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There Is No Place Like Home

2024-03-28T20:59:12-04:00April 19th, 2021|Categories: Home Hemodialysis, Peritoneal Dialysis, The Kidney Citizen|

By Shaminder Gupta, MD, Nephrologist End Stage Renal Disease (ESRD) is a life changing diagnosis and impacts both the patient and the family. While waiting for renal transplantation, renal replacement therapy (RRT) is required to sustain life. RRT, also known as dialysis, can be provided either in-center or at home. Home therapies can either be via peritoneum (PD) or via fistula (HHD). Patients are concerned about their own abilities to provide this life sustaining therapy on their own. This is natural and should be anticipated as a barrier. Most of us, including medical professionals, would also share these apprehensions. Success at [...]

Participating in a Clinical Trial

2024-03-28T20:59:56-04:00August 21st, 2020|Categories: Additional Resources, Early Intervention, eNews, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Treatment, Webinar|

New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or product before it becomes available on the market. This phase of research is called a clinical trial or a clinical research project. People can volunteer to be part of a clinical trial if they meet the specific requirements for the study. You might consider participating in the research process for many reasons including if it has a personal meaning for you or if you want to [...]

Care Coordination Fixes One of the Biggest Flaws in the American Health Care System

2024-03-28T21:00:03-04:00July 6th, 2020|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, The Kidney Citizen|Tags: , |

By Gloria Rohrer, DPC Patient Ambassador As a dialysis patient, it has become clear to me that one of the biggest flaws in the American health care system is the disjointed way care is often provided to patients. If patients have chronic conditions alongside other health complications, it can be exceedingly difficult to navigate the different doctors and hospitals we need in order to receive proper care. When seeing so many different doctors at various clinics and hospitals, patients like me can suffer adverse effects if all our treatments are not designed to address our full medical history, rather than a [...]

Reflections from 45 Years on Dialysis

2024-03-28T21:00:13-04:00May 2nd, 2020|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, Pediatric Kidney Disease, The Kidney Citizen|Tags: , |

By Jack Reynolds, DPC Board Member I have survived on in-center hemodialysis for the last 45 years. I have also received Medicare for all those years to pay for most of my dialysis and other medical needs. I currently reside outside the village of Palmyra, Iowa. One of the first group of Patient Ambassadors to advocate in Washington, D.C. in 2005, I have visited Capitol Hill many times since. Because of the cost, time and effort it takes to keep a kidney patient healthy, I feel that it is important to be aware of issues and legislation that can impact our [...]

COVID-19 Resources for Dialysis Patients

2024-03-28T21:00:23-04:00March 31st, 2020|Categories: Additional Resources, Employment, eNews, Fact Sheet, In-Center Hemodialysis, Lifestyle, Nutrition, Stress Management|Tags: |

Updated May 6, 2020 Earlier this month the President signed the “Families First Coronavirus Response Act,” which is a bill that will increase funding to several federal programs in response to the COVID-19 viral outbreak. The bill aids Americans in the areas of healthcare (including COVID-19 testing), nutrition, paid sick leave, unemployment, family and medical leave, and more. Below is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying [...]

Dialysis–A Gift for Me

2024-03-28T21:00:24-04:00March 27th, 2020|Categories: Blog, In-Center Hemodialysis, Lifestyle, Quality of Life|Tags: |

Irwin Dunsky By Irwin Dunsky I found out my kidneys were disintegrating about seven years ago. They were working about thirty-five percent. I stated watching some of the things I was eating and a year later they were at thirty percent. My doctor told me that soon I would have to get a new kidney if I didn’t watch it. My kidneys kept going down, and four years ago they reached twenty percent functioning. I went to three hospitals to get on a kidney transplant list. They all told me that my heart was a risk factor that they [...]

What the COVID-19 Means for Kidney Patients

2024-03-28T21:00:25-04:00March 8th, 2020|Categories: Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Physical Health, Webinar|Tags: |

Learn about COVID-19 and what you and your family can do to protect yourselves. You will also learn about the CDC’s guidance for dialysis facilities and how your facility staff is working to prevent the spread of infection. Presented by: Alan Kliger, MD, with the American Society of Nephrology (ASN) and Shannon Novosad, MD with the Centers for Disease Control and Prevention (CDC) About the Presenters: Shannon Novosad, MD, MPH is a Medical Officer with the Dialysis Safety Team in the Division of Healthcare Quality Promotion (DHQP) at the Centers for Disease Control and Prevention. Dr. Novosad received her medical degree from [...]

Coronavirus Disease (COVID-19) Information for Dialysis Patients

2024-03-28T21:00:26-04:00March 6th, 2020|Categories: Additional Resources, eNews, In-Center Hemodialysis, Lifestyle, Physical Health|Tags: |

Updated 3/26/2020 Coronavirus disease 2019 (abbreviated COVID-19) is a new respiratory virus spreading to the United States. Although the health risk is low in this country at this time, we know that people who have chronic illnesses, weakened immune systems and/or are over the age of 60 could pose an increased risk if they develop the disease. That said, it is not a time to panic, but rather a time to use procedures that help prevent the flu, coronavirus and other infections. Prevention A great prevention tip is to avoid getting or sharing germs that can cause infections. Here are [...]

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