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For Mike Guffey, Working Was Key to Staying Positive

2024-03-28T20:57:27-04:00June 14th, 2023|Categories: Diagnosis of Kidney Disease, Dialysis, Employment, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Mental Health, Quality of Life, The Kidney Citizen|

Mike Guffey When Mike Guffey began dialysis treatments in 2008, one of his top priorities was to ensure he had a reason to keep moving forward, something to look forward to when he got out of bed which would allow him to push through his treatment regimen. For him, that meant returning to work as quickly as he could after starting his treatments, especially given how quickly he crashed into life on dialysis. Normally based in Kansas City, Mike was working temporarily as a project manager in Colorado when he noticed something was off. He went to the [...]

Black and Hispanic Patients on Dialysis Have Higher Rates of Staph Bloodstream Infections

2024-03-28T20:57:27-04:00June 14th, 2023|Categories: Diagnosis of Kidney Disease, Dialysis, Early Intervention, Stages of Kidney Disease, Staying Healthy, The Kidney Citizen|

Actions to Reduce Inequities Can Save Lives CDC Newsroom Media Statement – Originally published February 6, 2023 Contact: Media Relations, (404) 639-3286 Adults on dialysis treatment for end-stage kidney disease were 100 times more likely to have a Staphylococcus aureus (staph) bloodstream infection than adults not on dialysis during 2017–2020, according to a new Vital Signs report released today by the Centers for Disease Control and Prevention (CDC). More than half of people in the U.S. receiving dialysis belong to a racial or ethnic minority group—about 1 in every 3 people receiving dialysis is Black and 1 in every 5 [...]

The Case for Personalized Kidney Screening for People with Type 1 Diabetes

2024-03-28T20:57:46-04:00November 3rd, 2022|Categories: Diagnosis of Kidney Disease, eNews, Physical Health|

A new analysis by the Epidemiology of Diabetes Interventions and Complications study group (funded by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), part of the National Institutes of Health) makes a strong case for taking a more personalized approach to screening people with Type 1 Diabetes (T1D) for kidney disease. New findings suggest that urinary albumin excretion rate (AER) could be personalized to individuals with T1D to decrease costs and increase the rate of early detection. People with T1D have about a 50% risk of developing chronic kidney disease (CKD) over their lifetime; if individuals who are [...]

Anemia in People with Chronic Kidney Disease

2024-03-28T20:57:48-04:00October 27th, 2022|Categories: Physical Health, Stages of Kidney Disease, Staying Healthy, The Kidney Citizen|

By Jay Wish, MD Anemia is defined as a lower-than-normal level of hemoglobin in the blood. Hemoglobin is the protein in red blood cells that carries oxygen to all tissues and allows those tissues to carry on their functions, including the creation of building blocks for energy. Hemoglobin is what makes red blood cells red, and this explains why people with low hemoglobin levels may appear pale. Hemoglobin levels less than 13 in men and less than 12 in women is considered anemia. Anemia is common in people with chronic kidney disease (CKD) and may have many causes. It [...]

New Study Shows Age-Related Kidney Function Differs by Gender

2024-03-28T20:57:56-04:00September 8th, 2022|Categories: Diagnosis of Kidney Disease, eNews, Stages of Kidney Disease, What Causes Kidney Disease|

A study of 1,837 people aged 50-62, which replicated accurate measurements of kidney function in health women and men over time, may partly explain why more women are diagnosed with early CKD and more men develop severe CKD and kidney failure as they age. The baseline mean glomerular filtration rate (GFR) was 90 ml/min/1.73 m.2 for women and 98 ml/min/1.73m.2 for men (P<0.001). However, additional measurements over 11 years of follow-up showed that men experienced a mean decrease in GFR 25% more than women. The study, published in Journal of the American Society of Nephrology (JSN) showed that the relationship [...]

Wellness and Mental Health While Living with Rare Disease

2024-03-28T20:58:14-04:00April 25th, 2022|Categories: Lifestyle, Mental Health, Physical Health, Stress Management, The Kidney Citizen, What Causes Kidney Disease|

  By Maya Doyle, MSW, PhD Cystinosis is a rare lysosomal storage disorder (1) that is typically diagnosed in childhood and typically results in kidney failure and progression to dialysis and/or kidney transplant. In the United States, a disease is considered rare if it is affects fewer than 200,000 Americans. According to the National Institutes of Health (NIH), there are approximately 7,000 rare diseases affecting between 25 and 30 million Americans – this means 1 in 10 people may be affected by a rare condition (2). The experience of a rare condition can be very isolating because of the [...]

My Experience as a Kidney Patient in CKD, Dialysis, and Transplant

2024-03-28T20:58:16-04:00April 25th, 2022|Categories: Diagnosis of Kidney Disease, Dialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Stages of Kidney Disease, The Kidney Citizen|

By Orlando A. Torres After a 30-year battle with chronic kidney disease (CKD), in 2016 I had Stage Five kidney failure. This was the end of a three-decade battle which took countless hours of treatment. For years, I had been followed medically for CKD, having a special test done monthly and eating a special diet. As a CKD patient, my condition affected other organs in my body. The number of regular activities I could do also declined, but I never quit and refused to accept those limitations. I never let CKD limit what I did. I think it is [...]

Chronic Kidney Disease and Hyperkalemia: What You Need to Know About High Potassium!

2024-03-28T20:58:42-04:00December 17th, 2021|Categories: Nutrition, Stages of Kidney Disease, The Kidney Citizen|

By Sue Hellie The challenges faced this past year have redefined what it means to live with chronic kidney disease (CKD). People living with kidney disease and other severe chronic conditions are at higher risk for more severe illness, and they’ve had to take extra precautions to ensure their safety and wellbeing. However, this past year has presented many people with the opportunity to educate themselves about their health and potential associated conditions that come with living with CKD. One condition that is less understood by many living with CKD is hyperkalemia. What is hyperkalemia? Hyperkalemia is a condition some people [...]

Better Late than Never: Genetic Diagnosis After Major Medical Events

2024-03-28T20:58:44-04:00December 17th, 2021|Categories: Diagnosis of Kidney Disease, The Kidney Citizen, What Causes Kidney Disease|

By Dawn Laney, MS You have two doctors for your kidneys, one for your heart, one for your head, one for your eyes, and one for your overall health. You are tested, biopsied, and imaged from head to toe on a regular basis. So, when one of these doctors suggests a referral to genetics, you may wonder, “Another doctor? Is it still worth seeking a genetic diagnosis as an adult who has already had kidney failure?” The answer is a resounding “Yes!” One way to improve care in a medically complicated situation is by learning if an underlying genetic condition could [...]

Polycystic Kidney Disease (PKD)

2024-03-28T20:58:46-04:00December 17th, 2021|Categories: The Kidney Citizen, What Causes Kidney Disease|

By Mirjana Dimitrijevic, M.D. and Keith A. Bellovich, DO There are two major forms of PKD: autosomal recessive polycystic kidney disease (ARPKD) and autosomal dominant polycystic kidney disease (ADPKD). ARPKD is uncommon and is typically diagnosed in infancy or in utero. Autosomal recessive means that the mutated gene must be present in both parents (carriers) with a 1 in 4 chance that a child will inherit an abnormal gene from both parents and have the disease. In ADPKD each child of an affected parent has a 50% chance of inheriting the disease. ADPKD is the most common inherited kidney disease, characterized [...]

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