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From Flatline to Front Lines: A Dialysis Warrior’s Fight for Every Patient’s Future

2025-10-10T15:18:18-04:00October 1st, 2025|Categories: Dialysis, Quality of Life, Support, The Kidney Citizen|

Arthur Hill, DPC Board Member “When Death Couldn't Stop Me, I Knew I Had Work to Do” When I first learned I had Goodpasture's disease – a rare condition that would forever change my life – I had no idea I was about to embark on a journey that would reveal depths of strength I never knew I possessed. September 2010 marked the beginning of what I now call my awakening. Despite feeling unwell, I pushed forward with determination, traveling to Mississippi for work. My body was sending me urgent signals, but I was too focused on my responsibilities [...]

Choosing Life: My Journey with Kidney Disease

2025-10-10T15:14:07-04:00October 1st, 2025|Categories: Dialysis, Mental Health, Quality of Life, Support, The Kidney Citizen|

Maria Robinson, DPC Board Member I’ve lived with kidney disease for most of my life. Nearly 30 years ago, I began my dialysis journey. Like so many patients, I was not fully prepared for such drastic change. I had to give up my dream job in order to take care of myself. I felt like I was losing the life I had worked so hard to build. Yet, over time, I realized that kidney failure was not the end of my life, but rather the beginning of a new one. It’s one filled with challenges, yes, but also filled [...]

Kidney Failure and Fighting for Our Cause

2025-10-10T15:01:20-04:00October 1st, 2025|Categories: Dialysis, Kidney Transplant, Support, The Kidney Citizen, Treatment|

Adam Goldstein, DPC Board Member When I was 19, I had my whole life planned out, but cancer had other plans. I survived, but not unscathed. The chemotherapy that saved my life also damaged my kidneys. I was diagnosed with kidney failure and began dialysis soon after. For years, I was determined to push forward and live “normally.” I got a transplant. It gave me back a sense of independence, a sense that maybe life would stop orbiting around hospitals and lab results. But as many of you know, a transplant isn’t always a cure. Mine eventually failed. And [...]

Support Groups

2024-10-03T11:11:20-04:00October 3rd, 2024|Categories: eNews, Quality of Life, Resources, Support|

Coping with a chronic disease is not an easy task! The journey is challenging, tiring, frustrating--often depressing, and lonely. One can feel that no one is experiencing or understanding their respective circumstances. A support group is a confidential and safe place to share with others, as well as a place to develop a special and unique comradery with those who participate. The Dialysis Patient Citizens Education Center formed a support group called the “Kidney Chat”. The group meets every second Tuesday at 2:00 pm EST via telephone. The telephone number is (866) 230-9002; the code is 420 835 078#. Various guests, [...]

Merida Bourjolly: Taking Control of Her Care and Finding Meaning Through Advocacy

2024-04-26T15:34:31-04:00April 26th, 2024|Categories: Dialysis, Employment, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Physical Health, Quality of Life, Staying Healthy, Support, The Kidney Citizen|

Merida Bourjolly, President of DPC Education Center Board of Directors Merida Bourjolly had a kidney removed when she was just three weeks old, though it wouldn’t be until much later that her experience with dialysis would begin. By then, she already owned her own business and had both a teenage daughter and her mother to take care of at home, which meant starting dialysis came with big adjustments. She did her best to continue working five to six days a week like she had before, but found she was increasingly tired while styling her clients’ hair. Eventually, she [...]

For Gene Blankenship, Family is Everything

2024-04-26T15:34:00-04:00April 26th, 2024|Categories: Dialysis, Employment, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Quality of Life, Support, The Kidney Citizen|

Eugene Blankenship, DPC Board of Directors Gene has had a front row seat to life with kidney disease for as long as he can remember. His entire family has been affected by kidney disease, and he was diagnosed himself in 2003. While it has come with challenges, Gene has continuously pushed forward, bolstered by the loving support of his family and those in the dialysis community he’s met along the way. After three years on dialysis, Gene was finally able to receive a kidney transplant this year. Persevering through dialysis treatments can take a toll, but Gene learned [...]

Knowledge to Empowerment

2024-04-26T15:33:39-04:00April 26th, 2024|Categories: Dialysis, Hemodialysis, In-Center Hemodialysis, Quality of Life, Support, The Kidney Citizen|

Nancy L. Scott, DPC Education Center Project Manager As I sat on the side of my hospital bed on a cold night in March of 2004, my heart was broken and it felt as though my time on the planet was almost over. I had just been diagnosed with END STAGE RENAL DISEASE. The word “end” means a final part of something, and I thought that something meant me. I had just retired and planned to enjoy life and travel as much as possible. These dreams had come to an end! (Little did I know at the time, [...]

The Making of An Advocate

2024-03-28T20:57:25-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Medication, Mental Health, Support, The Kidney Citizen, Treatment|

Gene Blankenship, DPC Board of Directors Thinking about Life Sitting in my recliner watching the leaves fall like big fat orange snowflakes, I see the trees begin to change colors. My immediate first thought is “How many more seasons of change will I see? Is this my last fall”? Polycystic Kidney Disease (PKD) is a constant passenger in my life. Anytime you have a passenger with you for long periods of time, you will go through events together that stamp your life. For example, as a child, I watched Eugene Taylor Jr., my dad, hook himself up every [...]

Building Legacy Through Advocacy

2024-03-28T20:57:46-04:00October 27th, 2022|Categories: Quality of Life, Support, The Kidney Citizen|

By Yolonda Brisbane, DPC Grassroots Manager As the Grassroots Manager for Dialysis Patients Citizens (DPC) Yolonda recruits and coaches new DPC patient advocates, helps plan and execute our Annual Advocacy Day, and hosts Patient Ambassador training calls. She came to DPC having led youth ambassador programs for the New York State Office of Children and Family Services and the Boys and Girls Clubs of America. For her, elevating the voices of dialysis patients is personal work. "When I was fourteen, I lost my father to kidney failure when he refused to go on dialysis. I had no clue about [...]

The New 988 Suicide & Crisis Lifeline Has Launched

2024-03-28T20:58:00-04:00July 21st, 2022|Categories: eNews, Mental Health, Support|

As of July 16th, people experiencing a mental health crisis (or their family and friends) can call or text 9-8-8 to reach help. The new 988 Suicide & Crisis Lifeline is modeled after 911 in order be easier to remember and provide a quick way for those in crisis to connect to a trained mental health professional, 24/7. The Lifeline is a national network of over 200 local crisis centers, providing free and confidential emotional support, along with connection to local resources, if necessary. When calling into the Lifeline, you will: First hear an automated message – this will outline additional [...]

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DPC Education Center

1001 Connecticut Avenue, NW, Suite 1230 Washington, DC 20036

Phone: 1-855-291-3725

Fax: 1-888-423-5002

Web: Dialysis Patient Citizens Education Center

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