Sometimes, having a chronic disease—such as End-Stage Renal Disease—can result in spending the night in the hospital unexpectedly. One tip to make the stay more comfortable is having a pre-packed "go bag". This could be helpful for not only patients being admitted, but also the caregivers that accompany them. To get started, below are some areas to focus on when pre-packing the bag: Comfortable clothes and bedding Entertainment Sleep aids Snacks Copies of important documents and helpful lists Toiletries For more details about specific items to include in these categories, read the full article.
During this webinar the following points will be covered: 1) Learn about the benefits of receiving a kidney from a living donor, 2) Learn how to talk to others about kidney donation, 3) You don’t need to “ask” someone to donate, it’s all about “telling your story” and 4) Join us to develop a plan for a successful living kidney transplant experience.
The DPC Education Center is developing an online program to serve as a resource for parents of children with kidney disease. In order for this program to be successful, we need the guidance of parents willing to share tips and stories about how they helped their child thrive while living with this condition and juggling life's multiple demands. Feedback is needed in the areas of treatment, medication and mental health. If you are a parent of a child with kidney disease and would like to help us with this project, please click this link (or answer the questions in the box [...]
There are more than 37 million people in the US living with Chronic Kidney Disease (CKD) and over 700,000 with End-Stage Renal Disease (ESRD). ESRD patients require multiple dialysis treatments a week in order to stay alive. Many CKD and ESRD patients find it difficult to continue working because of the time consuming treatments and the toll it has on their bodies. If you have kidney disease or ESRD and are not able to continue working, you may file a claim for Social Security benefits. While not guaranteed, these benefits help many patients cover some of their lost wages. Many CKD [...]
This January marks the 19th annual National Mentoring Month, a campaign aimed at expanding quality mentoring opportunities to connect more of our community’s young people with caring adults. There is a powerful mentoring effect demonstrated by research and the experiences of young people who are connected to a mentor in real life. Mentoring is linked to improved academic, social and economic prospects for young people, and that ultimately strengthens our community. Research has shown that when matched through a quality mentoring program, mentors can play a powerful role in providing young people with the tools to make responsible decisions, stay focused [...]
Do you have an idea to help others living with kidney disease? Are you interested in going back to school or work? There’s a grant for that. If you’ve never applied for a grant before, don’t worry. With resources to help guide you, it doesn’t have to be overwhelming. The End Stage Renal Disease National Coordinating Center (ESRD NCC) Patient Grant Library has what you need to help find the grant that’s right for you. It also offers links to sources for writing a proposal, creating a budget and submitting an application.
En Español By María Eugenia Rodríguez, MS, RD, CSR, LND, Licensed Dietitian Nutritionist You have probably heard about the importance of eating a low sodium diet. The general recommendation for people with kidney disease is to consume less than 2,000 mg of sodium per day. According to statistics from NHANES 2007-2010, the adult man in the United States consumes 4,240 mg of sodium and the adult woman consumes 2,980 mg.1 In some South American countries such as Argentina, Brazil and Costa Rica sodium intakes have been reported between 4,400 and 4,700 mg per day.2 One [...]
English Version Por María Eugenia Rodríguez, MS, RD, CSR, LND, Nutricionista Dietista Licenciada Probablemente, ha escuchado sobre la importancia de llevar una alimentación baja en sodio. La recomendación general para personas con enfermedad renal es consumir menos de 2,000 mg de sodio al día. Según estadísticas de NHANES 2007-2010, el hombre adulto en Estados Unidos consume 4,240 mg de sodio y la mujer adulta consume 2,980 mg.1 En algunos países de Sur América como Argentina, Brasil y Costa Rica se han reportado ingestas de sodio entre 4,400 y 4,700 mg al día.2 Una de las fuentes de [...]
Support the Dialysis Patient Citizens Education Center We want to take this opportunity to say thank you. As you know, it is our mission to reduce the occurrence and delay the progression of kidney disease. We work to accomplish our goals by: developing unique educational programs to empower patients and increasing public awareness of kidney disease. Our organization is led by kidney disease patients for kidney disease patients. We cannot accomplish our critical mission without you. Join in our efforts to improve patient quality of life and delay the occurrence of end-stage renal disease by donating today. For more information about [...]