Dialysis Patient Citizens Education Center

Manejando Mi Glucosa En Sangre Cuando Tengo Enfermedad Renal
2020-09-24 14:00 - 15:00 (America/New_York)
Imprima el folleto de promoción.
Presentado por María E. Rodríguez, MS, RD, CSR, LND
Temas:

¿Qué son los carbohidratos y cómo afecta mi glucosa en sangre?
¿Cuántos carbohidratos debo comer en cada comida?
Evitando niveles de glucosa en sangre altos y bajos.

Vea la grabación:
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Descargue la presentaciónEnglish Translation
Managing My Blood Glucose When Having Kidney Disease
Presented by María E. Rodríguez, MS, RD, CSR, ND, LND
Topics:

What are carbohydrates and how they affect my blood glucose?
How much carbohydrates should I eat per meal?
Avoiding high and low blood glucose levels.

Dialysis Access: What Every Patient Should Know
2020-08-27 14:00 - 15:00
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Presented by: Nephrologist David L. Mahoney, MD, FASN, FASDIN
In this presentation you will learn about:

The different types of access for dialysis
How to examine and monitor your access
Why it is important to avoid catheters

View the Recording:
﻿
Download the SlidesAbout the Presenter:
Dr. David Mahoney is a nephrologist in the Washington, DC area with nearly 30 years of experience in the care of patients with kidney disease. He is currently the Chief Medical Officer for DaVita’s Hospital Services Group.

Is a Transplant Right for Me?
2020-07-30 14:00 - 15:00
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Presented by: S. John Swanson, III, M.D., FACS, and a discussion with transplant patients on our Board
During this webinar, you will learn about:

The risks vs benefits of a transplant
The choice of a deceased vs living donor
How to find a living donor
Tips from patients’ own transplant experiences

View the Recording:

Additional Article:
The Gift of Life: A Donor’s Perspective
Download the Slides

Bone Mineral Disorder: Calcium, Vitamin D and Phosphorus
2020-06-25 14:00 - 15:00
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Presented by: Frances Rodriguez, RD, CSR, a Board Certified Specialist in Renal Nutrition
During this webinar, you will learn about:

The relationship between kidney disease and your bones
Bone Mineral Disease
How diet impacts renal bone mineral disorder

View the Recording:

Download the slidesAdditional Resources

Living Well During COVID-19: How to Cope and Manage Your Emotions
2020-05-28 12:30 - 13:30
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Presented by: Dr. Elizabeth Christofferson, PhD, Clinical Psychologist
It’s not easy living with a chronic health condition during a public health emergency. The uncertainty surrounding COVID-19 and growing concerns about your own health and safety can take a toll on your emotions and mental health. During this webinar, Dr. Christofferson will offer advice on how to deal with feelings of fear, isolation, anxiety and stress during the coronavirus outbreak.
About the Presenter:
Dr Elizabeth Christofferson, PhD, is currently an assistant professor in the Departments of Psychiatry and Pediatrics at University of Colorado School of Medicine and a licensed clinical psychologist at Children’s Hospital Colorado. She is the clinical director for psychology for the Solid Organ Transplant Teams in the Kidney Center at CHCO. Her research focuses on adherence, health disparities, risk factors for negative health outcomes, and substance use among transplant patients.
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The COVID-19 Explosion—Lessons from New York—What Kidney Patients Should Know
2020-04-07 16:00 - 17:00
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Presented by:

Alan Kliger, MD, Professor of Medicine, Yale School of Medicine
Michele Mokrzycki, MD, Professor of Medicine, Albert Einstein College of Medicine
Deep Sharma, MD, Assistant Professor of Medicine, Albert Einstein College of Medicine

During this webinar you will learn the latest on:

What kidney patients need to do (dialysis & transplant)
What dialysis facilities are doing
What we can learn from New York’s COVID-19 experience

You will have the opportunity to type questions in the chat box during the webinar.
View the Recording:

Download the SlidesAdditional Articles:

COVID-19 Resources for Dialysis Patients
Coronavirus Disease (COVID-19) Information for Dialysis Patients

What the COVID-19 Means for Kidney Patients
2020-03-13 15:00 - 16:00
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Presented by: Shannon Novosad, MD with the Centers for Disease Control and Prevention (CDC) and Alan Kliger, MD, with the American Society of Nephrology (ASN)
Please join the DPC Education Center to learn about COVID-19 and what you and your family can do to protect yourselves. You will also learn about the CDC’s guidance for dialysis facilities and how your facility staff is working to prevent the spread of infection.
View the Recording:

Download the SlidesAdditional Articles:

COVID-19 Resources for Dialysis Patients
Coronavirus Disease (COVID-19) Information for Dialysis Patients

Complete the Presentation EvaluationAbout the Presenters:
Shannon Novosad, MD, MPH is a Medical Officer with the Dialysis Safety Team in the Division of Healthcare Quality Promotion (DHQP) at the Centers for Disease Control and Prevention. Dr. Novosad received her medical degree from the University of Alabama at Birmingham (UAB). In 2015, Dr. Novosad came to CDC as an Epidemic Intelligence Service Officer assigned to DHQP where she investigated outbreaks in healthcare settings. Her areas of concentration include prevention of central line-associated bloodstream infections and increasing the safety of patients on dialysis.
Alan Kliger, MD is a Clinical Professor of Medicine, Yale University School of Medicine, and Vice President, Chief Quality Officer, Yale New Haven Health System. He served formerly as Senior Vice president, Chief Medical Officer, Hospital of Saint Raphael, New Haven Connecticut. He is a past president of the Renal Physicians Association, and serves on its Quality, Safety and Accountability Committee. He is a past president of the Forum of ESRD Networks. He is chairman of the steering committee for the NIH Frequent Hemodialysis Study, a national prospective randomized study of in-center daily and home nocturnal hemodialysis. Dr. Kliger has received several teaching awards from the Yale house staff, and in February 2000 was the recipient of the James Colangelo award of the Connecticut National Kidney Foundation for distinguished service to the renal community. In September 2004, he received the Maureen Lundin AAKP RENALIFE Award from the American Association of Kidney Patients.

Having Your Donor Find YOU!
2020-02-27 14:00 - 15:00
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Presented by: Harvey Mysel, two-time kidney transplant recipient
During this webinar the following points will be covered:

Learn about the benefits of receiving a kidney from a living donor
Learn how to talk to others about kidney donation
You don’t need to “ask” someone to donate, it’s all about “telling your story”
Join us to develop a plan for a successful living kidney transplant experience

View the Recording:

Download the SlidesAbout the Presenter:
Harvey Mysel is a two-time kidney transplant recipient. Harvey founded the Living Kidney Donors Network after he realized that those in need of a kidney transplant weren’t getting the information they needed to become successful at finding a living donor. Through his workshops, webcasts and personal consultation with those in need, Harvey has helped hundreds through the transplant process. Harvey has presented for patients at transplant centers, dialysis companies, National Kidney Foundation affiliates, the PKD Foundation and many other organizations that support those who need a kidney transplant.

There’s a Grant for That!
2020-01-30 14:00 - 15:00
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Presented by: ESRD National Coordinating Center
Do you have an idea to help others living with kidney disease? Are you interested in going back to school or work? There’s a grant for that. If you’ve never applied for a grant before, don’t worry. With resources to help guide you, it doesn’t have to be overwhelming. The End Stage Renal Disease National Coordinating Center (ESRD NCC) Patient Grant Library has what you need to help find the grant that’s right for you. It also offers links to sources for writing a proposal, creating a budget and submitting an application.
View the Recording:

Download the Slides

Holiday Hints: The 3 Biggest Kidney Disease Diet Mistakes People Make
2019-12-17 14:00 - 15:00
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Presented by: Jessianna Saville, MS, RDN, CSR, LD, CLT
Join us for this dynamite webinar to learn the three biggest mistakes people with kidney disease make during the holidays with their diet and how to avoid. We’ll go over our best tips to make your food go from “blah” to “hurrah” and give you all the tools you need for your best holiday tips this season.
View the Recording:

Download the slides.About the Presenter:
Jessianna Saville, MS, RDN, CSR, LD, CLT is a registered dietitian, speaker, and blogger about renal nutrition at kidneyrd.com. She has spent the last 10 years working specifically with people with kidney disease—both in dialysis and pre-dialysis. She currently works privately with clients to help them slow the progression of chronic kidney disease through nutritional modification and to understand the often confusing renal diet. She blogs about livable and lovable kidney-friendly food and renal-nutrition research. In her free time she plays with her 3 young children, loves to cook and try new plant-based recipes, and get as much outdoor sunshine as possible.

Treatments and Modality Options for Kidney Disease
2019-11-21 14:00 - 15:00
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Presented by Joanne Smith, RN
During this webinar you will learn:

How kidneys work
About chronic kidney disease stages and symptoms
How to slow progression
End stage options for treatment
About accesses

View the Recording:

Download the SlidesAdditional Articles:

What Are My Options If I Have Kidney Failure?
The Gift of Life: A Donor’s Perspective

About the Presenter:
Joanne Smith is a DPC Education Center Advisory Council member and has had multiple positions in the dialysis field since receiving her RN degree, ranging from Staff RN to Director of Nursing to Home Therapies Manager. She is currently a Kidney Care Advocate responsible for educating CKD and ESRD patients on kidney disease and options for treatment, focusing specifically on home dialysis. Unlike in other nursing fields where patients are encountered on an annual or limited basis, Joanne enjoys working in dialysis as it allows her to build strong relationships with her patients. In addition to her work with dialysis patients, she served as DPC’s Education Manager.

Decisions You Need to Make About Your Transplant Choice
2019-10-17 14:00 - 15:00
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Presented by Dr. Keith Melancon, Director of the George Washington Transplant Institute
Dr. Melancon will touch on the following three key points:

Accepting high risk donors
Understanding transplant wait time
What makes a great transplant recipient

View the Recording:
﻿
Download the SlidesAbout the Presenter:
Dr. Melancon is currently the Director of the George Washington Transplant Institute and the Medical Director of The Ron and Joy Paul Kidney Center at George Washington University Medical School. Dr. Melancon is a Professor of Surgery whose specialties include kidney, pancreas and liver transplantation as well as laparoscopic kidney donor nephrectomy. His research interests have centered upon increasing access to health care for minority patients, particularly in the field of organ transplantation. Dr. Melancon has spent his career trying to improve outcomes for the hardest to transplant patients and therefore has been an advocate for ABO incompatible organ transplantation, paired kidney exchanges, and immune system desensitization strategies. Recently Dr. Melancon and his team were the first ever to perform a fully ABO incompatible deceased donor kidney transplantation as well as a fully ABO incompatible living donor kidney transplantation in an individual with HIV infection. Dr. Melancon hopes that with novel immunosuppression protocols that organ transplants will begin to last for the life time of the patient and that true transplant tolerance can be achieved in the near future.

Diabetes and Kidney Disease: Can You Get Better?
2019-09-26 14:00 - 15:00
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Presented by: David Spero, RN
During this webinar you will learn:

How Diabetes Affects Your Kidneys
How Controlling Diabetes Improves Health and Well Being
Strategies for Controlling Diabetes

View the Recording:
﻿
Download the SlidesPresentation HandoutAbout the Presenter:
David Spero has been a nurse for 40 years, has lived with a chronic illness for 30 years, writes regularly for Diabetes Self-Management magazine and web site and for other health publications. He is author of The Art of Getting Well: Maximizing Health When You Have a Chronic Illness (Hunter House 2003), and Diabetes: Sugar Coated Crisis – Who gets it, who profits, and how to stop it (New Society 2007) His e-book series: The Inn by the Healing Path: Stories on the road to wellness tells inspirational stories of recovery and growth.

Guía Básica de Alimentación para Personas con Enfermedad Renal
2019-08-22 14:00 - 15:00
Imprima el folleto de promoción.
Presentado por María E. Rodríguez, MS, RD, CSR
Aprende:

¿Qué es la dieta renal?
Lo que necesitas saber sobre proteína, sodio, potasio y fósforo
¿Cómo hacer una buena selección de alimentos?

Vea la grabación:

Descargue la presentaciónDescargue el folleto impresoEnglish Translation
Basic Nutrition Guide for People with Kidney Disease
Presented by María E. Rodríguez, MS, RD, CSR
Learn:

What is the renal diet
What you need to know about protein, sodium, potassium, and phosphorus
How to make good food choices

A Young Man’s Life-Changing Experience with Both Heart and Kidney Disease
2019-07-25 14:00 - 15:00
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Presented by Bill Coon
Bill Coon became a two-time heart and kidney transplant recipient in his 20s.
During the webinar, he will share experiences from his 70-day hospital stay and recovery from a heart and kidney transplant to help others learn how to improve their patient experience.
He will also provide insight from his personal experience on what one might expect during post-transplant recovery.
Since that time he has become an acclaimed speaker and Founder of the Keep Swimming Foundation.
View the Recording:

Download the slidesDownload the Handout

Vocational Rehabilitation Works for You and Your Quality of Life!
2019-06-27 14:00 - 15:00
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Presented by: Elizabeth Jones, MSW, LCSW
During this webinar you will learn:

The benefits of working, furthering your education, training, volunteering and remaining active
How these benefits can increase the likelihood of receiving a kidney transplant and decrease depression
About work incentives for Social Security Disability Insurance and Medicaid recipients

View the Recording:

Download the slides

Psychosocial Factors Affecting Children and Families Living with Chronic Illness
2019-05-23 14:00 - 15:00
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Presented by Amy Walters, PhD, Clinical Psychologist
During the webinar, Dr. Walters will discuss:

The psychological and emotional side effects of chronic illness on children and families
How illness impacts different stages of childhood development
Common concerns reported by parents and children
Ways to support children and their families in coping with chronic illness

View the Recording:

Download the slides.
Download the Handouts

Caregivers for People with Chronic Illness
Childhood Chronic Disease: A Family Affair

About the Presenter
Amy Walters, PhD, is a clinical psychologist and the Director of Behavioral Health Services for St. Luke’s Humphreys Diabetes Center in Boise, Idaho. Dr. Walters works with patients to overcome barriers to behavioral change, learn to cope with chronic illness, and address issues of anxiety and depression which often coincide with diabetes and other chronic conditions. She provides professional presentations on Motivational Interviewing and psychological factors in chronic disease management and is a clinical consultant to integrated behavioral health providers in rural clinics. She received her PhD from Utah State University and has 20 years of experience working in clinical and community settings with children and adults with a variety of mental health issues. She is a long standing board member of the Idaho Psychological Association and serves as the APA Public Education Campaign Coordinator for Idaho. Dr. Walters has been the staff psychologist for Camp Hodia for 20 years and also has a daughter with type 1 diabetes.

Relieving Pain Through Laughter
2019-04-26 14:00 - 15:00
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Presented by: Mary Laskin, MN, RN, ACNS-BC and Steve Wilson, Psychologist, The Joyologist
Joyology is the lifestyle that skillfully blends laughter, humor, and attitudes to help recover from difficulties and re-awaken the joy of being alive.
During this webinar you will:

Learn about joyology as a lifestyle
Discover ways to manage pain
Understand how laughter can help ease pain

View the Recording:

Download the slides.
Download the handouts:

Adding Laughter to your Every Day Life
Good Hearted Living
Resource List for People Living with Chronic Pain

Additional Articles:

Keep Your Funny Side Up: Discover The Humor Perspective
Laughing Away the Pain: A Narrative Review of Humor, Sense of Humor and Pain

Get Your Sweat On! Exercising for Healthier Kidneys
2019-03-28 14:00 - 15:00
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Presented by Collette Powers, MA, RDN, LDN, ACSM EP-C, Renal Dietitian
During the webinar, the following points will be covered:

Background on the benefits of regular physical activity and exercise relating to kidney function.
The impact current research is showing on exercising in helping to slow down kidney disease progression.
Strategies for getting started with a new exercise routine, along with tips to keep you motivated!

View the Recording:

Download the slides.
Download the handouts:

Daily Stretching Exercises
Chair Exercises

Additional Article:
Work Those Kidneys Out!

It Takes a Village: Preparing Your Support Plan for Transplant Care
2019-02-28 14:00 - 15:00
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During this insightful webinar, help to better prepare your family for transplant care by learning:

Who will need help after the transplant surgery
What type of help may be needed
Who can help meet those needs

Presented by: Lara Tushla, Transplant Social Worker at Rush University Medical Center
View the Recording:

Download the slides.

Don’t Make New Year Resolutions! Six Happiness Habits
2019-01-23 14:00 - 15:00
Most people make and break resolutions every year
Print out the flier.
80% of people fail New Year Resolutions by February
Learn happiness habits instead that can change your attitude and your health on a daily basis

View the Recording:

Download the slides.
Download the handout:

In English
In Spanish
In Italian
In French

Additional Articles:

To Make Resolutions or Not?
It IS A Laughing Matter: Using Humor To Cope With Kidney Disease And Dialysis
Instead of a Resolution, Try Making a Micro-Change

About the Presenter:
Steve Wilson, a member of the DPC Education Center Advisory Council, is an author, psychologist, trainer and business consultant. He is also the founder of the World Laughter Tour, which trains people in laughter therapy across the country as it promotes health, happiness, and peace.

What's So Funny About Kidney Disease?
2018-12-12 14:00 - 15:00
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Have you giggled or laughed out loud today? Or yesterday? Or last week? Laughter is considered one of the best medicines we have, and we want you to start seeing its benefits!
Join us to learn more about the health benefits of laughter and how to find humor in your life as you live with chronic kidney disease.
Find out when Steve Wilson, a clinical psychologist and founder of the World Laughter Tour, interviews Karyn Buxman, RN.
View the Recording:

Download the slides.
Additional Articles:

Everything You Need to Know About Beating the Holiday Blues and Post-Holiday Let Down
Another Dialysis Patient Makes It 40 Years On Treatment
The Intentional Application of Humor with CKD Patients

Medication Use and the Role of the Pharmacist
2018-11-15 14:00 - 15:00
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Presented by: Wendy St. Peter, PharmD, FCCP, FASN, FNKF
Professor at the College of Pharmacy, University of Minnesota
People with chronic kidney disease (CKD) often times…

have other medical conditions
require many medicines
have several doctors that prescribe medicines
go to more than one pharmacy to get medicines

It can be hard for patients, doctors and other healthcare professionals to keep track of all the medicines their patients with CKD take. The issues above can lead to medication therapy problems (MTPs). MTPs can….

reduce the good effects of medicines
lead to safety issues (e.g., bad reaction to a medicine)
result in non-adherence to medicines

In this webinar, Dr. St. Peter will discuss:

how pharmacists can help patients, doctors and other healthcare professionals to improve medication use in patients with CKD
how patients can help their healthcare professionals stay ‘on the same page’ so that medication use can be optimized
what works best for you (i.e., How can your healthcare team best help you manage your medicines?)

View the Recording:

Download the slides.
Additional Videos Mentioned During Presentation:

Patients Stories of Pharmacists’ Care
Expert Shares Key Steps in Staying Healthy with Kidney Disease
Pharmacist Discusses Medications for Kidney Disease

About the Presenter:
Wendy St. Peter is a Professor at the College of Pharmacy, University of Minnesota. She worked at Hennepin County Medical Center in Minneapolis for many years with patients that had end-stage renal disease or earlier stages of CKD. Currently she uses big databases like Medicare to look at medication use in patients with chronic kidney disease. Her research is focused on improving medicine safety and effectiveness in these patients. She is on the Board of Directors of the Kidney Health Initiative, which is a collaboration between the American Society of Nephrology and the Food and Drug Administration. KHI’s mission is to encourage development of therapies (medicines, devices) that patients with CKD feel would be most important to them.

Laugh Will and Testament: Using Humor to Contemplate Mortality and Enjoy Life
2018-10-22 15:00 - 16:00
Presented by Steve Wilson and Joel Schwartz
Learn how to talk about things that are hard to talk about including:

Changing attitudes
Making better plans

View the Recording:

Download the handouts.
Download the slides.
Tears study article mentioned during the presentation.

An Important Conversation: How to Talk Effectively with your Health Care Team
2018-09-27 15:00 - 16:00
Join Steve Wilson, psychologist, as he talks to Edward Leigh, a health educator and the founder and director of The Center for Healthcare Communication. Steve will ask Edward important questions that will help you as you partner with your healthcare team for quality care and quality of life.
Through an engaging and energetic conversation, learn how to:

Build a positive relationship
Communicate clearly
Ask helpful questions
Prepare effectively for each visit
Develop your own “medical resume”
Find helpful health web sites

View the Recording:

Download the slides.
Download the handout.
About the Presenters:
Edward Leigh is the Founder & Director of The Center for Healthcare Communication. He helps patients communicate with healthcare professionals and helps healthcare professionals communicate with patients. He has a master’s degree in health education. He appears on many national television shows, including The Oprah Winfrey Network, The Discovery Channel, The Montel Williams Show, MSNBC News and The Today Show.
Steve Wilson, a member of the DPC Education Center Advisory Council, is an author, psychologist, trainer and business consultant. He is also the founder of the World Laughter Tour, which trains people in laughter therapy across the country as it promotes health, happiness, and peace.

Home Dialysis: Is It Your Best Treatment Option?
2018-08-16 15:00 - 16:00
This Program will help you:

Learn about treatment options
Weigh the benefits of more frequent dialysis
Develop questions to ask your doctor when choosing your treatment choice
Understand the patient’s perspective by hearing a patient’s dialysis story

View the Recording:

Download the slides.
Presented by:

Dr. Michael Kraus, MD, FACP
Nephrologist,
Indiana University School of Medicine
Associate Chief Medical Officer,
NxStage Medical, Inc.

Vanessa Evans, Dialysis Patient
Patient Advocate Manager,
NxStage Medical, Inc.
Dialysis patient for 20 years, the last 13 years on more frequent home hemodialysis with NxStage

The Nuts and Bolts of becoming a Transplant Patient
2018-07-26 15:00 - 16:00
Presented by Dr. Keith Melancon, Director of the George Washington Transplant Institute
This Program will help you:

Learn what it means to be on the transplant list;
Understand the transplant process from start to finish;
Dispel the myths of what is or is not involved;
Learn tips for to help you succeed in the process.

View the Recording:

Download the slides.
About the Presenter:
Dr. Melancon is currently the Director of the George Washington Transplant Institute and the Medical Director of The Ron and Joy Paul Kidney Center at George Washington University Medical School. Dr. Melancon is a Professor of Surgery whose specialties include kidney, pancreas and liver transplantation as well as laparoscopic kidney donor nephrectomy. His research interests have centered upon increasing access to health care for minority patients, particularly in the field of organ transplantation. Dr. Melancon has spent his career trying to improve outcomes for the hardest to transplant patients and therefore has been an advocate for ABO incompatible organ transplantation, paired kidney exchanges, and immune system desensitization strategies. Recently Dr. Melancon and his team were the first ever to perform a fully ABO incompatible deceased donor kidney transplantation as well as a fully ABO incompatible living donor kidney transplantation in an individual with HIV infection. Dr. Melancon hopes that with novel immunosuppression protocols that organ transplants will begin to last for the life time of the patient and that true transplant tolerance can be achieved in the near future.

Understanding and Managing Chronic Pain
2018-06-28 15:00 - 16:00
Presented by: David Spero, RN
In some studies, over 70% of people with CKD report chronic pain. If you are one of the 70%, or if you take care of them, this program will give you medical and non-medical ways to understand, reduce, and manage chronic pain. You may not eliminate it completely, but you can make pain a much smaller part of your life!
Watch the Recording:

Download the slides.

The Emotional Ride of the Transplant Process
2018-05-24 14:00 - 15:00
Presented by: Dr. Jody Jones, PhD, Clinical Psychologist and Transplant Psychologist
Dr. Jones has worked with patients at all stages of the transplant process and can help you make sense of the range of emotions you might be feeling.
About This Presentation:

Learn how to deal a potentially long wait for an organ, and how you can mentally yourself for when you do receive a transplant.
Learn how to manage your fears about the process, but also managing your expectations, while waiting for a kidney and living with a transplant.

View the Recording:

Download the slides.

A Livable, Lovable Approach to Kidney Disease Nutrition
2018-04-26 15:00 - 16:00
Presented by: Jessiana Saville, M.S., R.D., C.S.R., L.D. owner of KidneyGrub.com
During the webinar the following points will be covered:

Why all the information on kidney disease and diet is so conflicting
Slow progression of kidney disease with nutrition
Prevent complications of kidney disease with nutrition
Tips and tricks to make your diet livable and lovable

View the Recording:

Download the slides.
