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Why Medicare’s Payment System Keeps New Dialysis Drugs from Reaching Patients

2025-05-07T13:39:04-04:00May 7th, 2025|Categories: Costs for Treatment, Dialysis, Kidney Transplant, Medication, Quality of Life, Staying Healthy, The Kidney Citizen|

Jackson Williams, DPC Vice President of Public Policy Payment bundling is a technique Medicare uses to increase efficiency and reduce low-value care during a treatment episode. Congress adopted a payment bundle for dialysis a decade ago and for several years it worked well. But trade-offs are inherent in bundles and there is always potential for a negative impact on consumers. This negative experience has arrived for dialysis patients in the form of non—prescribing of new drugs. Patients are missing out on improvements to their health and quality of life. A bundled payment sets a maximum price for all [...]

A Faithful Kidney Patient Caregiver’s Journey

2025-05-07T13:34:15-04:00May 7th, 2025|Categories: Dialysis, Kidney Transplant, Quality of Life, Staying Healthy, The Kidney Citizen|

Sheree Stephens, DPC Patient Ambassador I would describe being a kidney patient caregiver to my husband as inspiring, beautiful, and life changing. Ken has fought kidney failure for years, and I’ve stood beside him every step of the way. The journey can be, at times, stressful and tiring but with strong communication and a strong relationship with God, the journey is not nearly as overwhelming. When we met in 2010, he told me upfront his kidneys were failing. I heard him, but love doesn’t calculate risks. We built a life together, knowing challenges would come. In 2016, they [...]

Preventing Infections in Hemodialysis

2025-05-07T13:31:24-04:00May 7th, 2025|Categories: Dialysis, Kidney Transplant, Lifestyle, Physical Health, Quality of Life, Staying Healthy, Treatment|

Dr. Anil Agarwal, Nephrologist For patients undergoing hemodialysis, infection prevention is not just a recommendation, it’s a necessity. Hemodialysis patients have a compromised immune system and face a heightened risk of infections, which can affect their lives in a multitude of ways. Many suffer from bloodstream infections, which can lead to hospitalization and even life-threatening complications like sepsis. Catheter-related infections and skin infections near the vascular access site, also quite common, can put patients in the hospital as well. Any of these infections can delay hemodialysis patients’ upcoming kidney transplant. Luckily, with education and vigilance, patients can use [...]

The Importance of Immunizations for People with Kidney Disease

2025-05-07T13:28:03-04:00May 7th, 2025|Categories: Dialysis, Immunizations, Kidney Transplant, Physical Health, Quality of Life, Staying Healthy, The Kidney Citizen|

Rebecca Schmidt, DO Jeffrey Silberzweig, MD Kristina Bryant, MD Written On Behalf of the American Society of Nephrology’s Kidney Community Vaccination Collaborative Introduction Living with kidney disease presents unique health challenges, including an increased susceptibility to infections. Immunizations play a crucial role in protecting people with kidney disease, including those on dialysis or with a kidney transplant, from preventable diseases. This article will discuss the importance of vaccines in general and those protecting against respiratory illness specifically, the risks associated with not being vaccinated, and concerns related to misinformation on vaccination decisions. [...]

Ask the Doctor May 2025

2025-05-07T13:27:31-04:00May 7th, 2025|Categories: Dialysis, Hemodialysis, Kidney Transplant, Medication, Nutrition, Physical Health, Staying Healthy, The Kidney Citizen|

Velma Scantlebury, MD, DPC Education Center Health Care Consultant 1. What is the impact of phosphorus on kidney patients? For patients with kidney disease on dialysis, they are unable to remove excess phosphorus from the blood. This leads to high phosphorus levels, also known as hyperphosphatemia. Since dialysis does not remove phosphorus, it is important to limit foods high in phosphorus to avoid a build-up in various places in the body. Too much phosphorus results in the following: Bone and heart problems: Excess phosphorus causes your body to pull calcium out of your bones, making them weak and [...]

What About the Children?

2025-05-08T11:44:16-04:00April 24th, 2025|Categories: Dialysis, eNews, Kidney Transplant, News & Events, Quality of Life, Staying Healthy, Treatment|

The pandemic was devastating. Businesses closed and some never reopened! Students were taught virtually! Many people died! Many were afraid because of lack of finances and not knowing what the future held! But what about the children who had COVID and are now experiencing chronic kidney disease and other health diseases after having COVID? The following article was retrieved from a news release from Penn Medicine (pennmedicine.org) on April 21, 2025. Penn Medicine is a clinical and research entity of the University of Pennsylvania Health System (UPHS) that is located in Philadelphia, Pennsylvania. Read the full press release: Children face elevated [...]

We Have Come A Long Way!

2025-04-09T10:13:00-04:00April 9th, 2025|Categories: eNews, Kidney Transplant, Treatment|

Research, technology, treatment options, outcomes, and significant results are constant in the world of kidney disease. Dialysis and kidney transplantation have not always been available to those in need. If you do not know by now, you should know that dialysis does not mean the end of your life but the end of your kidney function on its own. Treatment options, such as in-center dialysis, home dialysis and of course, transplantation are commonly used treatment options. The Dialysis Patient Citizens Education Center is committed and dedicated to inform you about renal news. We do not endorse or recommend any treatment options but can only [...]

Ask the Doctor September 2024

2024-09-23T13:54:19-04:00September 23rd, 2024|Categories: Dialysis, Hemodialysis, Kidney Transplant, Medication, Physical Health, The Kidney Citizen|

Velma Scantlebury, MD, DPC Education Center Health Care Consultant 1. I have been on dialysis for three months. After treatment in the dialysis facility, I am tired and feel bloated. When will I begin to feel better? Dialysis removes excess fluid and waste products. This happens by shifting fluid from one compartment so that the dialysis process can remove the extra fluid. This «dialysis fatigue» is experienced by about 50% of patients. Anemia, electrolyte imbalance, and stress can also be contributors to the condition. Many recommend getting plenty of rest, eating more protein, eating a balanced diet, and [...]

DPC’s 2024 Advocacy Day and 20th Anniversary Celebration

2024-09-23T13:54:12-04:00September 23rd, 2024|Categories: Costs for Treatment, Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Quality of Life, The Kidney Citizen, Treatment|

Megan Hashbarger, DPC Vice President of Government Relations This past May, DPC hosted our annual Advocacy Day in Washington, D.C., where we brought together patients, family members, and care givers to meet with their Members of Congress to elevate the patient story for dialysis patients. This year, we had 65 advocates attend, representing 25 states, who had almost 80 Congressional meetings. Our patients spoke to Congressional offices asking them to support H.R. 6860 – The Restore Protections for Dialysis Patients Act and H.R. 5027/S. 4469 – The Chronic Kidney Disease Improvement in Research and Treatment Act. These two [...]

Don’t Sweat It! – Tips for Renal Patients During Summer Heat

2024-07-10T15:38:16-04:00July 3rd, 2024|Categories: Dialysis, eNews, Kidney Transplant, Lifestyle, Physical Health, Quality of Life, Staying Healthy|

Summer is here and this time of year can be especially challenging for dialysis patients!  No matter how thirsty you are, you must still monitor your fluid intake. At the Dialysis Patient Citizens Education Center, we are continuously researching and sharing information that can improve the quality of life of renal patients. This article focuses on fluid intake and thirst tips and is provided by Fresenius Kidney Care (freseniuskidneycare.com) and DaVita (davita.com). The following information is provided by Fresenius Kidney Care. Dialysis works to remove excess fluid from your blood, so it’s important to manage your fluid intake. Fluids are typically [...]

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