response Act,” which is a bill that will increase funding to several federal programs in response to the COVID-19 viral outbreak. The bill aids Americans in the areas of healthcare (including COVID-19 testing), nutrition, paid sick leave, unemployment, family and medical leave, and more. Below is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying [...]

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