When Your Child Is Diagnosed with Kidney Disease: Tips on How to Cope

2024-03-28T20:59:42-04:00January 3rd, 2019|Categories: eNews, Fact Sheet, Pediatric Kidney Disease|

By Elizabeth Lewan, Communications & Grassroots Program Coordinator at the American Psychological Association Parents want to make sure their child has a healthy and happy life, but sometimes a health complication can change things. Having a child diagnosed with pediatric chronic kidney disease (CKD) can leave parents feeling overwhelmed, anxious and scared for their child’s overall well-being, especially in the beginning. However, you can play an active role in your child’s care and treatment by providing the emotional support he/she needs and educating yourself about kidney disease and its treatments. Below are some tips that parents and caregivers may find helpful [...]

Don’t Make New Year Resolutions! Six Happiness Habits

2024-03-28T20:59:42-04:00January 1st, 2019|Categories: Fact Sheet, Humor and Laughter, Webinar|Tags: |

Most people make and break resolutions every year. 80% of people fail New Year Resolutions by February. Learn happiness habits instead that can change your attitude and your health on a daily basis. About the Presenter:  Steve Wilson, a member of the DPC Education Center Advisory Council, is an author, psychologist, trainer and business consultant. He is also the founder of the World Laughter Tour, which trains people in laughter therapy across the country as it promotes health, happiness, and peace.  

25 Ways to Find Joy and Balance During the Holidays

2024-03-28T20:59:45-04:00December 1st, 2018|Categories: Blog, Fact Sheet, Mental Health, Stress Management|

By Steve Wilson (download PDF) Feeling down during the holidays can be tough, especially since you seem so out of step with the world. Everyone else seems to be beaming, ruddy-cheeked, bursting with holiday spirit. You’re feeling wretched and exhausted. But here’s something to cheer you up the next time you’re stuck in a room of revelers at a holiday party. Plenty of them are probably unhappy, too. Recommendations Related to Depression Are You at Risk for Depression? Knowing what factors increase your risk of having major depression may help you get the best medical help when you need it. Depression [...]

Communicating with your Healthcare Team: Top Tips to Partner with Professionals!

2024-03-28T21:00:02-04:00September 29th, 2018|Categories: eNews, Fact Sheet, Support, What Is Kidney Disease|

By Edward Leigh, MA and Steve Wilson, MA If you missed this month’s webinar on How to Talk Effectively with your Health Care Team, the recording is now available! In addition, below is a handout to accompany the presentation. Medical Resume This is a 1 - 2-page document summarizing all your pertinent medical information, including all the items listed below. Have this resume in an electronic file so you can easily update the document. List of all your medications, including names, dosages, and how often they are taken. Be sure to include vitamins / herbs, ear / eye drops, medications put [...]

An Important Conversation: How to Talk Effectively with your Health Care Team – Recording and Slides

2024-03-28T21:00:03-04:00September 28th, 2018|Categories: eNews, Fact Sheet, Webinar, What Is Kidney Disease|

If you were unable to attend this week's education seminar, the recording is now available! Please see the video and presentation links below for details. We want to keep getting better. Please help us by sharing your comments and suggestions here:Webinar Review View the Recording: Download the slides. Download the 2-page summary handout.

InvestigaciĂ³n ClĂ­nica 101: Participar en un Ensayo

2024-03-28T21:00:50-04:00November 7th, 2017|Categories: Spanish Materials|

English Version Escrito por Kurt Mussina, MBA, InvestigaciĂ³n Renal Frenova ¿QuĂ© es la investigaciĂ³n clĂ­nica? Mucho antes de que un medicamento sea aprobado por la AdministraciĂ³n de Alimentos y Medicamentos de EE. UU. Y puesto en el mercado, se somete a pruebas rigurosas para garantizar que sea seguro y efectivo, un proceso que puede llevar muchos años. Probar medicamentos nuevos y / o ya aprobados en personas es lo que llamamos investigaciĂ³n clĂ­nica. Aunque hay muchos tipos diferentes de ensayos clĂ­nicos, me estoy centrando aquĂ­ en el desarrollo clĂ­nico y el proceso de aprobaciĂ³n de medicamentos y dispositivos, en particular. [...]

Clinical Research 101: Participating in a Trial

2024-03-28T21:00:51-04:00November 7th, 2017|Categories: Fact Sheet, The Kidney Citizen, Treatment|

EN ESPAÑOL By Kurt Mussina, MBA, Frenova Renal Research What Is Clinical Research? Long before a medicine is approved by the U.S. Food and Drug Administration and put on the market, it undergoes rigorous testing to ensure it is safe and effective — a process that can take many years. Testing new and/or already approved medicines in people is what we call clinical research. Although there are many different types of clinical trials, I am focusing here on the clinical development and approval process for drugs and devices, in particular. Clinical research is vital to finding ways to improve quality [...]

The Waiting Game: How to Endure the Transplant Wait List

2024-03-28T21:01:08-04:00September 1st, 2017|Categories: Fact Sheet, Kidney Transplant, Mental Health, Stress Management, Support, The Kidney Citizen|

By Kirsten Weir If you are on the organ transplant waiting list (or hoping to be listed soon), you have probably experienced all kinds of emotions: Excitement, nervousness, anxiety, fear, joy, guilt. Maybe all in one day! The average time spent on the waiting list for a kidney varies from region to region. But for most patients, that wait is measured in years, not months. As the years go by, some people go about their daily lives and forget they are waiting for a life-changing call. Others feel mounting anxiety and hopelessness. All of those feelings are completely normal, says Heather [...]

Living Well on Dialysis

2024-03-28T21:02:04-04:00May 6th, 2016|Categories: eNews, Fact Sheet, Lifestyle, Mental Health, Stress Management|

If you receive dialysis treatments for kidney disease, you probably spend a lot of time focused on your physical health. That’s important -- but so, too, is your mental and emotional well-being. Dialysis is life-saving, but it’s also life-changing. Still, by taking charge of your emotional health -- and accepting help when you need it -- you can live a rewarding life on dialysis. Rollercoaster Emotions Dialysis requires significant time and effort. In addition to the considerable time spent traveling to and from appointments and receiving treatment itself, people receiving dialysis must carefully monitor their diet and fluid intake. It’s [...]

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